Early developmental screening and intervention for high-risk neonates - From research to clinical benefits

Yates, 2020, Rates and stability of mental health disorders in children born very preterm at 7 and 13 years, Pediatrics, 145, 10.1542/peds.2019-2699 Spittle, 2016, The role of early developmental intervention to influence neurobehavioral outcomes of children born preterm, Semin Perinatol, 40, 542, 10.1053/j.semperi.2016.09.006 Doyle, 2014, Long term follow up of high risk children: who, why and how?, BMC Pediatr, 14, 279, 10.1186/1471-2431-14-279 Novak, 2017, Early, accurate diagnosis and early intervention in cerebral palsy: advances in diagnosis and treatment, JAMA Pediatr, 171, 897, 10.1001/jamapediatrics.2017.1689 Spittle, 2015, Early developmental intervention programmes provided post hospital discharge to prevent motor and cognitive impairment in preterm infants, Cochrane Database Syst Rev, 11, CD005495 Morgan, 2016, Single blind randomised controlled trial of GAME (Goals - activity - Motor Enrichment) in infants at high risk of cerebral palsy, Res Dev Disabil, 55, 256, 10.1016/j.ridd.2016.04.005 Orton, 2018, NICU graduates: the role of the allied health team in follow-up, Pediatr Ann, 47, e165, 10.3928/19382359-20180325-02 McKinnon, 2019, Developmental follow-up of children and young people born preterm, NICE guideline 2017, Arch Dis Child Educ Pract Ed, 104, 221, 10.1136/archdischild-2017-314044 Litt, 2020, Optimizing high-risk infant follow-up in nonresearch-based paradigms: the new England follow-up network, Pediatr Qual Saf, 5, e287, 10.1097/pq9.0000000000000287 American Academy of Pediatrics Committee on F, 2008, Newborn. Hospital discharge of the high-risk neonate, Pediatrics, 122, 1119, 10.1542/peds.2008-2174 Chawanpaiboon, 2019, Global, regional, and national estimates of levels of preterm birth in 2014: a systematic review and modelling analysis, Lancet Glob Health, 7, e37, 10.1016/S2214-109X(18)30451-0 Twilhaar, 2018, Cognitive outcomes of children born extremely or very preterm since the 1990s and associated risk factors, JAMA Pediatr, 172, 361, 10.1001/jamapediatrics.2017.5323 Reid, 2016, Temporal trends in cerebral palsy by impairment severity and birth gestation, Dev Med Child Neurol, 58, 25, 10.1111/dmcn.13001 Wang, 2006, Quality-of-care indicators for the neurodevelopmental follow-up of very low birth weight children: results of an expert panel process, Pediatrics, 117, 2080, 10.1542/peds.2005-1904 Kitchen, 1978, A longitudinal study of very low-birthweight infants. I: study design and mortality rates, Dev Med Child Neurol, 20, 605, 10.1111/j.1469-8749.1978.tb15279.x Kitchen, 1979, A longitudinal study of very low-birthweight infants. II: results of controlled trial of intensive care and incidence of handicaps, Dev Med Child Neurol, 21, 582, 10.1111/j.1469-8749.1979.tb01673.x Cheong, 2017, Changing neurodevelopment at 8 Years in children born extremely preterm since the 1990s, Pediatrics, 139, 10.1542/peds.2016-4086 Cheong, 2019, Impact of extreme prematurity or extreme low birth weight on young adult health and well-being, the Victorian Infant Collaborative Study (VICS) 1991-1992 Longitudinal Cohort study protocol, 9, 5 Burnett, 2018, Trends in executive functioning in extremely preterm children across 3 birth eras, Pediatrics, 141, 10.1542/peds.2017-1958 Spittle, 2018, Motor impairement trends in extremely preterm children: 1991-2005, Pediatrics, 141, 10.1542/peds.2017-3410 Doyle, 2009, Magnesium sulphate for women at risk of preterm birth for neuroprotection of the fetus, Cochrane Database Syst Rev, CD004661 Wilson-Ching, 2014, Effects of correcting for prematurity on cognitive test scores in childhood, J Paediatr Child Health, 50, 182, 10.1111/jpc.12475 Spittle, 2008, A systematic review of the clinimetric properties of neuromotor assessments for preterm infants during the first year of life, Dev Med Child Neurol, 50, 254, 10.1111/j.1469-8749.2008.02025.x Kwong, 2018, The Baby Moves smartphone app for General Movements Assessment: engagement amongst extremely preterm and term-born infants in a state-wide geographical study, J Paediatr Child Health, 55, 548 Albesher, 2019, Gait characteristics of children born preterm, NeoReviews, 20, e397, 10.1542/neo.20-7-e397 McMahon, 2020, Mental health trajectories of fathers following very preterm birth: associations with parenting, J Pediatr Psychol, 45, 725, 10.1093/jpepsy/jsaa041 Johnson, 2011, Preterm birth and childhood psychiatric disorders, Pediatr Res, 69 Spittle, 2009, Early emergence of behavior and social-emotional problems in very preterm infants, J Am Acad Child Adolesc Psychiatry, 48, 909, 10.1097/CHI.0b013e3181af8235 Spencer-Smith, 2012, Long-term benefits of home-based preventive care for preterm infants: a randomized trial, Pediatrics, 130, 1094, 10.1542/peds.2012-0426 Haataja, 1999, Optimality score for the neurologic examination of the infant at 12 and 18 months of age, J Pediatr, 135, 153, 10.1016/S0022-3476(99)70016-8 Setänen, 2016, Prediction of neuromotor outcome in infants born preterm at 11 years of age using volumetric neonatal magnetic resonance imaging and neurological examinations, Dev Med Child Neurol, 58, 721, 10.1111/dmcn.13030 Little, 2015, Understanding barriers to early intervention services for preterm infants: lessons from two states, Acad Pediatr, 15, 430, 10.1016/j.acap.2014.12.006 Roberts, 2008, Rates of early intervention services in very preterm children with developmental disabilities at age 2 years, J Paediatr Child Health, 44, 276, 10.1111/j.1440-1754.2007.01251.x Anderson, 2020, Early developmental interventions for infants born very preterm - what works?, Semin Fetal Neonatal Med, 25, 101119, 10.1016/j.siny.2020.101119 Khurana, 2020, Effect of neonatal therapy on the motor, cognitive, and behavioral development of infants born preterm: a systematic review, Dev Med Child Neurol, 62, 684, 10.1111/dmcn.14485 Cheong, 2020, Early environment and long-term outcomes of preterm infants, J Neural Transm, 127, 1, 10.1007/s00702-019-02121-w Pace, 2016, Evolution of depression and anxiety symptoms in parents of very preterm infants during the newborn period, JAMA Pediatr, 170, 863, 10.1001/jamapediatrics.2016.0810 Treyvaud, 2010, Parental mental health and early social-emotional development of children born very preterm, J Pediatr Psychol, 35, 768, 10.1093/jpepsy/jsp109 Dickinson, 2020, Efficacy of interventions to improve psychological adjustment for parents of infants with or at risk of neurodevelopmental disability: a systematic review, Infant Ment Health J, 10.1002/imhj.21871 McGinley, 2015, Challenges of neurodevelopmental follow-up for extremely preterm infants at two years, Early Hum Dev, 91, 689, 10.1016/j.earlhumdev.2015.09.012 Guillén, 2012, Relationship between attrition and neurodevelopmental impairment rates in extremely preterm infants at 18 to 24 months: a systematic review, Arch Pediatr Adolsec Med, 166, 178, 10.1001/archpediatrics.2011.616 Doyle, 2018, Developmental disability at school age and difficulty obtaining follow-up data, Pediatrics, 141, 10.1542/peds.2017-3102 Lemmon, 2017, Parent experience of neonatal encephalopathy: the need for family-centered outcomes, J Child Neurol, 32, 286, 10.1177/0883073816680747 Dorner, 2020, Maitre Parent preferences for neurodevelopmental screening in the neonatal intensive care unit, Dev Med Child Neurol, 62, 500, 10.1111/dmcn.14457 Guttmann, 2018, Parental perspectives on diagnosis and prognosis of neonatal intensive care unit graduates with cerebral palsy, J Pediatr, 203, 156, 10.1016/j.jpeds.2018.07.089 Draper, 2020, EPICE cohort: two-year neurodevelopmental outcomes after very preterm birth, Arch Dis Child Fetal Neonatal Ed, 105, 350, 10.1136/archdischild-2019-317418 McIntyre, 2011, Cerebral palsy--don't delay, Dev Disabil Res Rev, 17, 114, 10.1002/ddrr.1106 Mills, 2017, Victorian Infant Collaborative Study G. Rates of early intervention services in children born extremely preterm/extremely low birthweight, J Paediatr Child Health Doyle, 1996, Cost evaluation of intensive care for extremely tiny babies, Semin Neonatol, 1, 289, 10.1016/S1084-2756(96)80048-0 Litt, 2015, The effect of the infant health and development program on special education use at school age, J Pediatr, 166, P457, 10.1016/j.jpeds.2014.09.066