Data Sharing During Pandemics: Reciprocity, Solidarity, and Limits to Obligations

Diego S. Silva1, Maxwell J. Smith2
1Sydney Health Ethics, School of Public Health, University of Sydney, Camperdown, Australia
2School of Health Studies & Rotman Institute of Philosophy, Western University, London, Canada

Tóm tắt

South Africa shared with the world the warning of a new strain of SARS-CoV2, Omicron, in November 2021. As a result, many high-income countries (HICs) instituted complete travel bans on persons leaving South Africa and other neighbouring countries. These bans were unnecessary from a scientific standpoint, and they ran counter to the International Health Regulations. In short, South Africa was penalized for sharing data. Data sharing during pandemics is commonly justified by appeals to solidarity. In this paper, we argue that solidarity is, at best, an aspirational ideal to work toward but that it cannot ground an obligation to share data. Instead, low-and-middle income countries (LIMCs) should be guided by the principle of reciprocity, which states that we ought to return good for good received. Reciprocity is necessarily a conditional principle. LMICs, we argue, should only share data during future pandemics on the condition that HICs provide enforceable assurances that the benefits of data sharing will be equitably distributed and that LMICs won’t be penalized for sharing information.

Tài liệu tham khảo

Becker L. 1990. Reciprocity. Chicago, US: Chicago University Press. Freudenthal E. 2019. Ebola’s lost blood: Row over samples flown out of Africa as “big pharma” set to cash in. The Telegraph, February 6. https://www.telegraph.co.uk/global-health/science-and-disease/ebolas-lost-blood-row-samples-flown-africa-big-pharma-set-cash/. Accessed December 13, 2022. Jackson, C., R. Habibi, L. Forma, D. Silva, and M. Smith. 2022. Between rules and resistance: Moving public health emergency responses beyond fear, racism and greed. BMJ Global Health 7: e009945. Jennings, B., and A. Dawson. 2015. Solidarity in the moral imagination of bioethics. Hastings Center Report 45(5): 31–38. Khan, T., S. Abimbola, C. Kyobutungi, et al. 2022. How we classify countries and people—and why it matters. BMJ Global Health 7: e009704. Komparic, A., A. Dawson, R. Boulanger, R. Upshur, and D. Silva. 2019 A failure in solidarity: Ethical challenges in the development and implementation of new tuberculosis technologies. Bioethics 33(5): 557–567. Langat, P., D. Pisartchik, D. Silva, et al. 2011. Is there a duty to share? Ethics of sharing research data in the context of public health emergencies. Public Health Ethics 4(1): 4–11. Lencucha, R., and S. Neupane. 2022. The use, misuse and overuse of the “low-income and middle-income countries” category. BMJ Global Health 7(6): e009067. Mallapaty, S. 2021. Omicron-variant border bans ignore the evidence, say scientists. Nature, December 2, https://doi.org/10.1038/d41586-021-03608-x. Accessed December 12, 2022. McLennan, S., L. Anthony Celi, and A. Buyx. 2020. COVID-19: Putting the general data protection regulation to the test. JMRI Public Health and Surveillance 6(2): e19279. Mendelson, M., F. Venter, M. Moshabela, et al. 2021. The political theatre of the U.K.’s travel ban on South Africa. Lancet 398(10318): 2211–2213. Prainsack, B., and A. Buyx. 2017. Solidarity in biomedicine and beyond. Cambridge, U.K.: Cambridge University Press. Pratt, B., and S. Bull. 2021. Equitable data sharing in epidemics and pandemics. BMC Med Ethics 22(1): 1–14. Roos, R. 2008. Indonesia details reasons for withholding H5N1 viruses. CIDRAP. July 15 https://www.cidrap.umn.edu/avian-influenza-bird-flu/indonesia-details-reasons-withholding-h5n1-viruses. Accessed December 13, 2022. Silva, D., A. Dawson, and R. Upshur. 2016. Reciprocity and ethical tuberculosis treatment and control. Journal of Bioethical Inquiry 13(1): 75–86. Silva, D., C. Jackson, and M. Smith. 2022. Mere rhetoric? Using solidarity as a moral guide for deliberations on border closures, border reopenings and travel restrictions in the age of COVID-19. BMJ Global Health 6: e006701. The Presidential Commission for the Study of Bioethical Issues. 2015. Ethics and ebola: Public health planning and response. February. https://bioethicsarchive.georgetown.edu/pcsbi/sites/default/files/Ethics-and-Ebola_PCSBI_508.pdf. Accessed December 12, 2022. Upshur, R. 2002. Principles for the Justification of Public Health Intervention. Canadian Journal of Public Health 93(2): 101–103. Viens, A.M., C. Bensimon, and R.E.G. Upshur. 2009. Your liberty or your life: Reciprocity in the use of restrictive measures in contexts of contagion. Journal of Bioethical Inquiry 6(2): 207–217. World Health Organization. 2007. Ethical considerations in developing a public health response to pandemic influenza. https://www.apps.who.int/iris/bitstream/handle/10665/70006/WHO_CDS_EPR_GIP_2007.2_eng.pdf?. Accessed December 12, 2022. World Health Organization. 2016. International health regulations (2005), 3rd ed. World Health Organization. https://apps.who.int/iris/handle/10665/246107. Accessed December 12, 2022. World Health Organization. 2020. Ethical standards for research during public health emergencies: distilling existing guidance to support COVID-19. https://apps.who.int/iris/handle/10665/331507. Accessed December 12, 2022. World Health Organization. 2021. WHO advice for international traffic in relation to the SARS-CoV-2 Omicron variant (B.1.1.529). November 30. https://www.who.int/news-room/articles-detail/who-advice-for-international-traffic-in-relation-to-the-sars-cov-2-omicron-variant. Accessed December 12, 2022. World Health Organization. 2022. Conceptual zero draft for the consideration of the Intergovernmental Negotiating Body at its third meeting. November 25. https://www.who.int/gb/inb/pdf_files/inb3/A_INB3_3-en.pdf. Accessed December 12, 2022.