Discrimination, trust, and withholding information from providers: Implications for missing data and inequity
Tài liệu tham khảo
Agaku, 2014, Concern about security and privacy, and perceived control over collection and use of health information are related to withholding of health information from healthcare providers, Journal of the American Medical Informatics Association : JAMIA, 21, 374, 10.1136/amiajnl-2013-002079
Agarwala, 2018, Real-world evidence in support of precision medicine: Clinico-genomic cancer data as A case study, Health Affairs, 37, 765, 10.1377/hlthaff.2017.1579
Alang, 2021, White supremacy and the core functions of public health, American Journal of Public Health, 111, 815, 10.2105/AJPH.2020.306137
Altman, 2007, Missing data, BMJ, 334, 424, 10.1136/bmj.38977.682025.2C
Armstrong, 2013, Prior experiences of racial discrimination and racial differences in health care system distrust, Medical Care, 51, 144, 10.1097/MLR.0b013e31827310a1
Armstrong, 2006, Distrust of the health care system and self-reported health in the United States, Journal of General Internal Medicine, 21, 292, 10.1111/j.1525-1497.2006.00396.x
Barda, 2021, Addressing bias in prediction models by improving subpopulation calibration, Journal of the American Medical Informatics Association, 10.1093/jamia/ocaa283
Ben, 2017, Racism and health service utilisation: A systematic review and meta-analysis, PLoS One, 12, 10.1371/journal.pone.0189900
Blanch-Hartigan, 2016, Trends in cancer survivors' experience of patient-centered communication: Results from the health information national Trends survey (HINTS), Journal of Cancer Survivorship, 10, 1067, 10.1007/s11764-016-0550-7
Bonilla-Silva, 1997, Rethinking racism: Toward a structural interpretation, American Sociological Review, 62, 465, 10.2307/2657316
Boulware, 2003, Race and trust in the health care system, Public Health Reports, 118, 8, 10.1016/S0033-3549(04)50262-5
Bugge, 2006, The significance for decision-making of information that is not exchanged by patients and health professionals during consultations, Social Science & Medicine, 63, 2065, 10.1016/j.socscimed.2006.05.010
Campos-Castillo, 2015, The double-edged sword of electronic health records: Implications for patient disclosure, Journal of the American Medical Informatics Association, 22, e130, 10.1136/amiajnl-2014-002804
Campos-Castillo, 2019, Situated trust in a physician: Patient health characteristics and trust in physician confidentiality, The Sociological Quarterly, 60, 559, 10.1080/00380253.2018.1547174
Collins, 2015, A new initiative on precision medicine, New England Journal of Medicine, 372, 793, 10.1056/NEJMp1500523
Dovidio, 2008, Disparities and distrust: The implications of psychological processes for understanding racial disparities in health and health care, Social Science & Medicine, 67, 478, 10.1016/j.socscimed.2008.03.019
Entwistle, 2006, Which surgical decisions should patients participate in and how? Reflections on women's recollections of discussions about variants of hysterectomy, Social Science & Medicine, 62, 499, 10.1016/j.socscimed.2005.06.027
Ferryman, 2020, Addressing health disparities in the Food and Drug Administration's artificial intelligence and machine learning regulatory framework, Journal of the American Medical Informatics Association, 27, 2016, 10.1093/jamia/ocaa133
Finney Rutten, 2015, The relation between having a usual source of care and ratings of care quality: Does patient-centered communication play a role?, Journal of Health Communication, 20, 759, 10.1080/10810730.2015.1018592
Finney Rutten, 2016, Health self-efficacy among populations with multiple chronic conditions: The value of patient-centered communication, Advances in Therapy, 33, 1440, 10.1007/s12325-016-0369-7
Fiscella, 2004, Patient trust: Is it related to patient-centered behavior of primary care physicians?, Medical Care, 42, 1049, 10.1097/00005650-200411000-00003
Friedman, 2014, From bias to bisexual health disparities: Attitudes toward bisexual men and women in the United States, LGBT Health, 1, 309, 10.1089/lgbt.2014.0005
Gee, 2009, Racial discrimination and health among Asian Americans: Evidence, assessment, and directions for future research, Epidemiologic Reviews, 31, 130, 10.1093/epirev/mxp009
Gianfrancesco, 2018, Potential biases in machine learning algorithms using electronic health record data, JAMA Internal Medicine, 178, 1544, 10.1001/jamainternmed.2018.3763
Ginsburg, 2018, Precision medicine: From science to value, Health Affairs, 37, 694, 10.1377/hlthaff.2017.1624
Hahn, 2009, Patient-Centered communication to assess and enhance patient Adherence to glaucoma medication, Ophthalmology, 116, S37, 10.1016/j.ophtha.2009.06.023
Hall, 2001, Trust in physicians and medical institutions: What is it, can it Be measured, and does it matter?, The Milbank Quarterly, 79, 613, 10.1111/1468-0009.00223
Hall, 2002, Measuring patients' trust in their primary care providers, Medical Care Research and Review, 59, 293, 10.1177/1077558702059003004
Hausmann, 2011, Impact of perceived discrimination in health care on patient-provider communication, Medical Care, 49, 626, 10.1097/MLR.0b013e318215d93c
Horne, 2006, Compliance, adherence, and concordance: Implications for asthma treatment, Chest, 130, 65S, 10.1378/chest.130.1_suppl.65S
Iott, 2020, Trust and privacy: How patient trust in providers is related to privacy behaviors and attitudes, AMIA Annual Symposium Proceedings, 487
Jones, 2000, Levels of racism: A theoretic framework and a gardener's tale, American Journal of Public Health, 90, 1212, 10.2105/AJPH.90.8.1212
Krieger, 2000, Discrimination and health
Krieger, 2014, Discrimination and health inequities, International Journal of Health Services, 44, 643, 10.2190/HS.44.4.b
Krieger, 2005, Experiences of discrimination: Validity and reliability of a self-report measure for population health research on racism and health, Social Science & Medicine, 61, 1576, 10.1016/j.socscimed.2005.03.006
LaVeist, 2009, Mistrust of health care organizations is associated with underutilization of health services, Health Services Research, 44, 2093, 10.1111/j.1475-6773.2009.01017.x
LaVeist, 2000, Attitudes about racism, medical mistrust, and satisfaction with care among African American and white cardiac patients, Medical Care Research and Review, 57, 146, 10.1177/1077558700057001S07
LaVeist, 2003, The association of doctor-patient race concordance with health services utilization, Journal of Public Health Policy, 24, 312, 10.2307/3343378
Levy, 2018, Prevalence of and factors associated with patient nondisclosure of medically relevant information to clinicians, JAMA Network Open, 1, 10.1001/jamanetworkopen.2018.5293
Martin, 2013, Physician communication behaviors and trust among Black and white patients with hypertension, Medical Care, 51, 151, 10.1097/MLR.0b013e31827632a2
Mechanic, 1998, The functions and limitations of trust in the provision of medical care, Journal of Health Politics, Policy and Law, 23, 661, 10.1215/03616878-23-4-661
Mechanic, 2000, Concepts of trust among patients with serious illness, Social Science & Medicine, 51, 657, 10.1016/S0277-9536(00)00014-9
Mitchell, 2020, Disparities in patient-centered communication for Black and Latino men in the U.S.: Cross-sectional results from the 2010 health and retirement study, PLoS One, 15
Ngiam, 2019, Big data and machine learning algorithms for health-care delivery, The Lancet Oncology, 20, e262, 10.1016/S1470-2045(19)30149-4
Ng, 2017, Data on race, ethnicity, and language largely incomplete for managed care plan members | health affairs, Health Affairs, 36, 10.1377/hlthaff.2016.1044
Nong, 2020, Patient-reported experiences of discrimination in the US health care system, JAMA Network Open, 3, 10.1001/jamanetworkopen.2020.29650
Obermeyer, 2019, Dissecting racial bias in an algorithm used to manage the health of populations, Science, 366, 447, 10.1126/science.aax2342
Ostertag, 2006, Trust and other characteristics associated with health care utilization by injection drug users, Journal of Drug Issues, 36, 953, 10.1177/002204260603600409
Rajkomar, 2018, Ensuring fairness in machine learning to advance health equity, Annals of Internal Medicine, 169, 866, 10.7326/M18-1990
Ross, 2020, When is a complete-case approach to missing data valid? The importance of effect-measure modification, American Journal of Epidemiology, 189, 1583, 10.1093/aje/kwaa124
van Ryn, 2011, The impact of racism on clinician cognition, behavior, and clinical decision making, Du Bois Review : Social Science Research on Race, 8, 199, 10.1017/S1742058X11000191
van Ryn, 2003, Paved with good intentions: Do public health and human service providers contribute to racial/ethnic disparities in health?, American Journal of Public Health, 93, 248, 10.2105/AJPH.93.2.248
Sabin, 2015, Health care providers' implicit and explicit attitudes toward lesbian women and gay men, American Journal of Public Health, 105, 1831, 10.2105/AJPH.2015.302631
Schilke, 2021, Trust in social relations, Annual Review of Sociology, 47, 10.1146/annurev-soc-082120-082850
Sewell, 2015, Disaggregating ethnoracial disparities in physician trust, Social Science Research, 54, 1, 10.1016/j.ssresearch.2015.06.020
Spencer, 2016, Social foundations of health care inequality and treatment bias, Annual Review of Sociology, 42, 101, 10.1146/annurev-soc-081715-074226
Stablein, 2015, Negotiating stigma in health care: Disclosure and the role of electronic health records, Health Sociology Review, 24, 227, 10.1080/14461242.2015.1078218
Stepanikova, 2017, Perceived discrimination and privilege in health care: The role of socioeconomic status and race, American Journal of Preventive Medicine, 52, S86, 10.1016/j.amepre.2016.09.024
Stevenson, 2004, A systematic review of the research on communication between patients and health care professionals about medicines: The consequences for concordance, Health Expectations, 7, 235, 10.1111/j.1369-7625.2004.00281.x
Sutton, 2020, An overview of clinical decision support systems: Benefits, risks, and strategies for success, Npj Digital Medicine, 3, 1, 10.1038/s41746-020-0221-y
Tajeu, 2015, We’ll get to you when we get to you”: Exploring potential contributions of health care staff behaviors to patient perceptions of discrimination and satisfaction, American Journal of Public Health, 105, 2076, 10.2105/AJPH.2015.302721
Thom, 2004, Measuring patients' trust in physicians when assessing quality of care, Health Affairs, 23, 124, 10.1377/hlthaff.23.4.124
Trivedi, 2006, Perceived discrimination and use of preventive health services, Journal of General Internal Medicine, 21, 553, 10.1111/j.1525-1497.2006.00413.x
Trivedi, 2021, Predictors of patient-centered communication among U.S. Adults: Analysis of the 2017-2018 health information national Trends survey (HINTS), Journal of Health Communication, 26, 57, 10.1080/10810730.2021.1878400
Verhaeghe, 2011, Stigma and trust among mental health service users, Archives of Psychiatric Nursing, 25, 294, 10.1016/j.apnu.2011.02.001
Wang, 2019, AI in health: State of the art, challenges, and future directions, Yearbook of Medical Informatics, 28, 16, 10.1055/s-0039-1677908
Weiskopf, 2013, Defining and measuring completeness of electronic health records for secondary use, Journal of Biomedical Informatics, 46, 830, 10.1016/j.jbi.2013.06.010
Williams, 2019, Racism and health: Evidence and needed research, Annual Review of Public Health, 40, 105, 10.1146/annurev-publhealth-040218-043750
Williams, 2019, Understanding how discrimination can affect health, Health Services Research, 54, 1374, 10.1111/1475-6773.13222
Williams, 2009, Discrimination and racial disparities in health: Evidence and needed research, Journal of Behavioral Medicine, 32, 20, 10.1007/s10865-008-9185-0
Williams, 1997, Racial differences in physical and mental health: Socio-economic status, stress and discrimination, Journal of Health Psychology, 2, 335, 10.1177/135910539700200305