Development of a disease-specific quality of life questionnaire module for patients with gastrointestinal neuroendocrine tumours

Larsson, 2003, Distress, quality of life and strategies to ‘keep a good mood’ in patients with carcinoid tumours: patient and staff perceptions, Eur J Cancer Care (Engl), 12, 46, 10.1046/j.1365-2354.2003.00322.x Larsson, 2001, Health-related quality of life, anxiety and depression in patients with midgut carcinoid tumours, Acta Oncol, 40, 825, 10.1080/02841860152703445 Larsson, 1999, Importance-satisfaction discrepancies are associated with health-related quality of life in five-year survivors of endocrine gastrointestinal tumours, Ann Oncol, 10, 1321, 10.1023/A:1008360718646 Larsson, 1999, Health-related quality of life in patients with endocrine tumours of the gastrointestinal tract, Acta Oncol, 38, 481, 10.1080/028418699432022 Jacobsen, 1995, Clinical effects of octreotide compared to placebo in patients with gastrointestinal neuroendocrine tumours. Report on a double-blind, randomized trial, J Intern Med, 237, 269, 10.1111/j.1365-2796.1995.tb01175.x Wymenga, 1999, Efficacy and safety of prolonged-release lanreotide in patients with gastrointestinal neuroendocrine tumors and hormone-related symptoms, J Clin Oncol, 17, 1111, 10.1200/JCO.1999.17.4.1111 O’Toole, 2000, Treatment of carcinoid syndrome: a prospective crossover evaluation of lanreotide versus octreotide in terms of efficacy, patient acceptability, and tolerance, Cancer, 88, 770, 10.1002/(SICI)1097-0142(20000215)88:4<770::AID-CNCR6>3.0.CO;2-0 Norheim, 1987, Malignant carcinoid tumors. An analysis of 103 patients with regard to tumor localization, hormone production, and survival, Ann Surg, 206, 115, 10.1097/00000658-198708000-00001 Davis, 1973, The malignant carcinoid syndrome, Surg Gynaecol Obstet, 137, 637 Debas, 1994, Neuroendocrine gut neoplasms. Important lessons from uncommon tumors, Arch Surg, 129, 965, 10.1001/archsurg.1994.01420330079015 Tomassetti, 2001, Epidemiology, clinical features and diagnosis of gastroenteropancreatic endocrine tumours, Ann Oncol, 12, S95, 10.1093/annonc/12.suppl_2.S95 Soga, 1998, The gastrinoma/Zollinger–Ellison syndrome: statistical evaluation of a Japanese series of 359 cases, J Hepatobiliary Pancreat Surg, 5, 77, 10.1007/PL00009955 Deveney, 1987, Zollinger–Ellison syndrome (gastrinoma). Current diagnosis and treatment, Surg Clin North Am, 67, 411, 10.1016/S0039-6109(16)44192-7 Soga, 1998, Insulinoma/hypoglycemic syndrome: a statistical evaluation of 1085 reported cases of a Japanese series, J Exp Clin Cancer Res, 17, 379 Dizon, 1999, Neuroglycopenic and other symptoms in patients with insulinomas, Am J Med, 106, 307, 10.1016/S0002-9343(99)00021-2 Soga, 1998, Glucagonomas/diabetico-dermatogenic syndrome (DDS): a statistical evaluation of 407 reported cases, J Hepatobiliary Pancreat Surg, 5, 312, 10.1007/s005340050052 Wermers, 1996, The glucagonoma syndrome. Clinical and pathologic features in 21 patients, Medicine (Baltimore), 75, 53, 10.1097/00005792-199603000-00002 Soga, 1998, Vipoma/diarrheogenic syndrome: a statistical evaluation of 241 reported cases, J Exp Clin Cancer Res, 17, 389 Krejs, 1987, VIPoma syndrome, Am J Med, 82, 37, 10.1016/0002-9343(87)90425-6 Grier, 1995, WDHA (watery diarrhea, hypokalemia, achlorhydria) syndrome: clinical features, diagnosis, and treatment, South Med J, 88, 22, 10.1097/00007611-199501000-00002 Jensen, 1995, Endocrine neoplasms of the pancreas, 2131 Soga, 1999, Somatostatinoma/inhibitory syndrome: a statistical evaluation of 173 reported cases as compared to other pancreatic endocrinomas, J Exp Clin Cancer Res, 18, 13 Snow, 1995, Neuroendocrine tumors, 585 Eriksson, 1990, Neuroendocrine pancreatic tumours: clinical presentation, biochemical and histopathological fingings in 84 patients, J Intern Med, 228, 103, 10.1111/j.1365-2796.1990.tb00202.x Buchanan, 1990, Sandostatin and the Belfast experience, Digestion, 45, 11, 10.1159/000200255 Pathirana, 2001, (131)I-MIBG radionuclide therapy is safe and cost-effective in the control of symptoms of the carcinoid syndrome, Eur J Surg Oncol, 27, 404, 10.1053/ejso.2001.1132 Cybulla, 2001, End-stage renal disease after treatment with 90Y-DOTATOC, Eur J Nucl Med, 28, 1552, 10.1007/s002590100599 Tilmann, 2002, Kidney failure after treatment with 90Y-DOTATOC, Eur J Nucl Med Mol Imaging, 29, 435, 10.1007/s00259-001-0720-2 Brown, 1999, Particle embolisation of hepatic neuroendocrine metastasis for control of pain and hormonal symptoms, J Vasc Intervent Radiol, 10, 397, 10.1016/S1051-0443(99)70055-2 Eriksson, 1998, Liver embolizations of patients with malignant neuroendocrine gastrointestinal tumours, Cancer, 83, 2293, 10.1002/(SICI)1097-0142(19981201)83:11<2293::AID-CNCR8>3.0.CO;2-E Kim, 1999, Selective hepatic arterial chemoembolization for liver metastases in patients with carcinoid tumour or islet cell carcinoma, Cancer Invest, 17, 474, 10.3109/07357909909032856 Blazeby, 2001 Sprangers, 1998, The European Organization for Research and Treatment of Cancer approach to developing questionnaire modules: an update and overview. EORTC Quality of Life Study Group, Qual Life Res, 7, 291, 10.1023/A:1008890401133 Sprangers, 1993, The European Organization for Research and Treatment of Cancer. Approach to quality of life assessment: guidelines for developing questionnaire modules. EORTC Study Group on Quality of Life, Qual Life Res, 2, 287, 10.1007/BF00434800 Bottomley, 2002, The development and utilisation of the European Organisation for research and treatment of cancer quality of life group item bank, Eur J Cancer, 38, 1611, 10.1016/S0959-8049(02)00125-9 Cull, 2002 West, 2002, Translation procedure and cross-cultural equivalence of EORTC instruments – years of learning and experience, Qual Life Newslett, 2 Aaronson, 1993, The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology, J Natl Cancer Inst, 85, 365, 10.1093/jnci/85.5.365 Efficace, 2004, Methodological issues in assessing health-related quality of life of colorectal cancer patients in randomised controlled trials, Eur J Cancer, 40, 187, 10.1016/j.ejca.2003.10.012 Drougas, 1998, Hepatic artery chemoembolization for management of patients with advanced metastatic carcinoid tumors, Am J Surg, 175, 408, 10.1016/S0002-9610(98)00042-7