Criteria for patient decision making (in)competence: A review of and commentary on some empirical approaches

Medicine, Health Care and Philosophy - Tập 4 - Trang 139-151 - 2001
Sander P. K. Welie1
1Department of Health Care Ethics and Philosophy (Uns 40), University of Maastricht, Maastricht, The Netherlands

Tóm tắt

The principle of autonomy presupposes Patient Decision Making Competence (PDMC). For a few decades a considerable amount of empirical research has been done into PDMC. In this contribution that research is explored. After a short exposition on four qualities involved in PDMC, different approaches to assess PDMC are distinguished, namely a negative and a positive one. In the negative approach the focus is on identifying psychopathologic conditions that impair sound decision making; the positive one attempts to assess whether a patient actually has the required abilities and qualities. Characteristic of the latter approach is the use of (or development of) test-like instruments for PDMC assessment. Some of these tests are discussed and commented on. Although they may be useful in investigating aspects of PDMC, none of the described approaches and tests offers a reliable and valid method for PDMC assessment. In response to a potential misuse of tests, the concept of a “supportive situation” is briefly introduced in order to draw attention to the risk of prematurely deeming patients incompetent on the basis of low test scores, whereas their insufficient performance may be (partly) attributable to alack of situational support. Also, the need for and possibility of an emotionalist concept of PDMC are suggested, as an alternative to the more common rationalist one. In this regard,the legitimacy of competence being conceived as a presumption or fiction of law, deserves further investigation.

Tài liệu tham khảo

Alexander, M.P.: 1988, 'Clinical Determination of Mental Competence: A Theory and a Retrospective Study', Archives of Neurology 45 (1), 23–26. American Psychiatric Assocation: 1994, Diagnostic and Statistical Manual of Mental Disorders IVTM. Washington, D.C.: American Psychiatric Assocation. Appelbaum, P.S. and L.H. Roth: 1982, 'Competency to Consent to Research: A Psychiatric Overview', Archives of General Psychiatry 39 (8), 951–958. Appelbaum, P.S. and T. Grisso: 1995, 'The MacArthur Treatment Competence Study. I: Mental Illness and Competence to Consent to Treatment', Law and Human Behavior 19 (2), 105–126. Appelbaum, P.S. and T. Grisso: 1997, 'Capacities of Hospitalized, Medically Ill Patients to Consent to Treatment', Psychosomatics 38 (2), 119–125. Appelbaum, P.S.: 1998, 'Ought We to Require Emotional Capacity as Part of Decisional Competence?', Kennedy Institute of Ethics Journal 8 (4), 377–387. Bean, G., S. Nishisato, N.A. Rector and G. Glancy: 1996, 'The Assessment of Competence to Make a Treatment Decision: An Empirical Approach', Can. J. Psychiatry 41 (2), 85–92. Beauchamp, T.L. and J.F. Childress: 1994, Principles of Biomedical Ethics. New York/Oxford: Oxford University Press. Berghmans, R.L.P.: 2000, Bekwaam genoeg? Wils(on)bekwaamheid in geneeskunde, gezondheidsrecht en gezondheidsethiek (Preadvies uitgebracht ten behoeve van de jaarvergadering van de Nederlandse Vereniging voor Bioethiek, op 23 juni 2000). Utrecht: Nederlandse Vereniging voor Bio–ethiek. Biesaart, M.C.I.H., J.H. Hubben and G.H.v. Gemert: 2000, Methodiek voor de vaststelling van wilsonbekwaamheid bij mensen met een verstandelijke handicap: verslag van een onderzoek verricht met steun van Stichting Philadelphia Zorg en Vereniging Gehandicaptenzorg Nederland.Nunspeet/Utrecht: Stichting Philadelphia Zorg/Vereniging Gehandicaptenzorg Nederland. Black, H.C., J.R. Nolan and J.M. Nolan–Haley: 1990, Black's Law Dictionary: Definitions of the Terms and Phrases of American and English Jurisprudence, Ancient and Modern. St. Paul, MN: West Publishing Co. Callahan, S.: 1988, 'The Role of Emotion in Ethical Decision Making', Hastings Center Report (June/July) 18, 9–14. Charland, L.C.: 1998, 'Appreciation and Emotion: Theoretical Reflections on theMacArthur Treatment Competence Study', Kennedy Institute of Ethics Journal 8 (4), 359–376. Cohen, L.M., J.D. McCue and G.M. Green: 1993, 'Do Clinical and Formal Assessments of the Capacity of Patients in the Intensive Care Unit to Make Decisions Agree?', Arch. Intern. Med. 153 (21), 2481–2485. Cournos, F.: 1993, 'Do Psychiatric Patients Need Greater Protection than Medical Patients when They Consent to Treatment?', Psychiatric Quarterly 64 (4), 319–329. Culver, C.M. and B. Gert: 1990, 'The Inadequacy of Incompetence', The Milbank Quarterly 68 (4), 619–643. Diamond, E.L., J.A. Jernigan, R.A. Moseley, V. Messina and R.A. McKeown: 1989, 'Decision–Making Ability and Advance Directive Preferences in Nursing Home Patients and Proxies. 21st Annual Spring Conference of the Society of Teachers of Family Medicine (1988, Baltimore, Maryland)', Gerontologist 29 (5), 622–626. Drane, J.F.: 1984, 'Competency to Give an Informed Vonsent.A Model for Making Clinical Assessments', Journal of the American Medical Association 252 (7), 925–927. Drane, J.F.: 1985, 'The Many Faces of Competency', Hastings Center Report 15 (2), 17–21. Fitten, L.J. and M.S. Waite: 1990a, 'Impact of Medical Hospitalization on Treatment Decision–Making Capacity in the Elderly', Arch. Intern. Med. 150(8), 1717–1721. Fitten, L.J., R. Lusky and C. Hamann: 1990b, 'Assessing Treatment Decision–Making Capacity in Elderly Nursing Home Residents', Journal of the American Geriatrics Society 38 (10), 1097–1104. Folstein, M.F., S.E. Folstein and P.R. McHugh: 1975, 'Minimental State: A Practical Method for Grading the Cognitive State of Patients for the Clinician', Journal of Psychiatric Research 12 (3), 189–198. Freedman, B.: 1981, 'Competence, Marginal and Otherwise: Concepts and Ethics', International Journal of Law and Psychiatry 4 (1–2), 53–72. Freedman, M., D.T. Stuss and M. Gordon: 1991, 'Assessment of Competency: The Role of Neurobehavioral Deficits', Annals of Internal Medicine 115 (3), 203–208. Frijda, N.: 1993, De psychologie heeft zin. Amsterdam: Prometheus. Glass, K.C.: 1997, 'Refining Definitions and Devising Instruments: Two Decades of Assessing Mental Competence', International Journal of Law and Psychiatry 20 (1), 5–33. Golinger, R.C. and J.P. Fedoroff: 1989, 'Characteristics of Patients Referred to Psychiatrists for Competency Evaluations', Psychosomatics 30 (3), 296–299. Gouwenberg, B.M., C. Jonker, J.H. Smit and B. Schmand: 1997, Beoordeling van wilsbekwaamheid bij ouderen met dementie: ontwikkeling van een methode. Amsterdam: Vrije Universiteit. Grisso, T., P.S. Appelbaum, E.P. Mulvey and K. Fletcher: 1995a, 'The MacArthur Treatment Competence Study. II: Measures of Abilities Related to Competence to Consent to Treatment', Law and Human Behavior 19 (2), 127–148. Grisso, T. and P.S. Appelbaum: 1995b, 'The MacArthur Treatment Competence Study. III: Abilities of patients to consent to psychiatric and medical treatments', Law and Human Behavior 19(2), 149–174. Grisso, T., P.S. Appelbaum and C. Hill–Fotouhi: 1997, 'The MacCAT–T: A Clinical Tool to Assess Patients' Capacities to Make Treatment Decisions', Psychiatric Services 48 (11), 1415–1419. Groth–Marnat, G.: 1990, Handbook of Psychological Assessment.New York: Wiley. Hanson, L.C., M. Danis, E. Mutran and N.L. Keenan: 1994, 'Impact of Patient Incompetence on Decisions to Use or Withhold Life–Sustaining Treatment', Am. J. Med. 97 (3), 235–241. Have, H.A.M.J.ten, R.H.J.ter Meulen and E.v. Leeuwen: 1998, Medische ethiek. Houten/Diegem: Bohn Stafleu Van Loghum. Janofsky, J.S., R.J. McCarthy and M.F. Folstein: 1992, 'The Hopkins Competency Assessment Test: A Brief Method for Evaluating Patients' Capacity to Give Informed Consent', Hospital and Community Psychiatry 43 (2), 132–136. Kapp, M.B. and D. Mossman: 1996, 'Measuring Decisional Capacity: Cautions on the Construction of a “Capacimeter”', Psychology, Public Policy and Law 2 (1), 73–95. Katz, S., A. Ford, R.W. Moskowitz, B.A. Jackson and M.W. Jaffe: 1963, 'Studies of Illness in the Aged: The Index of ADL; a Standardized Measure of Biological and Psychosocial Function', Journal of the American Medical Association 185 (12), 94–99. Kitamura, F., A. Tomoda, K. Tsukada, M. Tanaka, I. Kawakami, S. Mishima and T. Kitamura: 1998, 'Method for Assessment of Competency to Consent in the Mentally Ill: Rationale, Development, and Comparison with the Medically Ill', International Journal of Law and Psychiatry 21 (3), 223–244. Lawton, M.P. and E.M. Brody: 1969, 'Assessment of Older People: Self–Maintaining and Instrumental Activities of Daily Living', The Gerontologist 9 (3), 179–186. Lezak, M.D.: 1995, Neuropsychological Assessment. New York/Oxford: Oxford University Press. Madigan, K.V., D. Checkland and M. Silberfeld: 1994, 'Presumptions Respecting Mental Competence', Can. J.Psychiatry 39 (3), 147–52. Mangone, C.A., R.M. Sanguinetti, P.D. Baumann, R.C. Gonzalez, S. Pereyra, F.G. Bozzola, P.B. Gorelick and R.E. Sica: 1993, 'Influence of Feelings of Burden on the Caregiver's Perception of the Patient's Functional Status', Dementia 4 (5), 287–293. Marson, D.C., A. Chatterjee, K.K. Ingram and L.E. Harrell: 1996, 'Toward a Neurologic Model of Competency: Cognitive Predictors of Capacity to Consent in Alzheimer's Disease Using Three Different Legal Standards', Neurology 46 (3), 666–672. Marson, D.C., B. McInturff, L. Hawkins, A. Bartolucci and L.E. Harrell: 1997a, 'Consistency of Physician Judgments of Capacity to Consent in Mild Alzheimer's Disease', Journal of the American Geriatrics Society 45 (4), 453–457. Marson, D.C., L. Hawkins, B. McInturff and L.E. Harrell: 1997b, 'Cognitive Models that Predict Physician Judgments of Capacity to Consent inMild Alzheimer's Disease', Journal of the American Geriatrics Society 45 (4), 458–464. McKegney, F.P., B.J. Schwartz and M.A. O'Dowd: 1992, 'Reducing Unnecessary Psychiatric Consultations for Informed Consent by Liaison with Administration', Gen. Hosp. Psychiatry 14 (1), 15–19. Melamed, Y., R. Kimchi, D. Shnit, D. Moldavski and A. Elizur: 1999, 'Clinical Assessment of Competency to Consent to Psychiatric Hospitalization', International Journal of Law and Psychiatry 22 (1), 55–64. Murphy, G.H. and I.C.H. Clare: 1995, 'Adults' Capacity to Make Decisions Affecting the Person: Psychologists' Contribution (Chapter 2.5)', In: R. Bull and D. Carson (eds.), Handbook of Psychology in Legal Contexts (John Wiley & Sons, Chichester [etc.], pp. 97–128. Pfeiffer, E.: 1975, 'A Short Portable Mental Status Questionnaire for the Assessment of Organic Brain Deficit in Elderly Patients', Journal of the American Geriatrics Society 23 (10), 433–441. Pincoffs, E.L.: 1991, 'Judgments of Incompetence and Their Moral Presuppositions', in: M.A.G. Cutter and E.E. Shelp (eds.), Competency: A Study of Informal Competency Determinations in Primary Care (Kluwer Academic Publishers, Dordrecht/Boston/London), pp. 79–89. Rosenfeld, B.D. and E.N. Turkheimer: 1995, 'Modeling Psychiatric Patients' Treatment Decision Making', Law and Human Behavior 19 (4), 389–405. Ruskin, P.E.: 1985, 'Geropsychiatric Consultation in a University Hospital: A Report on 67 Referrals', Am. J. Psychiatry 142 (3), 333–336. Rutman, D. and M. Silberfeld: 1992, 'A Preliminary Report on the Discrepancy Between Clinical and Test Evaluations of Competence', Canadian Journal of Psychiatry 37 (9), 634–639. Stanley, B., J. Guido, M. Stanley and D. Shortell: 1984, 'The Elderly Patient and Informed Consent. Empirical Findings', Jama 252 (10), 1302–1306. Tomoda, A., R. Yasumiya, T. Sumiyama, K. Tsukada, T. Hayakawa, K. Matsubara, F. Kitamura and T. Kitamura: 1997, 'Validity and Reliability of Structured Interview for Competency Incompetency Assessment Testing and Ranking Inventory', Journal of Clinical Psychology 53 (5), 443–450. Tymchuk, A.J., J.G. Ouslander, B. Rahbar and J. Fitten: 1988, 'Medical Decision–Making Among Elderly People in Long Term Care', The Gerontologist 28 (Suppl.; Special Issue: Autonomy and long–term care), 59–63. Welie, J.V.M. and S.P.K. Welie: 2001, 'Patient Decision Making Competence: Outlines of a Conceptual Analysis', Medicine, Health Care and Philosophy 4 (2), 127–138. Wenger, N.S., R.K. Oye, P.E. Bellamy, J. Lynn, R.S. Phillips, N.A. Desbiens, P. Kussin and S.J. Youngner: 1994a, 'Prior Capacity of Patients Lacking Decision Making Ability Early in Hospitalization: Implications for Advance Directive Administration. The SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments', J. Gen. Intern. Med. 9 (10), 539–543. Wenger, N.S. and J. Halpern: 1994b, 'Can a Patient Refuse a Psychiatric Consultation to Evaluate Decision–Making Capacity? Case and Discussion', The Journal of Clinical Ethics 5 (3), 230–234. White, B.C.: 1994, Competence to Consent. Washington, D.C.: Georgetown University Press. Winograd, C.H.: 1984, 'Mental Status Tests and the Capacity for Self–Care', Journal of the American Geriatrics Society 32 (1), 49–55. World Health Organisation: 1994, 'A Declaration on the Promotion of Patients' Rights in Europe', European Journal of Health Law 1, 279–291.