Clinician Identified Barriers and Strategies for Advance Care Planning in Seriously Ill Pediatric Patients

Journal of Pain and Symptom Management - Tập 62 - Trang e100-e111 - 2021
Meera R. Basu1, Lindsay Partin1, Anna Revette2, Joanne Wolfe1,3, Danielle D. DeCourcey1
1Department of Pediatrics, Boston Children's Hospital (M.R.B., L.P., J.W., D.D.D.), Boston, Massachusetts
2Survey and Data Management Core, Dana Farber Cancer Institute (A.R.), Boston, Massachusetts
3Department of Psychosocial Oncology and Palliative Care, Dana Farber Cancer Institute (J.W.), Boston, Massachusetts

Tài liệu tham khảo

Simon, 2010, Children with complex chronic conditions in inpatient hospital settings in the United States, Pediatrics, 126, 647, 10.1542/peds.2009-3266 Cohen, 2014, Responding to the rising number of children living with complex chronic conditions, CMAJ, 186, 1199, 10.1503/cmaj.141036 Sudore, 2017, Defining advance care planning for adults: a consensus definition from a multidisciplinary Delphi panel, J Pain Symptom Manage, 53, 821, 10.1016/j.jpainsymman.2016.12.331 Covinsky, 2000, Communication and decision-making in seriously ill patients: findings of the SUPPORT project, J Am Geriatr Soc, 48, S187, 10.1111/j.1532-5415.2000.tb03131.x Himelstein, 2004, Pediatric palliative care, N Engl J Med, 350, 1752, 10.1056/NEJMra030334 Feudtner, 2011, Pediatric palliative care patients: a prospective multicenter cohort study, Pediatrics, 127, 1094, 10.1542/peds.2010-3225 Lord, 2020, Assessment of bereaved caregiver experiences of advance care planning for children with medical complexity, JAMA Netw Open, 3, 10.1001/jamanetworkopen.2020.10337 Hammes, 2005, Pediatric advance care planning, J Palliat Med, 8, 766, 10.1089/jpm.2005.8.766 DeCourcey, 2019, Advance care planning and parent-reported end-of-life outcomes in children, adolescents, and young adults with complex chronic conditions, Crit Care Med, 47, 101, 10.1097/CCM.0000000000003472 Lotz, 2013, Pediatric advance care planning: a systematic review, Pediatrics, 131, e873, 10.1542/peds.2012-2394 Lotz, 2015, Pediatric advance care planning from the perspective of health care professionals: a qualitative interview study, Palliat Med, 29, 212, 10.1177/0269216314552091 Durall, 2012, Barriers to conducting advance care discussions for children with life-threatening conditions, Pediatrics, 129, e975, 10.1542/peds.2011-2695 Heckford, 2014, Advance care planning: challenges and approaches for pediatricians, J Palliat Med, 17, 1049, 10.1089/jpm.2013.0374 Dellon, 2010, Caregiver perspectives on discussions about the use of intensive treatments in cystic fibrosis, J Pain Symptom Manage, 40, 821, 10.1016/j.jpainsymman.2010.03.021 Orkin, 2020, Toward an understanding of advance care planning in children with medical complexity, Pediatrics, 145, 10.1542/peds.2019-2241 Feudtner, 2014, Pediatric complex chronic conditions classification system version 2: updated for ICD-10 and complex medical technology dependence and transplantation, BMC Pediatr, 14, 199, 10.1186/1471-2431-14-199 Green, 2018 McLeroy, 1988, An ecological perspective on health promotion programs, Health Educ Q, 15, 351, 10.1177/109019818801500401 Golden, 2012, Social ecological approaches to individuals and their contexts: twenty years of health education & behavior health promotion interventions, Health Educ Behav, 39, 364, 10.1177/1090198111418634 Burkholder, 2019 Pope, 2000, Analysing qualitative data, BMJ, 320, 114, 10.1136/bmj.320.7227.114 Creswell, 2011 Padgett, 2012 Bartel, 2000, Working with families of suddenly and critically ill children: physician experiences, Arch Pediatr Adolesc Med, 154, 1127, 10.1001/archpedi.154.11.1127 Wilson, 2020, Rapid adoption of a serious illness conversation electronic medical record template: lessons learned and future directions, J Palliat Med, 23, 159, 10.1089/jpm.2019.0420 Drach, 2020, Communication between neonatologists and parents when prognosis is uncertain, J Perinatol, 40, 1412, 10.1038/s41372-020-0673-6 Bernacki, 2015, Development of the serious illness care program: a randomised controlled trial of a palliative care communication intervention, BMJ Open, 5, 10.1136/bmjopen-2015-009032 Short, 2018, Pediatric palliative care in the intensive care unit and questions of quality: a review of the determinants and mechanisms of high-quality palliative care in the pediatric intensive care unit (PICU), Transl Pediatr, 7, 326, 10.21037/tp.2018.09.11 Norris, 2019, Pediatric palliative care, Prim Care Clin, 46, 461, 10.1016/j.pop.2019.05.010 Lautrette, 2007, A communication strategy and brochure for relatives of patients dying in the ICU, N Engl J Med, 356, 469, 10.1056/NEJMoa063446 Bernacki, 2014, Communication about serious illness care goals: a review and synthesis of best practices, JAMA Intern Med, 174, 1994, 10.1001/jamainternmed.2014.5271 Paladino, 2019, Evaluating an intervention to improve communication between oncology clinicians and patients with life-limiting cancer: a cluster randomized clinical trial of the serious illness care program, JAMA Oncol, 5, 801, 10.1001/jamaoncol.2019.0292 DeCourcey, 2021, Development of a stakeholder driven serious illness communication program for advance care planning in children, adolescents, and young adults with serious illness, J Pediatr, 229, 247, 10.1016/j.jpeds.2020.09.030