Cross‐cultural Differences in Levels of Knowledge about Epilepsy

Epilepsia - Tập 44 Số 1 - Trang 115-123 - 2003
Julie Doughty1, Gus A. Baker2, T. J. Peters3, Virginie Lavaud4
1Centre for Health Services Research, University of Newcastle upon Tyne, England
2University Department of Neurosciences, and
3Department of Primary Care, University of Liverpool, England; and
4Health Economics and Epidemiology Department, Sanofi‐Synthélabo, FR

Tóm tắt

Summary:  Purpose: To study how much people with epilepsy in Europe know and understand about their condition and how this might affect their lives.Methods: Clinical, demographic, psychosocial details and information assessing knowledge were collected by using self‐completion questionnaires mailed to members of epilepsy support groups.Results: Data were collected from 6,156 people with epilepsy from ten European countries. There were significant between‐country differences in all variables considered. Overall levels of knowledge were acceptable when measured by the epilepsy knowledge questionnaire (EKQ, medical items). However, there were some gaps in knowledge, particularly in issues relating to medication and cause of epilepsy.Conclusions: This is the largest study of its kind to date. Results clearly highlighted that levels of knowledge differed significantly between countries. Overall, people with epilepsy are reasonably well informed about epilepsy, although some gaps in knowledge were evident.

Từ khóa


Tài liệu tham khảo

10.1111/j.1528-1157.1996.tb00036.x

10.1016/S1059-1311(98)80002-2

Ridsdale L, 1999, The effect of special nurse on patients' knowledge of epilepsy and their emotional state., Br J Gen Pract, 49, 285

10.1053/seiz.2000.0450

10.1016/S0920-1211(00)00128-5

10.1111/j.1528-1157.2000.tb00235.x

10.1016/S1059-1311(05)80125-6

10.1016/S1059-1311(05)80126-8

10.1053/seiz.2001.0652

Dawkins JL, 1993, Epilepsy: a general practice study of knowledge and attitudes among sufferers and non‐sufferers., Br J Gen Pract, 43, 453

10.1046/j.1528-1157.2001.042suppl.3076.x

10.1016/S1059-1311(97)80017-9

10.1111/j.1528-1157.1997.tb01128.x

10.1016/S1059-1311(97)80060-X

Ley P, 1987, Health psychology: processes and applications, 74

10.1016/0920-1211(93)90042-6

10.1037/0022-006X.52.3.343

10.1016/0277-9536(94)90396-4

10.1111/j.1528-1157.1996.tb00006.x

Baker GA Jacoby A De Boer H et al. Families understanding of epilepsy: findings from a European survey.Epilepsy Res(in press).

10.1111/j.1528-1157.2000.tb01512.x

10.1023/A:1008916326411

10.1111/j.1528-1157.2000.tb00285.x