Difficulties in Transition of Care from Pediatric to Adult Gynecology Providers: Should We Maintain Care into Adulthood?
Tài liệu tham khảo
Hertweck, 2019, Challenges and opportunities in adolescent gynecology patients with surgically-treated congenital and acquired anomalies: transition of care from pediatric to adult surgery, J Pediatr Adolesc Gynecol, 32, 103, 10.1016/j.jpag.2018.11.007
Viner, 1999, Transition from paediatric to adult care. Bridging the gaps or passing the buck?, Arch Dis Child, 10.1136/adc.81.3.271
Campbell, 2016, Transition of care for adolescents from paediatric services to adult health services, Cochrane Database Syst Rev, 10.1002/14651858.CD009794.pub2
Kirkham, 2015, Patient profile and reproductive health concerns of young women attending a transitional gynecology clinic, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2015.02.108
Stankovic, 2019, The future of paediatric and adolescent gynaecology in Europe, Eur J Obstet Gynecol Reprod Biol, 10.1016/j.ejogrb.2018.08.025
Kruse, 2004, Congenital adrenal hyperplasia–how to improve the transition from adolescence to adult life, Exp Clin Endocrinol Diabetes, 10.1055/s-2004-821013
Speiser, 2010, Congenital adrenal hyperplasia due to steroid 21-hydroxylase deficiency: an Endocrine Society clinical practice guideline, J Clin Endocrinol Metab, 10.1210/jc.2009-2631
Hullmann, 2011, Transition from pediatric to adult care for adolescents and young adults with a disorder of sex development, J Pediatr Adolesc Gynecol
Sakakibara, 2011, Health management of adults with Turner syndrome: an attempt at multidisciplinary medical care by gynecologists in cooperation with specialists from other fields, J Obstet Gynaecol Res, 10.1111/j.1447-0756.2010.01448.x
Richmond, 2016, Pediatric and adolescent gynecology in europe: clinical services, standards of care, and training, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2015.11.003
Ryscavage, 2016, Linkage to and retention in care following healthcare transition from pediatric to adult HIV care, AIDS Care, 10.1080/09540121.2015.1131967
Gleeson, 2013, The challenge of delivering endocrine care and successful transition to adult services in adolescents with congenital adrenal hyperplasia: experience in a single centre over 18 years, Clin Endocrinol (Oxf), 10.1111/cen.12053
Kirkham, 2015, Barriers, expectations, and needs of young women during transition from pediatric to adult gynecologic care, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2015.02.107
Durkin, 2015, Passing the baton: the pediatric surgical perspective on transition, J Pediatr Surg, 10.1016/j.jpedsurg.2014.10.050
Fernandes, 2010, Current practices for the transition and transfer of patients with a wide spectrum of pediatric-onset chronic diseases: results of a clinician survey at a free-standing, Int J Child Adolesc Health
Fishman, 2016, Pediatric orthopaedic providers’ views on transition from pediatric to adult care, J Pediatr Orthop, 10.1097/BPO.0000000000000629
Reiss, 2017, Health care transition: youth, family, and provider perspectives, Pediatrics
White, 2018, Readying youth and young adults for transition to adult care during preventive care visits: new clinician toolkit, J Adolesc Health, 10.1016/j.jadohealth.2018.09.008
Betz, 2010, Testing the transition preparation training program: a randomized controlled trial, Int J Child Adolesc Health
Mackie, 2014, Healthcare transition for youth with heart disease: a clinical trial, Heart, 10.1136/heartjnl-2014-305748
Steinbeck, 2015, A pilot randomized controlled trial of a post-discharge program to support emerging adults with type 1 diabetes mellitus transition from pediatric to adult care, Pediatr Diabetes, 10.1111/pedi.12229
Luke, 2018, Paediatric patient navigation models of care in Canada: an environmental scan, Paediatr Child Health, 10.1093/pch/pxx176
Amies Oelschlager, 2015, Transition to adult care in persons with disorders of sexual development: the role of the gynecologist, Obstet Gynecol, 10.1097/AOG.0000000000001034
Johannsen, 2006, Quality of life in 70 women with disorders of sex development, Eur J Endocrinol, 10.1530/eje.1.02294
Warne, 2005, A long-term outcome study of intersex conditions, J Pediatr Endocrinol Metab, 10.1515/JPEM.2005.18.6.555
Ernst, 2016, The lived experience of MRKH: sharing health information with peers, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2015.09.009
Bertelloni, 2010, Bone health in disorders of sex differentiation, Sex Dev, 10.1159/000315961
Roen, 2018, Vaginal construction and treatment providers’ experiences: a qualitative analysis, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2018.01.001
Amies Oelschlager, 2019, Vaginal dilator therapy: a guide for providers for assessing readiness and supporting patients through the process successfully, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2019.05.002
Patel, 2018, Providers’ experiences with vaginal dilator training for patients with vaginal agenesis, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2017.07.006
Edmonds, 2012, Mayer-Rokitansky-Küster-Hauser syndrome: a review of 245 consecutive cases managed by a multidisciplinary approach with vaginal dilators, Fertil Steril, 10.1016/j.fertnstert.2011.12.038
Oelschlager, 2016, Primary vaginal dilation for vaginal agenesis: strategies to anticipate challenges and optimize outcomes, Curr Opin Obstet Gynecol, 10.1097/GCO.0000000000000302
Quint, 2016, Adolescents with special needs: clinical challenges in reproductive health care, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2015.05.003
Toolenaar, 1993, The occurrence of diversion colitis in patients with a sigmoid neovagina, Hum Pathol, 10.1016/0046-8177(93)90134-3
Schober, 2007, Cancer of the neovagina, J Pediatr Urol, 10.1016/j.jpurol.2006.07.010
Köhler, 2012, Satisfaction with genital surgery and sexual life of adults with XY disorders of sex development: results from the German Clinical Evaluation Study, J Clin Endocrinol Metab, 10.1210/jc.2011-1441
Fliegner, 2014, Sexual life and sexual wellness in individuals with complete androgen insensitivity syndrome (CAIS) and Mayer-Rokitansky-Küster-Hauser syndrome (MRKHS), J Sex Med, 10.1111/jsm.12321
Ismail-Pratt, 2007, Normalization of the vagina by dilator treatment alone in complete androgen insensitivity syndrome and Mayer-Rokitansky-Kuster-Hauser syndrome, Hum Reprod, 10.1093/humrep/dem074
Creighton, 2013, Complex gynaecological and urological problems in adolescents: challenges and transition, Postgrad Med J, 10.1136/postgradmedj-2012-131232
Kaufman, 2007, Transition to adult care for youth with special health care needs, Paediatr Child Health, 10.1093/pch/12.9.785
Martins, 2015, Using the International Classification of Functioning, Disability and Health (ICF) to address facilitators and barriers to participation at work, Work, 10.3233/WOR-141965