Development and validation of the chronic illness self-management (CISM) scale: Data from a young patient sample in Hong Kong

Children and Youth Services Review - Tập 114 - Trang 105077 - 2020
Steven Sek-yum Ngai1, Chau-kiu Cheung2, Yuen-hang Ng1, Hon-yin Tang1, Hiu-lam Ngai1, Kenix Hok-ching Wong1
1Department of Social Work, The Chinese University of Hong Kong, Hong Kong, China
2Department of Social and Behavioural Sciences, City University of Hong Kong, Hong Kong, China

Tài liệu tham khảo

Barlow, 2002, Self-management approaches for people with chronic conditions: A review, Patient Education and Counselling, 48, 177, 10.1016/S0738-3991(02)00032-0 Census and Statistics Department, The Government of the Hong Kong Administrative Region (2017). Thematic household survey report no. 63. Retrieved December 14, 2019, from https://www.statistics.gov.hk/pub/B11302632017XXXXB0100.pdf. Centers for Disease Control and Prevention (2019). About chronic illness. Retrieved December 12, 2019, from https://www.cdc.gov/chronicdisease/about/index.htm. Chen, 2011, Why are health care report cards so bad (good)?, Journal of Health Economics, 30, 575, 10.1016/j.jhealeco.2011.01.002 Cheng, 2013, Coping with breast cancer survivorship in Chinese women: The role of fatalism or fatalistic voluntarism, Cancer Nursing, 36, 236, 10.1097/NCC.0b013e31826542b2 Chesney, 2006, A validity and reliability study of the coping self-efficacy scale, British Journal of Health Psychology, 11, 421, 10.1348/135910705X53155 Cheung, 2016, Reducing deviance through youths’ mutual aid group dynamics, International Journal of Offender Therapy and Comparative Criminology, 60, 82, 10.1177/0306624X14548024 Chlebowy, 2013, Gender differences in diabetes self-management among African American adults, Western Journal of Nursing Research, 35, 703, 10.1177/0193945912473370 Chung, 2006, Gender differences in adherence to the sodium-restricted diet in patients with heart failure, Journal of Cardiac Failure, 12, 628, 10.1016/j.cardfail.2006.07.007 Corrigan, 2011, Examining a progressive model of self-stigma and its impact on people with serious mental illness, Psychiatry Research, 189, 339, 10.1016/j.psychres.2011.05.024 Cutolo, 2009, Insights into endocrine-immunological disturbances in autoimmunity and their impact on treatment, Arthritis Research & Therapy, 11, 218, 10.1186/ar2630 Darcy, 2017, Looking after young people with liver conditions: Understanding chronic illness management in the context of adolescent development, Clinical Liver Disease, 9, 103, 10.1002/cld.637 Eikelenboom, 2015, Validation of Self-Management Screening (SeMaS), a tool to facilitate personalised counselling and support of patients with chronic diseases, BMC Family Practice, 16, 165, 10.1186/s12875-015-0381-z Eton, 2017, Development and validation of the Patient Experience with Treatment and Self-management (PETS): A patient-reported measure of treatment burden, Quality of Life Research, 26, 489, 10.1007/s11136-016-1397-0 Golden, 2009, Prevalence and incidence of endocrine and metabolic disorders in the United States: A comprehensive review, The Journal of Clinical Endocrinology & Metabolism, 94, 1853, 10.1210/jc.2008-2291 Goncalves, 2012, Sooner or later: Age at onset of generalised anxiety disorder in older adults, Depression and Anxiety, 29, 39, 10.1002/da.20881 Grady, 2014, Self-management: A comprehensive approach to management of chronic conditions, American Journal of Public Health, 104, 25, 10.2105/AJPH.2014.302041 Institute for Health Metrics and Evaluation [IHME], 2018 Isaksson, 2018, Coping with stigma and discrimination: Evidence from mental health service users in England, Epidemiology and Psychiatric Sciences, 27, 577, 10.1017/S204579601700021X Ji, 2016, Illness perception in Chinese adults with epilepsy, Epilepsy Research, 128, 94, 10.1016/j.eplepsyres.2016.10.018 Joekes, 2007, Self-efficacy and overprotection are related to quality of life, psychological well-being and self-management in cardiac patients, Journal of Health Psychology, 12, 4, 10.1177/1359105306069096 Johnson, 2007, Understanding the social consequences of chronic obstructive pulmonary disease: The effects of stigma and gender, Proceedings of the American Thoracic Society, 4, 680, 10.1513/pats.200706-084SD Kemp, 2010, Medical comorbidity in bipolar disorder: Relationship between illnesses of the endocrine/metabolic system and treatment outcome, Bipolar Disorders, 12, 404, 10.1111/j.1399-5618.2010.00823.x Kern, 2015, A multidimensional approach to measuring well-being in students: Application of the PERMA framework, The Journal of Positive Psychology, 10, 262, 10.1080/17439760.2014.936962 Kerr, 2007, Beyond comorbidity counts: How do comorbidity type and severity influence diabetes patients’ treatment priority and self-management?, Journal of General Internal Medicine, 22, 1635, 10.1007/s11606-007-0313-2 Kim, 2014, Cognitive-behavioural therapy effects on employment-related outcomes for individuals with mental illness: A systematic review, SA Journal of Industrial Psychology, 40, 1 Kim, 2019, Menical extrusion is positively correlated with the anatomical position changes of the menical anterior and posterior horns, following medial meniscal allograft transplantation, Knee Surgery, Sports Traumatollgy, Arthroscopy, 27, 2389, 10.1007/s00167-018-5195-9 Kline, 2005 Larson, 2009, Employer experience with disabilities in Beijing, Hong Kong, and Chicago, American Journal of Psychiatric Rehabilitation, 12, 317, 10.1080/15487760903248432 Lorig, 2001, Effect of a self-management program on patients with chronic disease, Effective Clinical Practice, 4, 256 Maslow, 2011, Growing up with a chronic illness: Social success, educational/vocational distress, Journal of Adolescent Health, 49, 206, 10.1016/j.jadohealth.2010.12.001 Melendez, 2017, Attentional control scale for children: Factor structure and concurrent validity among children and adolescents referred for anxiety disorders, Journal of Clinical Psychology, 73, 489, 10.1002/jclp.22346 Michaud, P. A., Suris, J. C., & Viner, R. (2007). The adolescent with a chronic condition: Epidemiology, developmental issues and health care provision. Geneva, Switzerland: WHO Press. Retrieved December 14, 2019, from https://apps.who.int/iris/bitstream/handle/10665/43775/9789241595704_eng.pdf;jsessionid=B658080ED81B692C941A776DF87FDC0D?sequence=1. Morisky, 2008, Predictive validity of a medication adherence measure in an outpatient setting, The Journal of Clinical Hypertension, 10, 348, 10.1111/j.1751-7176.2008.07572.x Moss-Morris, 2002, The revised illness perception questionnaire (IPQ-R), Psychology and Health, 17, 1, 10.1080/08870440290001494 Ngai, 2018, Psychometric properties of the parental bonding instrument: Data from a Chinese adolescent sample in Hong Kong, Journal of Child and Family Studies, 27, 2112, 10.1007/s10826-018-1058-8 Ngai, 2008, The effects of service participation, friendship networks, and family support on developmental outcomes: A study of young people from low-income families in Hong Kong, Adolescence, 43, 399 Pinquart, 2011, Behaviour problems in children and adolescents with chronic physical illness: A meta-analysis, Journal of Pediatric Psychology, 36, 1003, 10.1093/jpepsy/jsr042 Rao, 2009, Measuring stigma across neurological conditions: The development of the stigma scale for chronic illness (SSCI), Quality of Life Research, 18, 585, 10.1007/s11136-009-9475-1 Richman, 2009, Reactions to discrimination, stigmatisation, ostracism, and other forms of interpersonal rejection: A multimotive model, Psychological Review, 116, 365, 10.1037/a0015250 Risser, 2007, Development and psychometric evaluation of the Self-efficacy for Appropriate Medication Use Scale (SEAMS) in low-literacy patients with chronic disease, Journal of Nursing Measurement, 15, 203, 10.1891/106137407783095757 Rutten, 2016, Health self-efficacy among populations with multiple chronic conditions: The value of patient-centered communication, Advances in Therapy, 33, 1440, 10.1007/s12325-016-0369-7 Schoeb, 2016, Healthcare service in Hong Kong and its challenges: The role of health professionals within a social model of health, China Perspectives, 2016, 51, 10.4000/chinaperspectives.7118 Schumacker, 2004 Siu, 2007, Evaluation of the chronic disease self-management program in a Chinese population, Patient Education and Counseling, 65, 42, 10.1016/j.pec.2006.04.013 Smith, 2017, Measuring chronic condition self-management in an Australian community: Factor structure of the revised Partners in Health (PIH) scale, Quality of Life Research, 26, 149, 10.1007/s11136-016-1368-5 Steca, 2013, How does illness severity influence depression, health satisfaction and life satisfaction in patients with cardiovascular disease? The mediating role of illness perception and self-efficacy beliefs, Psychology & Health, 28, 765, 10.1080/08870446.2012.759223 Steger, 2006, The meaning in life questionnaire: Assessing the presence of and search for meaning in life, Journal of Counseling Psychology, 53, 80, 10.1037/0022-0167.53.1.80 Suhrcke, M., Nugent, R. A., Stuckler, D., & Rocco, L. C. (2006). Chronic disease: An economic perspective. London: Oxford Health Alliance. Retrieved December 12, 2019, from https://www.who.int/management/programme/ncd/Chronic-disease-an-economic-perspective.pdf. Taft, 2009, Impact of perceived stigma on inflammatory bowel disease patient outcomes, Inflammatory Bowel Diseases, 15, 1224, 10.1002/ibd.20864 Valencia, 2000, Sexual activity and other high-risk behaviours in adolescents with chronic illness: A review, Journal of Pediatric and Adolescent Gynecology, 13, 53, 10.1016/S1083-3188(00)00004-8 Wong, 2014, The effectiveness of a community reintegration program for clients with chronic stroke, 209 Xiao, 2018, Development and validation of the Chinese Version of the Adult Epilepsy Self-Management Scale (C-ESMS) in Western China, Epilepsy Research, 144, 43, 10.1016/j.eplepsyres.2018.04.014