Difficulties in Transition of Care from Pediatric to Adult Gynecology Providers: Should We Maintain Care into Adulthood?

Journal of Pediatric and Adolescent Gynecology - Tập 33 - Trang 255-259 - 2020
Christine Osborne1,2, Jaelene Mannerfeldt1,2, Philippa Brain1,2, Sarah K. McQuillan1,2
1Department of Obstetrics and Gynecology, University of Calgary, Calgary, AB, Canada
2Department of Pediatric and Adolescent Gynecology, Alberta Children's Hospital, Calgary, AB, Canada

Tài liệu tham khảo

Hertweck, 2019, Challenges and opportunities in adolescent gynecology patients with surgically-treated congenital and acquired anomalies: transition of care from pediatric to adult surgery, J Pediatr Adolesc Gynecol, 32, 103, 10.1016/j.jpag.2018.11.007 Viner, 1999, Transition from paediatric to adult care. Bridging the gaps or passing the buck?, Arch Dis Child, 10.1136/adc.81.3.271 Campbell, 2016, Transition of care for adolescents from paediatric services to adult health services, Cochrane Database Syst Rev, 10.1002/14651858.CD009794.pub2 Kirkham, 2015, Patient profile and reproductive health concerns of young women attending a transitional gynecology clinic, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2015.02.108 Stankovic, 2019, The future of paediatric and adolescent gynaecology in Europe, Eur J Obstet Gynecol Reprod Biol, 10.1016/j.ejogrb.2018.08.025 Kruse, 2004, Congenital adrenal hyperplasia–how to improve the transition from adolescence to adult life, Exp Clin Endocrinol Diabetes, 10.1055/s-2004-821013 Speiser, 2010, Congenital adrenal hyperplasia due to steroid 21-hydroxylase deficiency: an Endocrine Society clinical practice guideline, J Clin Endocrinol Metab, 10.1210/jc.2009-2631 Hullmann, 2011, Transition from pediatric to adult care for adolescents and young adults with a disorder of sex development, J Pediatr Adolesc Gynecol Sakakibara, 2011, Health management of adults with Turner syndrome: an attempt at multidisciplinary medical care by gynecologists in cooperation with specialists from other fields, J Obstet Gynaecol Res, 10.1111/j.1447-0756.2010.01448.x Richmond, 2016, Pediatric and adolescent gynecology in europe: clinical services, standards of care, and training, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2015.11.003 Ryscavage, 2016, Linkage to and retention in care following healthcare transition from pediatric to adult HIV care, AIDS Care, 10.1080/09540121.2015.1131967 Gleeson, 2013, The challenge of delivering endocrine care and successful transition to adult services in adolescents with congenital adrenal hyperplasia: experience in a single centre over 18 years, Clin Endocrinol (Oxf), 10.1111/cen.12053 Kirkham, 2015, Barriers, expectations, and needs of young women during transition from pediatric to adult gynecologic care, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2015.02.107 Durkin, 2015, Passing the baton: the pediatric surgical perspective on transition, J Pediatr Surg, 10.1016/j.jpedsurg.2014.10.050 Fernandes, 2010, Current practices for the transition and transfer of patients with a wide spectrum of pediatric-onset chronic diseases: results of a clinician survey at a free-standing, Int J Child Adolesc Health Fishman, 2016, Pediatric orthopaedic providers’ views on transition from pediatric to adult care, J Pediatr Orthop, 10.1097/BPO.0000000000000629 Reiss, 2017, Health care transition: youth, family, and provider perspectives, Pediatrics White, 2018, Readying youth and young adults for transition to adult care during preventive care visits: new clinician toolkit, J Adolesc Health, 10.1016/j.jadohealth.2018.09.008 Betz, 2010, Testing the transition preparation training program: a randomized controlled trial, Int J Child Adolesc Health Mackie, 2014, Healthcare transition for youth with heart disease: a clinical trial, Heart, 10.1136/heartjnl-2014-305748 Steinbeck, 2015, A pilot randomized controlled trial of a post-discharge program to support emerging adults with type 1 diabetes mellitus transition from pediatric to adult care, Pediatr Diabetes, 10.1111/pedi.12229 Luke, 2018, Paediatric patient navigation models of care in Canada: an environmental scan, Paediatr Child Health, 10.1093/pch/pxx176 Amies Oelschlager, 2015, Transition to adult care in persons with disorders of sexual development: the role of the gynecologist, Obstet Gynecol, 10.1097/AOG.0000000000001034 Johannsen, 2006, Quality of life in 70 women with disorders of sex development, Eur J Endocrinol, 10.1530/eje.1.02294 Warne, 2005, A long-term outcome study of intersex conditions, J Pediatr Endocrinol Metab, 10.1515/JPEM.2005.18.6.555 Ernst, 2016, The lived experience of MRKH: sharing health information with peers, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2015.09.009 Bertelloni, 2010, Bone health in disorders of sex differentiation, Sex Dev, 10.1159/000315961 Roen, 2018, Vaginal construction and treatment providers’ experiences: a qualitative analysis, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2018.01.001 Amies Oelschlager, 2019, Vaginal dilator therapy: a guide for providers for assessing readiness and supporting patients through the process successfully, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2019.05.002 Patel, 2018, Providers’ experiences with vaginal dilator training for patients with vaginal agenesis, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2017.07.006 Edmonds, 2012, Mayer-Rokitansky-Küster-Hauser syndrome: a review of 245 consecutive cases managed by a multidisciplinary approach with vaginal dilators, Fertil Steril, 10.1016/j.fertnstert.2011.12.038 Oelschlager, 2016, Primary vaginal dilation for vaginal agenesis: strategies to anticipate challenges and optimize outcomes, Curr Opin Obstet Gynecol, 10.1097/GCO.0000000000000302 Quint, 2016, Adolescents with special needs: clinical challenges in reproductive health care, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2015.05.003 Toolenaar, 1993, The occurrence of diversion colitis in patients with a sigmoid neovagina, Hum Pathol, 10.1016/0046-8177(93)90134-3 Schober, 2007, Cancer of the neovagina, J Pediatr Urol, 10.1016/j.jpurol.2006.07.010 Köhler, 2012, Satisfaction with genital surgery and sexual life of adults with XY disorders of sex development: results from the German Clinical Evaluation Study, J Clin Endocrinol Metab, 10.1210/jc.2011-1441 Fliegner, 2014, Sexual life and sexual wellness in individuals with complete androgen insensitivity syndrome (CAIS) and Mayer-Rokitansky-Küster-Hauser syndrome (MRKHS), J Sex Med, 10.1111/jsm.12321 Ismail-Pratt, 2007, Normalization of the vagina by dilator treatment alone in complete androgen insensitivity syndrome and Mayer-Rokitansky-Kuster-Hauser syndrome, Hum Reprod, 10.1093/humrep/dem074 Creighton, 2013, Complex gynaecological and urological problems in adolescents: challenges and transition, Postgrad Med J, 10.1136/postgradmedj-2012-131232 Kaufman, 2007, Transition to adult care for youth with special health care needs, Paediatr Child Health, 10.1093/pch/12.9.785 Martins, 2015, Using the International Classification of Functioning, Disability and Health (ICF) to address facilitators and barriers to participation at work, Work, 10.3233/WOR-141965