Cost: An Important Question That Must Be Asked

Alexander, G. C., Hall, M. A., & Lantos, J. D. (2006). Rethinking professional ethics in the cost-sharing era. The American Journal of Bioethics, 6(4), W17–W22. https://doi.org/10.1080/15265160600755813

Armstrong, K. A., & Metlay, J. P. (2020). Annals clinical decision making: Communicating risk and engaging patients in shared decision making. Annals of Internal Medicine, 172(10), 688–692. https://doi.org/10.7326/M19-3495

Beauchamp, T. L., & Childress, J. F. (2013). Principles of biomedical ethics (seventh ed.). Oxford University Press.

Bestvina, C. M., Zullig, L. L., & Zafar, Y. S. (2014). The implications of out-of-pocket cost of cancer treatment in the USA: A critical appraisal of the literature. Future Oncology (London, England), 10(14), 2189–2199. https://doi.org/10.2217/fon.14.130

Charles, C., Gafni, A., & Whelan, T. (1997). Shared decision-making in the medical encounter: What does it mean? (or it takes at least two to tango). Social Science & Medicine, 44(5), 681–692. https://doi.org/10.1016/S0277-9536(96)00221-3

Charles, C., Gafni, A., & Whelan, T. (1999). Decision-making in the physician–patient encounter: Revisiting the shared treatment decision-making model. Social Science & Medicine, 49(5), 651–661. https://doi.org/10.1016/S0277-9536(99)00145-8

CompareMaine. (2020). https://www.comparemaine.org/?page=home&from=logo

Elwyn, G., Frosch, D., Thomson, R., Joseph-Williams, N., Lloyd, A., Kinnersley, P., Cording, E., Tomson, D., Dodd, C., Rollnick, S., Edwards, A., & Barry, M. (2012). Shared decision making: A model for clinical practice. Journal of General Internal Medicine: JGIM, 27(10), 1361–1367. https://doi.org/10.1007/s11606-012-2077-6

Faden, R. R., & Beauchamp, T. L. (1986). A history and theory of informed consent. Oxford University Press.

Hall, A. (2014). Financial side effects: Why patients should be informed of costs. Hastings Center Report, 44(3), 41–47. https://doi.org/10.1002/hast.312

Henrikson, N. (2017). Communication with physicians about health care costs: Survey of an insured population. Permanente Journal, 21, 16–070. https://doi.org/10.7812/tpp/16-070

Hunter, W. G., & Ubel, P. A. (2014). The black box of out-of-pocket cost communication. A path toward illumination. Annals of the American Thoracic Society, 11(10), 1608–1609. https://doi.org/10.1513/AnnalsATS.201410-475ED

Hunter, W. G., Zhang, C. Z., Hesson, A., Davis, J. K., Kirby, C., Williamson, L. D., Barnett, J. A., & Ubel, P. A. (2016). What strategies do physicians and patients discuss to reduce out-of-pocket costs? Analysis of cost-saving strategies in 1,755 outpatient clinic visits. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 36(7), 900–910. https://doi.org/10.1177/0272989X15626384

Mackenzie, C. (2008). Relational autonomy, normative authority and perfectionism. Journal of Social Philosophy, 39(4), 512–533. https://doi.org/10.1111/j.1467-9833.2008.00440.x

McDermott, D., Hudman, J., Cotliar, D., Claston, G., Cox, C. & Rae, M. (2020). How costly are common health services in the United States? Peterson-KFF Health System Tracker. https://www.healthsystemtracker.org/chart-collection/how-costly-are-common-health-services-in-the-united-states/

Meropol, N. J., Schrag, D., Smith, T. J., Mulvey, T. M., Langdon, R. M., Blum, D., Ubel, P. A., & Schnipper, L. E. (2009). American Society of Clinical Oncology guidance statement: The cost of cancer care. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 27(23), 3868–3874. https://doi.org/10.1200/JCO.2009.23.1183

National Academies of Sciences, Engineering, and Medicine, Health and Medicine Division, Board on Population Health and Public Health Practice, & Roundtable on Health Literacy. (2017). Health insurance and insights from health literacy: Helping consumers understand: Proceedings of a workshop. National Academies Press (US).

Perez, S. L., Weissman, A., Read, S., Smith, C. D., Colello, L., Peter, D., & Nickel, W. (2019). U.S. internists’ perspectives on discussing cost of care with patients: Structured interviews and a survey. Annals of Internal Medicine, 170(9_Supplement), S39–S45. https://doi.org/10.7326/M18-2136

President's Commission. (1982). United States' president’s commission for the study of ethical problems in medicine and biomedical and behavioral research. United States code annotated. United States, Title 42 Sect. 300v as added 1978.

Riggs, K. R., & Ubel, P. A. (2014). Overcoming barriers to discussing out-of-pocket costs with patients. JAMA Internal Medicine, 174(6), 849–850. https://doi.org/10.1001/jamainternmed.2014.853

Rosenthal, J. A., Lu, X., & Cram, P. (2013). Availability of consumer prices from US hospitals for a common surgical procedure. JAMA Internal Medicine, 173(6), 427–432. https://doi.org/10.1001/jamainternmed.2013.460

Sawicki, N. N. (2016). Modernized informed consent: Expanding the boundaries of materiality. University of Illinois Law Review, 2016(3), 821–872.

Shankaran, V., & Ramsey, S. (2015). Addressing the financial burden of cancer treatment: From copay to can’t pay. JAMA Oncology, 1(3), 273–274. https://doi.org/10.1001/jamaoncol.2015.0423

Shrank, W. H., Rogstad, T. L., & Parekh, N. (2019). Waste in the US health care system: Estimated costs and potential for savings. JAMA, 322(15), 1501–1509. https://doi.org/10.1001/jama.2019.13978

Shuster, E. (1997). Fifty years later: The significance of the nuremberg code. New England Journal of Medicine, 337(20), 1436–1440. https://doi.org/10.1056/NEJM199711133372006

Sloan, C. E., & Ubel, P. A. (2019). The 7 habits of highly effective cost-of-care conversations. Annals of Internal Medicine, 170(9_Supplement), S33–S35. https://doi.org/10.7326/M19-0537

Stacey, D., Légaré, F., Lewis, K., Barry, M. J., Bennett, C. L., Eden, K. B., Holmes-Rovner, M., Llewellyn-Thomas, H., Lyddiatt, A., Thomson, R., & Trevena, L. (2017). Decision aids for people facing health treatment or screening decisions. The Cochrane Database of Systematic Reviews, 4, CD001431. https://doi.org/10.1002/14651858.CD001431.pub5

Tilburt, J. C., Wynia, M. K., Montori, V. M., Thorsteinsdottir, B., Egginton, J. S., Sheeler, R. D., Liebow, M., Humeniuk, K. M., & Goold, S. D. (2014). Shared decision-making as a cost-containment strategy: US physician reactions from a cross-sectional survey. British Medical Journal Open, 4(1), e004027. https://doi.org/10.1136/bmjopen-2013-004027

Tipirneni, R., Politi, M. C., Kullgren, J. T., Kieffer, E. C., Goold, S. D., & Scherer, A. M. (2018). Association between health insurance literacy and avoidance of health care services owing to cost. JAMA Network Open. https://doi.org/10.1001/jamanetworkopen.2018.4796

Ubel, P. A. (2019). Sick to debt. Yale University Press. https://doi.org/10.2307/j.ctvrdf2z5

Ubel, P. A., Abernethy, A. P., & Zafar, S. Y. (2013). Full disclosure—out-of-pocket costs as side effects. The New England Journal of Medicine, 369(16), 1484–1486. https://doi.org/10.1056/NEJMp1306826

Value conversations series | center for continuing medical education. (2020). https://cme.uchicago.edu/CostsofCare

Zafar, S. Y. (2016). Financial toxicity of cancer care: It’s time to intervene. JNCI: Journal of the National Cancer Institute. https://doi.org/10.1093/jnci/djv370

Zafar, S. Y., Peppercorn, J. M., Schrag, D., Taylor, D. H., Goetzinger, A. M., Zhong, X., & Abernethy, A. P. (2013). The financial toxicity of cancer treatment: A pilot study assessing out-of-pocket expenses and the insured cancer patient’s experience. The Oncologist, 18(4), 381. https://doi.org/10.1634/theoncologist.2012-0279