Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature
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Harrington J, Noble LM, Newman SP: Improving patients’ communication with doctors: a systematic review of intervention studies. Patient Educ Couns. 2004, 52 (1): 7-16. 10.1016/S0738-3991(03)00017-X.
Kinnersley P, Edwards A, Hood K, Ryan R, Prout H, Cadbury N, MacBeth F, Butow P, Butler C: Interventions before consultations to help patients address their information needs by encouraging question asking: systematic review. BMJ. 2008, 337: a485-10.1136/bmj.a485.
Cegala DJ, Post DM: The impact of patients’ participation on physicians’ patient-centered communication. Patient Educ Couns. 2009, 77 (2): 202-208. 10.1016/j.pec.2009.03.025.
Cribb A, Entwistle VA: Shared decision making: trade-offs between narrower and broader conceptions. Health Expect. 2011, 14 (2): 210-219. 10.1111/j.1369-7625.2011.00694.x.
Kiesler DJ, Auerbach SM: Optimal matches of patient preferences for information, decision-making and interpersonal behavior: evidence, models and interventions. Patient Educ Couns. 2006, 61 (3): 319-341. 10.1016/j.pec.2005.08.002.
Hamann J, Mendel R, Buhner M, Kissling W, Cohen R, Knipfer E, Eckstein HH: How should patients behave to facilitate shared decision making - the doctors’ view. Health Expect. 2011, 30: 10-7625.
Wigersma L, Brabers A, Reitsma M, Jong JD: Transparantie is niet zichtbaar: onderzoek naar opvattingen over vraagsturing in de zorg. Medisch Contact. 2011, 66 (45): 2776-2778.
Degner LF, Sloan JA, Venkatesh P: The control preferences scale. Can J Nurs Res. 1997, 29 (3): 21-43.
Chewning B, Bylund CL, Shah B, Arora NK, Gueguen JA, Makoul G: Patient preferences for shared decisions: a systematic review. Patient Educ Couns. 2012, 86 (1): 9-18. 10.1016/j.pec.2011.02.004.
Tariman JD, Berry DL, Cochrane B, Doorenbos A, Schepp K: Preferred and actual participation roles during health care decision making in persons with cancer: a systematic review. Ann Oncol. 2010, 21 (6): 1145-1151. 10.1093/annonc/mdp534.
Arora NK, McHorney CA: Patient preferences for medical decision making: who really wants to participate?. Med Care. 2000, 38 (3): 335-341. 10.1097/00005650-200003000-00010.
Degner LF, Kristjanson LJ, Bowman D, Sloan JA, Carriere KC, O’Neil J, Bilodeau B, Watson P, Mueller B: Information needs and decisional preferences in women with breast cancer. JAMA. 1997, 277 (18): 1485-1492. 10.1001/jama.1997.03540420081039.
Deber RB, Kraetschmer N, Urowitz S, Sharpe N: Do people want to be autonomous patients? Preferred roles in treatment decision-making in several patient populations. Health Expect. 2007, 10 (3): 248-258. 10.1111/j.1369-7625.2007.00441.x.
Cohen H, Britten N: Who decides about prostate cancer treatment? A qualitative study. Fam Pract. 2003, 20 (6): 724-729. 10.1093/fampra/cmg617.
Brown R, Butow P, Wilson-Genderson M, Bernhard J, Ribi K, Juraskova I: Meeting the decision-making preferences of patients with breast cancer in oncology consultations: impact on decision-related outcomes. J Clin Oncol. 2012, 30 (8): 857-862. 10.1200/JCO.2011.37.7952.
Carey M, Anderson A, Sanson-Fisher R, Lynagh M, Paul C, Tzelepis F: How well are we meeting haematological cancer survivors’ preferences for involvement in treatment decision making?. Patient Educ Couns. 2012, 88 (1): 87-92. 10.1016/j.pec.2011.12.014.
Ernst J, Kuhnt S, Schwarzer A, Aldaoud A, Niederwieser D, Mantovani-Loffler L, Kuchenbecker D, Schroder C: The desire for shared decision making among patients with solid and hematological cancer. Psychooncology. 2011, 20 (2): 186-193. 10.1002/pon.1723.
Lam W, Fielding R, Chan M, Chow L, Ho E: Participation and satisfaction with surgical treatment decision-making in breast cancer among Chinese women. Breast Cancer Res Treat. 2003, 80 (2): 171-180. 10.1023/A:1024568732213.
Mahone IH: Shared decision making and serious mental illness. Arch Psychiatr Nurs. 2008, 20 (2): 16-93.
Murray E, Pollack L, White M, Lo B: Clinical decision-making: Patients’ preferences and experiences. Patient Educ Couns. 2007, 65 (2): 189-196. 10.1016/j.pec.2006.07.007.
Palmer N, Tooze J, Turner A, Xu J, Avis N: African American prostate cancer survivors’ treatment decision-making and quality of life. Patient Educ Couns. 2012, 90 (1): 61-68.
Sepucha KR, Ozanne EM, Partridge AH, Moy B: Is there a role for decision aids in advanced breast cancer?. Med Decis Making. 2009, 29 (4): 475-482. 10.1177/0272989X09333124.
Pluye P, Robert E, Cargo M, Barlett G, OÇathain A, Griffiths F, Boardman F, Gagnon MP, Rousseau MC: Proposal: a mixed methods appraisal tool for systematic mixed studies reviews. 2011, Retrieved on 14-1-2014 from: http://mixedmethodsappraisaltoolpublic.pbworks.com
Leighl NB, Shepherd HL, Butow PN, Clarke SJ, McJannett M, Beale PJ, Wilcken NR, Moore MJ, Chen EX, Goldstein D, Horvath L, Knox JJ, Krzyzanowska M, Oza AM, Feld R, Hedley D, Xu W, Tattersall MH: Supporting treatment decision making in advanced cancer: a randomized trial of a decision aid for patients with advanced colorectal cancer considering chemotherapy. J Clin Oncol Official J Am Soc Clin Oncol. 2011, 29 (15): 2077-2084. 10.1200/JCO.2010.32.0754.
Ramfelt E, Langius A, Bjorvell H, Nordstrom G: Treatment decision-making and its relation to the sense of coherence and the meaning of the disease in a group of patients with colorectal cancer. Eur J Cancer Care (Engl). 2000, 9 (3): 158-165. 10.1046/j.1365-2354.2000.00217.x.
Janz NK, Wren PA, Copeland LA, Lowery JC, Goldfarb SL, Wilkins EG: Patient-physician concordance: preferences, perceptions, and factors influencing the breast cancer surgical decision. J Clin Oncol. 2004, 22 (15): 3091-3098. 10.1200/JCO.2004.09.069.
Gattellari M, Butow PN, Tattersall MHN: Sharing decisions in cancer care. Soc Sci Med. 2001, 52 (12): 1865-1878. 10.1016/S0277-9536(00)00303-8.
Wunderlich T, Cooper G, Divine G, Flocke S, Oja-Tebbe N, Stange K, Lafata JE: Inconsistencies in patient perceptions and observer ratings of shared decision making: the case of colorectal cancer screening. Patient Educ Couns. 2010, 80 (3): 358-363. 10.1016/j.pec.2010.06.034.
Butow P, Devine R, Boyer M, Pendlebury S, Jackson M, Tattersall MH: Cancer consultation preparation package: changing patients but not physicians is not enough. J Clin Oncol Official J American Soc Clin Oncol. 2004, 22 (21): 4401-4409. 10.1200/JCO.2004.66.155.
Kasper J, Köpke S, Mülhauser I, Nübling M, Heesen C: Informed shared decision making about immunotherapy for patients with multiple sclerosis (ISDIMS): a randomized controlled trial. Euro J Neurol. 2008, 15 (12): 1345-1352. 10.1111/j.1468-1331.2008.02313.x.
Davison BJ, Degner LF: Feasibility of using computer-assisted intervention to enhance the way women with breast cancer communicate with their physicians. Cancer Nurs. 2002, 25 (6): 417-424. 10.1097/00002820-200212000-00001.
Clayton MF, Latimer S, Dunn TW, Haas L: Assessing patient-centered communication in a family practice setting: how do we measure it, and whose opinion matters?. Patient Educ Couns. 2011, 84 (3): 294-302. 10.1016/j.pec.2011.05.027.
Ramfelt E, Lutzen K, Nordstrom G: Treatment decision-making in a group of patients with colo-rectal cancer before surgery and a one-year follow-up. Eur J Cancer Care (Engl). 2005, 14 (4): 327-335. 10.1111/j.1365-2354.2005.00588.x.
Caress AL: Patient roles in decision-making. Nurs Times. 1997, 93 (31): 45-48.
Hack TF, Degner LF, Watson P, Sinha L: Do patients benefit from participating in medical decision making? Longitudinal follow-up of women with breast cancer. Psychooncology. 2006, 15 (1): 9-19. 10.1002/pon.907.
Kremer H, Ironson G, Schneiderman N, Hautzinger M: “It’s my body”: does patient involvement in decision making reduce decisional conflict?. Med Decis Making. 2007, 27 (5): 522-532. 10.1177/0272989X07306782.
Bilodeau BA, Degner LF: Information needs, sources of information, and decisional roles in women with breast cancer. Oncol Nurs Forum. 1996, 23 (4): 691-696.
Beaver K, Booth K: Information needs and decision-making preferences: comparing findings for gynaecological, breast and colorectal cancer. Eur J Oncol Nurs. 2007, 11 (5): 409-416. 10.1016/j.ejon.2007.04.004.
Purbrick RMJ, Tu KL, Damato BE: The patient’s role in the decision-making process–a perspective from the liverpool ocular oncology centre. Eye (Lond). 2006, 20 (9): 1034-1039. 10.1038/sj.eye.6702074.
Caress AL, Beaver K, Luker K, Campbell M, Woodcock A: Involvement in treatment decisions: what do adults with asthma want and what do they get? Results of a cross sectional survey. Thorax. 2005, 60 (3): 199-205. 10.1136/thx.2004.029041.
Jefford M, Mileshkin L, Matthews J, Raunow H, O’Kane C, Cavicchiolo T, Brasier H, Anderson M, Reynolds J: Satisfaction with the decision to participate in cancer clinical trials is high, but understanding is a problem. Support Care Cancer. 2010, 19 (3): 371-379.
Nakashima M, Kuroki S, Shinkoda H, Suetsugu Y, Shimada K, Kaku T: Information-seeking experiences and decision-making roles of Japanese women with breast cancer. Fukuoka Igaku Zasshi. 2012, 103 (6): 120-130.
Ford S, Schofield T, Hope T: Are patients’ decision-making preferences being met?. Health Expect. 2003, 6 (1): 72-80. 10.1046/j.1369-6513.2003.00211.x.
Caldon LJM, Walters SJ, Reed MWR: Changing trends in the decision-making preferences of women with early breast cancer. Br J Surg. 2008, 95 (3): 312-318. 10.1002/bjs.5964.
Krist AH, Woolf SH, Johnson RE, Kerns JW: Patient education on prostate cancer screening and involvement in decision making. Ann Fam Med. 2007, 5 (2): 112-119. 10.1370/afm.623.
Vogel BA, Helmes AW, Hasenburg A: Concordance between patients’ desired and actual decision-making roles in breast cancer care. Psychooncology. 2008, 17 (2): 182-189. 10.1002/pon.1215.
Wallberg B, von SE Bolund C, Bergh J, Wilking N: Hormone replacement therapy after breast cancer: attitudes of women eligible in a randomized trial. Climacteric J Int Menopause Soc. 2009, 12 (6): 478-489. 10.3109/13697130902912597.
Beaver K, Bogg J, Luker K: Decision-making role preferences and information needs: a comparison of colorectal and breast cancer. Health Expect. 1999, 2 (4): 266-276. 10.1046/j.1369-6513.1999.00066.x.
Hawley ST, Lantz PM, Janz NK, Salem B, Morrow M, Schwartz K, Liu L, Katz SJ: Factors associated with patient involvement in surgical treatment decision making for breast cancer. Patient Educ Couns. 2007, 65 (3): 387-395. 10.1016/j.pec.2006.09.010.
Zhang Y, Su H, Shang L, Li D, Wang R, Zhang R, Xu Y: Preferences and perceived involvement in treatment decision making among Chinese patients with chronic hepatitis. Med Decis Making. 2011, 31 (2): 245-253. 10.1177/0272989X10375990.
Lantz PM, Janz NK, Fagerlin A, Schwartz K, Liu L, Lakhani I, Salem B, Katz SJ: Satisfaction with surgery outcomes and the decision process in a population-based sample of women with breast cancer. Health Services Res. 2005, 40 (3): 745-767. 10.1111/j.1475-6773.2005.00383.x.
Pardon K, Deschepper R, Vander Stichele R, Bernheim J, Mortier F, Schallier D, Germonpre P, Galdermans D, Van Kerckhoven W, Deliens L: Are patients’ preferences for information and participation in medical decision-making being met? Interview study with lung cancer patients. Palliat Med. 2011, 25 (1): 62-70. 10.1177/0269216310373169.
Davidson JR, Brundage MD, Feldman-Stewart D: Lung cancer treatment decisions: patients’ desires for participation and information. Psychooncology. 1999, 8 (6): 511-520. 10.1002/(SICI)1099-1611(199911/12)8:6<511::AID-PON415>3.0.CO;2-T.
Wallberg B, Michelson H, Nystedt M, Bolund C, Degner LF, Wilking N: Information needs and preferences for participation in treatment decisions among Swedish breast cancer patients. Acta Oncol. 2000, 39 (4): 467-476. 10.1080/028418600750013375.
Jolicoeur LJA, O’Connor AM, Hopkins L, Graham ID: Women’s decision-making needs related to treatment for recurrent ovarian cancer: a pilot study. Can Oncol Nurs J. 2009, 19 (3): 117-121. 10.5737/1181912x193117121.
Mohamedali HZ, Breunis H, Panju A, Alibhai SMH: Information needs, decisional regret and satisfaction of older and younger adults with acute myeloid leukemia. J Geriatr Oncol. 2010, 1 (2): 66-72. 10.1016/j.jgo.2010.06.002.
Vogel BA, Leonhart R, Helmes AW: Communication matters: the impact of communication and participation in decision making on breast cancer patients’ depression and quality of life. Patient Educ Couns. 2009, 77 (3): 391-397. 10.1016/j.pec.2009.09.005.
Hawley ST, Janz NK, Hamilton A, Griggs JJ, Alderman AK, Mujahid M, Katz SJ: Latina patient perspectives about informed treatment decision making for breast cancer. Patient Educ Couns. 2008, 73 (2): 363-370. 10.1016/j.pec.2008.07.036.
Davey HM, Lim J, Butow PN, Barratt AL, Redman S: Women’s preferences for and views on decision-making for diagnostic tests. Soc Sci Med. 2004, 58 (9): 1699-1707. 10.1016/S0277-9536(03)00339-3.
Moreau A, Carol L, Dedianne MC, Dupraz C, Perdrix C, Laine X, Souweine G: What perceptions do patients have of decision making (DM)? Toward an integrative patient-centered care model. A qualitative study using focus-group interviews. Patient Educ Couns. 2012, 87 (2): 206-211. 10.1016/j.pec.2011.08.010.