Cultural barriers in oncology: Issues in obtaining medical informed consent from Japanese-American elders in Hawaii
Tóm tắt
In east-west cultural contexts medical decision-making by elderly Japanese-American oncology patients is made complex by cultural differences from mainstream service providers. Cultural, religious and practical factors thought to contribute to delays in obtaining informed consent for treatment in oncology from mentally competent Japanese-American elders in Hawai'i are identified in this study of health care professionals at Queen's Medical Center in Honolulu (n = 50). Circumstances under which Japanese-American elders sign informed consent documents without understanding them are also examined. Recommendations are offered by the participants and researchers for improvements to the informed consent process. Implications of the findings and recommendations are discussed for Health Care Practice with Japanese-American and other ethnic elderly patients in mainstream health care organizations.
Tài liệu tham khảo
Browne, C., Smith V. M. & Ewalt, P. L. (1996). Advancing social work practice in health care settings: A structure for collaborative partnership and continuing education. School of Social Work, University of Hawai'i.
Census of Population (1990). Asian and Pacific Islanders in the USA. Report No. CP-3–5.
Demeroto, P. (1996). Personal communication with oncology social worker at Kuakini Medical Center, Honolulu Hawai'i.
Edge, R. S. & Groves, J. R. (1994). The ethics of health care: A guide for clinical practice. Albany, NY: Delmar Publishers.
Feldman, E. (1985). Medical ethics the Japanese way, Hastings Center Report 15(5): 21–24.
Fujii, S. M. (1980). Elderly Asian Americans and use of public services. In R. Endo, S. Sue & W. N. Wagner (eds.), Asian-Americans: Social and psychological perspective, Vol. 2. Palo Alto, CA: Science & Behavior Books.
Garcia, H. B. & Lee, P. C. Y. (1988). Knowledge about cancer and use of health care services among Hispanic and Asian-American older adults, Journal of Psychosocial Oncology 16(3/4): 157–177.
Getzinger, A. (1993). Informed consent and systems consultation: A description of the process and a prescription for change, Family Systems Medicine 11(3): 235–245.
Good, M. J. V., Good, B. J., Schaffer, C. & Lind, S. E. (1990). American oncology and the discourse on hope, Culture, Medicine and Psychiatry 4: 59–79.
Hattori, H., Salzberg, S. M., Kiang, W. P., Fujimiya, T., Tejima, Y. & Furuno, J. (1991). The patient's right to information in Japan - Legal rules and doctor's opinions, Social Science and Medicine 32(9): 1007–1016.
Itasaka, G. (1971). Nihonjin no ronri kouzou [Japanese structure of logic]. Tokyo: Kodan-sha, Co.
Kitano, H. & Daniels, R. (1995). Asian Americans: Emerging minorities, 2nd. edn. Englewood Cliffs, NJ: Prentice-Hall.
Lebra, Sugiyama Takie (1976). Japanese patterns of behavior. Honolulu: University of Hawai'i Press.
Long, S. O. & Long, B. D. (1982). Curable cancers and fatal ulcers: Attitudes toward cancer in Japan, Social Science and Medicine 16: 2101–2108.
Marsella, A. J. (1993). Counseling and psychotherapy with Japanese Americans: Cross-cultural considerations, American Journal of Orthopsychiatry 62(2): 200–208.
Ohnuki-Tierney, E. (1984). Illness and culture in contemporary Japan: An anthropological view. Cambridge: Cambridge University Press.
Patient Self Determination Act (1990). An Act of Congress passed as part of the Omnibus Budget Reconciliation Act (OBRA).Washington D.C.
Reynolds, D. K. & Kiefer, C. W. (1977). Cultural adaptability as an attribute of therapies: The case of Morita Psychotherapy, Culture, Medicine and Psychiatry 1: 395–412.
Rozovsky, Fay A. (1984). Consent to Treatment: A practical guide. Boston: Little, Brown and Co.
Saldov, M., Kakai, H., McLaughlin, L. & Thomas, A. (1998). Obtaining informed consent from Japanese-American elders for treatment in oncology. A Joint Project between Queen's Medical Center and the School of Social Work, University of Hawai'i.
Takahashi, E. (1996). Sei to shi no tonari awaseni [Between life and death]. Tokyo: Kindaieiga-sha.
Takamura, J. C. (1991). Asian and Pacific Islander elderly. In N. Mokuan (ed.), Handbook of social services for Asian and Pacific islanders. CT: Greenwood Press.
Tamura, E. H. (1994). Americanization, acculturation, and ethnic identity: The Nisei generation in Hawai'i. Chicago, IL: University of Illinois Press.
Tanida, N. (1994). Japanese attitudes towards truth disclosure in cancer, Scandinavian Journal of Social Medicine 22(1): 50–57.