Dementia patients caregivers quality of life: the PIXEL study

International Journal of Geriatric Psychiatry - Tập 21 Số 1 - Trang 50-56 - 2006
Philippe Thomas1, Fabrice Lalloué2, Pierre‐Marie Preux3,4,5, Cyril Hazif‐Thomas6, Sylvie Pariel7, Robcis Inscale8, Joël Belmin7, Jean‐Pierre Clément1,4,9
1Centre de Mémoire de Ressources et de Recherches [Limoges]
2Homéostasie Cellulaire et Pathologies
3Laboratoire de Biostatistique et d'Informatique Médicale
4Neuroépidémiologie Tropicale et Comparée
5Service de l'Information Médicale et de l'Évaluation [CHU Limoges]
6CHRU Brest - Psychiatrie Adulte
7CHU Charles Foix [AP-HP]
8Geriatrics Unit, Ivry Hospital Center, Ivry, France
9Service de Psychiatrie [CHU Limoges]

Tóm tắt

AbstractBackgroundAlzheimer's disease and related syndromes have heavy social and human consequences for the patient and his family. Beyond the neuropsychiatric effects of specific therapies for dementia, one of today's challenges is the quality of life for both patients and their informal caregivers.ObjectivesThis survey tends to determine parameters influencing caregivers' quality of life, and its possible link with patients' quality of life.MethodsA scale measuring caregivers' quality of life, developed from data from previous PIXEL studies was used. It is a questionnaire composed of 20 items. The scale was related to the socio‐demographic data of both patients and their main caregivers, to the ADRQL scale (Alzheimer Disease Related Quality Life) of Rabins for the QoL of dementia patients, to the patients medical and therapeutic data, specially a neuropsychological inventory: Folstein's cognition test, Cornell's depression scale, the fast battery of frontal assessment, Katz's dependence index, Cummings' neuropsychiatric inventory for behavioral and psychological symptoms of dementia and to a physician evaluation of caregiver's depression.ResultsOne hundred patients diagnosed with dementia who live at home with their principal caregivers were recruited for this survey. Patients were 80.2 ± 6.8 years old and caregivers were 65.7 ± 12.8 years old. The caregivers' quality of life was correlated to the quality of life of the patients they cared for, the importance of behavioral disorders, and the duration of dementia evolution. Women caregivers had a worse quality of life and were more depressive than men.DiscussionCaregivers' and patients' quality of life are related and both share a community of distress. Copyright © 2005 John Wiley & Sons, Ltd.

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Thông tin xuất bản

International Journal of Geriatric Psychiatry

Tập 21 Số 1

50-56

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