Coeliac disease – women's experiences in everyday life

Journal of Clinical Nursing - Tập 21 Số 23-24 - Trang 3442-3450 - 2012
Lisa Ring Jacobsson1, Claes Hallert2,1, Anna Milberg1,3,4, Maria Friedrichsen1,4
1Department of Social and Welfare Studies, Faculty of Health Sciences, Linköping University, Norrköping, Sweden
2Department of Internal Medicine, Vrinnevi hospital, Norrköping, Sweden
3LAH/Unit of Palliative Care University Hospital Linköping Sweden
4Palliative Education and Research Centre in the County of Östergötland, Vrinnevi Hospital, Norrköping, Sweden

Tóm tắt

Aims and objectivesTo describe what life is like as a woman living with coeliac disease.BackgroundThe therapy for coeliac disease is a gluten‐free diet, and if sufferers keep strictly to this, it is suggested that they will stay well. However, previous studies point out that people who are treated for coeliac disease, particularly women, experience various kinds of inconvenience in relation to having coeliac disease and to being treated with gluten‐free diet.DesignA qualitative research design was chosen.MethodsA phenomenological approach as devised by Giorgi was used. Tape‐recorded qualitative interviews with a total of 15 women who were being treated for coeliac disease were conducted in 2008 in Sweden.ResultsThe results demonstrated that coeliac disease can influence women's lives in different ways. The general structure of being a woman with coeliac disease was described as a striving towards a normalised lifeworld. Three conditions necessary to achieve a normalised life were described, namely being secure, being in control and being seen and included.ConclusionUnderstanding factors affecting the ability to live with coeliac disease as normally as possible can help caregivers, and others, to support these women in their aims.Relevance to clinical practiceNurses should help women to adopt facilitating thoughts in relation to the disease and, in so doing, help them to select appropriate coping strategies.

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Thông tin xuất bản

Journal of Clinical Nursing

Tập 21 Số 23-24

3442-3450

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