Difficult situations and moral questions raised during moral case deliberations in Swedish childhood cancer care – A qualitative nationwide study
Tài liệu tham khảo
Aarthun, 2014, Parent participation in decision-making in health-care services for children: an integrative review, J. Nurs. Manag., 22, 177, 10.1111/j.1365-2834.2012.01457.x
Abma, 2009, Good care in ongoing dialogue. Improving the quality of care through moral deliberation and responsive evaluation, Health Care Anal., 17, 217, 10.1007/s10728-008-0102-z
Abrams, 2019, Factors influencing family burden in pediatric hematology/oncology encounters, J. Patient Cent. Res. Rev., 6, 243, 10.17294/2330-0698.1710
Badarau, 2017, Decision making in pediatric oncology: views of parents and physicians in two European countries, AJOB Empir. Bioeth., 8, 21, 10.1080/23294515.2016.1234519
Bartholdson, 2015, Experiences of ethical issues when caring for children with cancer, Cancer Nurs., 38, 125, 10.1097/NCC.0000000000000130
Bartholdson, 2018, Ethics case reflection sessions: enablers and barriers, Nurs. Ethics, 25, 199, 10.1177/0969733017693471
Bartholdson, 2014, Procedures for clinical ethics case reflections: an example from childhood cancer care, Clin. Ethics, 9, 87, 10.1177/1477750914546758
Beauchamp, 2013
Cho, 2020, Patient and family descriptions of ethical concerns, Am. J. Bioeth., 20, 52, 10.1080/15265161.2020.1754500
Coyne, 2015, Families and health-care professionals' perspectives and expectations of family-centred care: hidden expectations and unclear roles, Health Expect., 18, 796, 10.1111/hex.12104
Coyne, 2016, Information-sharing between healthcare professionals, parents and children with cancer: more than a matter of information exchange, Eur. J. Cancer Care, 25, 141, 10.1111/ecc.12411
Coyne, 2018, Centeredness in healthcare: a concept synthesis of family-centered care, person-centered care and child-centered care, J. Pediatr. Nurs., 42, 45, 10.1016/j.pedn.2018.07.001
Dudzinski, 2016, Navigating moral distress using the moral distress map, J. Med. Ethics, 42, 321, 10.1136/medethics-2015-103156
Engel, 1981, The clinical application of the biopsychosocial bodel, J. Med. Philos., 6, 101, 10.1093/jmp/6.2.101
Forde, 2005, Clinical ethics, information, and communication: review of 31 cases from a clinical ethics committee, J. Med. Ethics, 31, 73, 10.1136/jme.2003.003954
Fournier, 2009, Clinical ethics consultation in Europe: a comparative and ethical review of the role of patients, Clin. Ethics, 4, 131, 10.1258/ce.2009.009020
Fox, 2010, IntegratedEthics: an innovative program to improve ethics quality in health care, Innov, 15, 1
Friebert, 2000, Kids and cancer: ethical issues in treating the pediatric oncology patient, Cancer Treat Res., 102, 99, 10.1007/978-1-4757-3044-9_9
Førde, 2011, Clinical ethics committees in Norway: what do they do, and does it make a difference?, Camb. Q. Healthc. Ethics, 20, 389, 10.1017/S0963180111000077
Gunter, 2019, Social support to reduce uncertainty in childhood cancer in South Texas: a case study, J. Pediatr. Oncol. Nurs., 36, 207, 10.1177/1043454219835450
Hartman, 2019, Developing a 'moral compass tool' based on moral case deliberations: a pragmatic hermeneutic approach to clinical ethics, Bioethics, 33, 1012, 10.1111/bioe.12617
Inguaggiato, 2019, A pragmatist approach to clinical ethics support: overcoming the perils of ethical pluralism, Med. Health Care Philos., 22, 427, 10.1007/s11019-018-09882-3
Johnson, 2015, Ethics consultation in pediatrics: long-term experience from a pediatric oncology center, Am J Bioeth., 15, 3, 10.1080/15265161.2015.1021965
Lam, 2019, Science and health for all children with cancer, Science, 363, 1182, 10.1126/science.aaw4892
Lipstein, 2012, What is known about parents' treatment decisions? A narrative review of pediatric decision making, Med. Decis. Making, 32, 246, 10.1177/0272989X11421528
Loh, 2017, The importance of recognizing social vulnerability in patients during clinical practice, J. Health Care Poor Underserved, 28, 869, 10.1353/hpu.2017.0084
Lyren, 2007, Special considerations for clinical ethics consultation in pediatrics: pediatric care provider as advocate, Clin. Pediatr., 46, 771, 10.1177/0009922807304148
Malterud, 2001, The art and science of clinical knowledge: evidence beyond measures and numbers, Lancet, 358, 397, 10.1016/S0140-6736(01)05548-9
Malterud, 2012, Systematic text condensation: a strategy for qualitative analysis, Scand. J. Publ. Health, 40, 795, 10.1177/1403494812465030
McDougall, 2016, What kinds of cases do paediatricians refer to clinical ethics? Insights from 184 case referrals at an Australian paediatric hospital, J. Med. Ethics, 42, 586, 10.1136/medethics-2015-103025
Molewijk, 2008, Teaching ethics in the clinic. The theory and practice of moral case deliberation, J. Med. Ethics, 34, 120, 10.1136/jme.2006.018580
Molewijk, 2008, Implementing moral case deliberation in a psychiatric hospital: process and outcome, Med. Health Care Philos., 11, 43, 10.1007/s11019-007-9103-1
Molewijk, 2016, Two years of moral case deliberations on the use of coercion in mental health care: which ethical challenges are being discussed by health care professionals?, Clin. Ethics, 11, 87, 10.1177/1477750915622034
Molewijk, 2016
Moon, 2019, Triangulation: a method to increase validity, reliability, and legitimation in clinical research, J. Emerg. Nurs., 45, 103, 10.1016/j.jen.2018.11.004
2020
Newman, 2019, Pediatric oncology nurses' perceptions of prognosis-related communication, Nurs. Outlook, 67, 101, 10.1016/j.outlook.2018.11.001
Odeniyi, 2017, Communication challenges of oncologists and intensivists caring for pediatric oncology patients: a qualitative study, J. Pain Symptom Manag., 54, 909, 10.1016/j.jpainsymman.2017.06.013
Pye, 2013, Exploring moral distress in pediatric oncology; a sample of registered practitioners, Issues Compr. Pediatr. Nurs., 36, 248, 10.3109/01460862.2013.812693
Rasoal, 2016, What healthcare teams find ethically difficult: captured in 70 moral case deliberations, Nurs. Ethics, 23, 825, 10.1177/0969733015583928
Rasoal, 2017, Clinical ethics support for healthcare personnel: an integrative literature review, HEC Forum, 29, 313, 10.1007/s10730-017-9325-4
Stolper, 2015, Learning by doing. Training health care professionals to become facilitator of moral case deliberation, HEC Forum, 27, 47, 10.1007/s10730-014-9251-7
Stolper, 2016, Bioethics education in clinical settings: theory and practice of the dilemma method of moral case deliberation, BMC Med. Ethics, 17, 45, 10.1186/s12910-016-0125-1
Svendsen, 2017, Exploring perspectives on restraint during medical procedures in paediatric care: a qualitative interview study with nurses and physicians, Int. J. Qual. Stud. Health Well-Being, 12, 10.1080/17482631.2017.1363623
Valdez-Martinez, 2014, When to stop? Decision-making when children's cancer treatment is no longer curative: a mixed-method systematic review, BMC Pediatr., 14, 124, 10.1186/1471-2431-14-124
Weidema, 2016, Working towards implementing moral case deliberation in mental healthcare: ongoing dialogue and shared ownership as strategy, Clin. Ethics, 11, 54, 10.1177/1477750916644932
Weiner, 2021, Perceptions of important outcomes of moral case deliberations: a qualitative study among healthcare professionals in childhood cancer care, BMC Med. Ethics, 22, 27, 10.1186/s12910-021-00597-4
Whitney, 2006, Decision making in pediatric oncology: who should take the lead? The decisional priority in pediatric oncology model, J. Clin. Oncol., 24, 160, 10.1200/JCO.2005.01.8390
Winter, 2019, Content review of pediatric ethics consultations at a cancer center, Pediatr. Blood Cancer, 66, 10.1002/pbc.27617