Comparing the experience of individuals with primary and secondary lymphoedema: A qualitative study

Ridner, 2013, Pathophysiology of lymphedema, Semin Oncol Nurs, 29, 4, 10.1016/j.soncn.2012.11.002 Jeffs, 2018, Clinical effectiveness of decongestive treatments on excess arm volume and patient-centered outcomes in women with early breast cancer-related arm lymphedema: A systematic review, JBI Database System Rev Implement Rep, 16, 453, 10.11124/JBISRIR-2016-003185 Garza, 2017, A comprehensive overview on the surgical management of secondary lymphedema of the upper and lower extremities related to prior oncologic therapies, BMC Cancer, 17, 468, 10.1186/s12885-017-3444-9 DiSipio, 2013, Incidence of unilateral arm lymphoedema after breast cancer: A systematic review and meta-analysis, Lancet Oncol, 14, 500, 10.1016/S1470-2045(13)70076-7 Mortimer, 1995, Managing lymphoedema, Clin Exp Dermatol, 20, 98, 10.1111/j.1365-2230.1995.tb02665.x Lee, 2005, Current concepts in lymphatic malformation, Vasc Endovascular Surg, 39, 67, 10.1177/153857440503900107 Stolldorf, 2016, A comparison of the quality of life in patients with primary and secondary lower limb lymphedema: A mixed-methods study, West J Nurs Res, 38, 1313, 10.1177/0193945916647961 Gjorup, 2017, Health-related quality of life in melanoma patients: Impact of melanoma-related limb lymphoedema, Eur J Cancer, 85, 122, 10.1016/j.ejca.2017.07.052 Creswell, 2018 Ridner, 2016, Breast cancer survivors’ perspectives of critical lymphedema self-care support needs, Support Care Cancer, 24, 2743, 10.1007/s00520-016-3089-2 Río-González, 2018, Living with lymphoedema-the perspective of cancer patients: A qualitative study, Support Care Cancer, 26, 2005, 10.1007/s00520-018-4048-x Hanson, 2018, Children and adolescents’ experiences of primary lymphoedema: Semistructured interview study, Arch Dis Child, 103, 675 Tong, 2007, Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups, Int J Qual Health Care, 19, 349, 10.1093/intqhc/mzm042 O’Brien, 2014, Standards for reporting qualitative research: A synthesis of recommendations, Acad Med, 89, 1245, 10.1097/ACM.0000000000000388 Carpenter, 2008 Korstjens, 2017, Moser A. Series: Practical guidance to qualitative research. Part 2: Context, research questions and designs, Eur J Gen Pract, 23, 274, 10.1080/13814788.2017.1375090 Norlyk, 2010, What makes a phenomenological study phenomenological? An analysis of peer-reviewed empirical nursing studies, Qual Health Res, 20, 420, 10.1177/1049732309357435 Executive Committee, 2016, The diagnosis and treatment of peripheral lymphedema: 2016 consensus document of the international society of lymphology, Lymphology, 49, 170 De Miguel Benadiba, 2016, Gestión económica del tratamiento del linfedema, Rev Senol Patol Mamar., 29, 157 Bakar, 2017, Lower extremity lymphedema management after gynecologic Cancer surgery: A review of current management strategies, Ann Vasc Surg, 44, 442, 10.1016/j.avsg.2017.03.197 Badger, 2004, Benzo‐pyrones for reducing and controlling lymphoedema of the limbs, Cochrane Database Syst Rev de Carvalho, 2019, Communicating vessels volumeter to measure upper extremity lymphedema after breast cancer: Reliability and criterion validity compared to the gold standard, Braz J Phys Ther, 23, 532, 10.1016/j.bjpt.2018.10.015 Deacon, 2019, Does the speed of aquatic therapy exercise alter arm volume in women with breast cancer related lymphoedema? A cross-over randomized controlled trial, Braz J Phys Ther, 23, 140, 10.1016/j.bjpt.2018.11.004 Moser, 2018, Series: Practical guidance to qualitative research. Part 3: Sampling, data collection and analysis, Eur J Gen Pract, 24, 9, 10.1080/13814788.2017.1375091 Miles, 2014 Braun, 2006, Using thematic analysis in psychology, Qual Res Psychol, 3, 77, 10.1191/1478088706qp063oa Korstjens, 2018, Series: Practical guidance to qualitative research. Part 4: Trustworthiness and publishing, Eur J Gen Pract, 24, 120, 10.1080/13814788.2017.1375092 Lincoln, 1985 World Medical Association, 2013, World Medical AssociationDeclaration of Helsinki: ethical principles for medical research involving human subjects, JAMA, 310, 2191, 10.1001/jama.2013.281053 Beaulac, 2002, Lymphedema and quality of life in survivors of early-stage breast cancer, Arch Surg., 137, 1253, 10.1001/archsurg.137.11.1253 Morgan, 2005, Health-related quality of life with lymphoedema: A review of the literature, Int Wound J, 2, 47, 10.1111/j.1742-4801.2005.00066.x Yélamos, 2007, Impacto del linfedema en la calidad de vida de las mujeres con cáncer de mama, Psicooncología, 4, 143 Fu, 2013, Psychosocial impact of lymphedema: A systematic review of literature from 2004 to 2011, Psychooncology, 22, 1466, 10.1002/pon.3201 Carter, 1997, Women’s experiences of lymphedema, Oncol Nurs Forum, 24, 875 Lin, 2019, The impact of gynaecological cancer treatment on physical activity levels: A systematic review of observational studies, Braz J Phys Ther, 23, 79, 10.1016/j.bjpt.2018.11.007 Cemal, 2013, Systematic review of quality of life and patient reported outcomes in patients with oncologic related lower extremity lymphedema, Lymphat Res Biol, 11, 14, 10.1089/lrb.2012.0015 Moffatt, 2003, Lymphoedema: An underestimated health problem, QJM, 96, 731, 10.1093/qjmed/hcg126 Singh, 2013, The effect of prospective monitoring and early physiotherapy intervention on arm morbidity following surgery for breast cancer: A pilot study, Physiother Can, 65, 183, 10.3138/ptc.2012-23O Shah, 2016, The impact of early detection and intervention of breast cancer-related lymphedema: A systematic review, Cancer Med, 5, 1154, 10.1002/cam4.691 Lam, 2006, Experiences of patients with lymphoedema, J Lymphoedema, 1, 16 Burckhardt, 2014, Living with breast cancer-related lymphedema: A synthesis of qualitative research, Oncol Nurs Forum, 41, E220, 10.1188/14.ONF.E220-E237 Stuiver, 2015, Conservative interventions for preventing clinically detectable upper-limb lymphoedema in patients who are at risk of developing lymphoedema after breast cancer therapy, Cochrane Database Syst Rev, 13 Box, 2002, Physiotherapy after breast cancer surgery: Results of a randomised controlled study to minimise lymphoedema, Breast Cancer Res Treat, 75, 51, 10.1023/A:1016591121762 Torres, 2010, Effectiveness of early physiotherapy to prevent lymphoedema after surgery for breast cancer: Randomised, single blinded, clinical trial, BMJ, 340, b5396, 10.1136/bmj.b5396 Nijs, 2019, Explaining pain following cancer: A practical guide for clinicians, Braz J Phys Ther, 23, 367, 10.1016/j.bjpt.2018.12.003 Williams, 2004, A phenomenological study of the lived experiences of people with lymphoedema, Int J Palliat Nur, 10, 279, 10.12968/ijpn.2004.10.6.13270 Greenslade, 2006, Living with lymphedema: A qualitative study of women’s perspectives on prevention and management following breast cancer-related treatment, Can Oncol Nurs J, 16, 165, 10.5737/1181912x163165171 Lee, 2011 Ridner, 2001, Breast cancer treatment-related lymphedema self-care: Education, practices, symptoms, and quality of life, Support Care Cancer, 19, 631, 10.1007/s00520-010-0870-5 Devoogdt, 2010, Different physical treatment modalities for lymphoedema developing after axillary lymph node dissection for breast cancer: A review, Eur J Obstet Gynecol Reprod Biol, 149, 3, 10.1016/j.ejogrb.2009.11.016 Oremus, 2012, Systematic review: Conservative treatments for secondary lymphedema, BMC Cancer, 12, 6, 10.1186/1471-2407-12-6 Finnane, 2015, Review of the evidence of lymphedema treatment effect, Am J Phys Med Rehabil, 94, 483, 10.1097/PHM.0000000000000246 Bogan, 2007, Experiences of living with non-cancer-related lymphedema: Implications for clinical practice, Qual Health Res, 17, 213, 10.1177/1049732306297660 McNeely, 2011, Conservative and dietary interventions for cancer-related lymphedema: A systematic review and meta-analysis, Cancer, 117, 1136, 10.1002/cncr.25513 Wirtz, 2018, Physical activity, exercise and breast Cancer - what is the evidence for rehabilitation, aftercare, and survival? A review, Breast Care (Basel), 13, 93, 10.1159/000488717 Baumann, 2018, Effects of physical exercise on breast cancer-related secondary lymphedema: A systematic review, Breast Cancer Res Treat, 170, 1, 10.1007/s10549-018-4725-y Fukushima, 2017, Immediate effects of active exercise with compression therapy on lower-limb lymphedema, Support Care Cancer, 25, 2603, 10.1007/s00520-017-3671-2 Mehrara, 2014, Lymphedema and obesity: Is there a link?, Plast Reconstr Surg, 134, 154e, 10.1097/PRS.0000000000000268 Alcorso, 2016, Factors associated with psychological distress in women with breast cancer-related lymphoedema, Psychooncology, 25, 865, 10.1002/pon.4021 Boerner, 2018, Conceptual complexity of gender and its relevance to pain, Pain, 159, 2137, 10.1097/j.pain.0000000000001275