Simon, 2010, Children with complex chronic conditions in inpatient hospital settings in the United States, Pediatrics, 126, 647, 10.1542/peds.2009-3266
Cohen, 2014, Responding to the rising number of children living with complex chronic conditions, CMAJ, 186, 1199, 10.1503/cmaj.141036
Sudore, 2017, Defining advance care planning for adults: a consensus definition from a multidisciplinary Delphi panel, J Pain Symptom Manage, 53, 821, 10.1016/j.jpainsymman.2016.12.331
Covinsky, 2000, Communication and decision-making in seriously ill patients: findings of the SUPPORT project, J Am Geriatr Soc, 48, S187, 10.1111/j.1532-5415.2000.tb03131.x
Himelstein, 2004, Pediatric palliative care, N Engl J Med, 350, 1752, 10.1056/NEJMra030334
Feudtner, 2011, Pediatric palliative care patients: a prospective multicenter cohort study, Pediatrics, 127, 1094, 10.1542/peds.2010-3225
Lord, 2020, Assessment of bereaved caregiver experiences of advance care planning for children with medical complexity, JAMA Netw Open, 3, 10.1001/jamanetworkopen.2020.10337
Hammes, 2005, Pediatric advance care planning, J Palliat Med, 8, 766, 10.1089/jpm.2005.8.766
DeCourcey, 2019, Advance care planning and parent-reported end-of-life outcomes in children, adolescents, and young adults with complex chronic conditions, Crit Care Med, 47, 101, 10.1097/CCM.0000000000003472
Lotz, 2013, Pediatric advance care planning: a systematic review, Pediatrics, 131, e873, 10.1542/peds.2012-2394
Lotz, 2015, Pediatric advance care planning from the perspective of health care professionals: a qualitative interview study, Palliat Med, 29, 212, 10.1177/0269216314552091
Durall, 2012, Barriers to conducting advance care discussions for children with life-threatening conditions, Pediatrics, 129, e975, 10.1542/peds.2011-2695
Heckford, 2014, Advance care planning: challenges and approaches for pediatricians, J Palliat Med, 17, 1049, 10.1089/jpm.2013.0374
Dellon, 2010, Caregiver perspectives on discussions about the use of intensive treatments in cystic fibrosis, J Pain Symptom Manage, 40, 821, 10.1016/j.jpainsymman.2010.03.021
Orkin, 2020, Toward an understanding of advance care planning in children with medical complexity, Pediatrics, 145, 10.1542/peds.2019-2241
Feudtner, 2014, Pediatric complex chronic conditions classification system version 2: updated for ICD-10 and complex medical technology dependence and transplantation, BMC Pediatr, 14, 199, 10.1186/1471-2431-14-199
Green, 2018
McLeroy, 1988, An ecological perspective on health promotion programs, Health Educ Q, 15, 351, 10.1177/109019818801500401
Golden, 2012, Social ecological approaches to individuals and their contexts: twenty years of health education & behavior health promotion interventions, Health Educ Behav, 39, 364, 10.1177/1090198111418634
Burkholder, 2019
Pope, 2000, Analysing qualitative data, BMJ, 320, 114, 10.1136/bmj.320.7227.114
Creswell, 2011
Padgett, 2012
Bartel, 2000, Working with families of suddenly and critically ill children: physician experiences, Arch Pediatr Adolesc Med, 154, 1127, 10.1001/archpedi.154.11.1127
Wilson, 2020, Rapid adoption of a serious illness conversation electronic medical record template: lessons learned and future directions, J Palliat Med, 23, 159, 10.1089/jpm.2019.0420
Drach, 2020, Communication between neonatologists and parents when prognosis is uncertain, J Perinatol, 40, 1412, 10.1038/s41372-020-0673-6
Bernacki, 2015, Development of the serious illness care program: a randomised controlled trial of a palliative care communication intervention, BMJ Open, 5, 10.1136/bmjopen-2015-009032
Short, 2018, Pediatric palliative care in the intensive care unit and questions of quality: a review of the determinants and mechanisms of high-quality palliative care in the pediatric intensive care unit (PICU), Transl Pediatr, 7, 326, 10.21037/tp.2018.09.11
Norris, 2019, Pediatric palliative care, Prim Care Clin, 46, 461, 10.1016/j.pop.2019.05.010
Lautrette, 2007, A communication strategy and brochure for relatives of patients dying in the ICU, N Engl J Med, 356, 469, 10.1056/NEJMoa063446
Bernacki, 2014, Communication about serious illness care goals: a review and synthesis of best practices, JAMA Intern Med, 174, 1994, 10.1001/jamainternmed.2014.5271
Paladino, 2019, Evaluating an intervention to improve communication between oncology clinicians and patients with life-limiting cancer: a cluster randomized clinical trial of the serious illness care program, JAMA Oncol, 5, 801, 10.1001/jamaoncol.2019.0292
DeCourcey, 2021, Development of a stakeholder driven serious illness communication program for advance care planning in children, adolescents, and young adults with serious illness, J Pediatr, 229, 247, 10.1016/j.jpeds.2020.09.030