Clinician-Family Communication About Patients’ Values and Preferences in Intensive Care Units

JAMA Internal Medicine - Tập 179 Số 5 - Trang 676 - 2019
Leslie P. Scheunemann1,2, Natalie C. Ernecoff3, Praewpannarai Buddadhumaruk4, Shannon S. Carson5, Catherine L. Hough6, J. Randall Curtis7,6, Wendy G. Anderson8,9,10, Jay S. Steingrub11, Bernard Lo12, Michael A. Matthay13, Robert M. Arnold14,15, Douglas B. White4
1Division of Geriatric Medicine and Gerontology, University of Pittsburgh, Pittsburgh, Pennsylvania
2Division of Pulmonary, Allergy, and Critical Care Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania
3Department of Health Policy and Management, University of North Carolina at Chapel Hill
4Program on Ethics and Decision Making in Critical Illness, Department of Critical Care Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania
5Division of Pulmonary Diseases and Critical Care Medicine, University of North Carolina at Chapel Hill
6Division of Pulmonary, Critical Care and Sleep Medicine, University of Washington, Seattle
7Cambia Palliative Care Center of Excellence, University of Washington, Seattle
8Department of Physiological Nursing, University of California, San Francisco School of Nursing, San Francisco
9Division of Hospital Medicine, University of California, San Francisco School of Medicine, San Francisco
10Palliative Care Program, University of California, San Francisco Medical Center, San Francisco
11Division of Pulmonary and Critical Care Medicine, University of Massachusetts Medical School–Baystate, Springfield
12The Greenwall Foundation, New York, New York
13Departments of Medicine and Anesthesia and Perioperative Care, University of California, San Francisco
14Palliative and Supportive Institute, University of Pittsburgh Medical Center Health System, Pittsburgh, Pennsylvania
15Section of Palliative Care and Medical Ethics, University of Pittsburgh, Pittsburgh, Pennsylvania

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Dowdy, 2005, Quality of life in adult survivors of critical illness: a systematic review of the literature., Intensive Care Med, 31, 611, 10.1007/s00134-005-2592-6

Pandharipande, 2013, Long-term cognitive impairment after critical illness., N Engl J Med, 369, 1306, 10.1056/NEJMoa1301372

Herridge, 2011, Functional disability 5 years after acute respiratory distress syndrome., N Engl J Med, 364, 1293, 10.1056/NEJMoa1011802

Sacanella, 2011, Functional status and quality of life 12 months after discharge from a medical ICU in healthy elderly patients: a prospective observational study., Crit Care, 15, R105, 10.1186/cc10121

Guentner, 2006, Preferences for mechanical ventilation among survivors of prolonged mechanical ventilation and tracheostomy., Am J Crit Care, 15, 65, 10.4037/ajcc2006.15.1.65

Kon, 2016, Shared decision making in ICUs: an American College of Critical Care Medicine and American Thoracic Society policy statement., Crit Care Med, 44, 188, 10.1097/CCM.0000000000001396

White, 2007, Toward shared decision making at the end of life in intensive care units: opportunities for improvement., Arch Intern Med, 167, 461, 10.1001/archinte.167.5.461

Scheunemann, 2015, How clinicians discuss critically ill patients’ preferences and values with surrogates: an empirical analysis., Crit Care Med, 43, 757, 10.1097/CCM.0000000000000772

Mohan, 2010, Communication practices in physician decision-making for an unstable critically ill patient with end-stage cancer., J Palliat Med, 13, 949, 10.1089/jpm.2010.0053

Uy, 2013, Physicians’ decision-making roles for an acutely unstable critically and terminally ill patient., Crit Care Med, 41, 1511, 10.1097/CCM.0b013e318287f0dd

Douglas, 2012, Neglect of quality-of-life considerations in intensive care unit family meetings for long-stay intensive care unit patients., Crit Care Med, 40, 461, 10.1097/CCM.0b013e318232d8c4

Curtis, 2005, Missed opportunities during family conferences about end-of-life care in the intensive care unit., Am J Respir Crit Care Med, 171, 844, 10.1164/rccm.200409-1267OC

Chiarchiaro, 2015, Quality of communication in the ICU and surrogate’s understanding of prognosis., Crit Care Med, 43, 542, 10.1097/CCM.0000000000000719

Ernecoff, 2015, Health care professionals’ responses to religious or spiritual statements by surrogate decision makers during goals-of-care discussions., JAMA Intern Med, 175, 1662, 10.1001/jamainternmed.2015.4124

Chiarchiaro, 2015, Prior advance care planning is associated with less decisional conflict among surrogates for critically ill patients., Ann Am Thorac Soc, 12, 1528, 10.1513/AnnalsATS.201504-253OC

Scheunemann, 2012, The facilitated values history: helping surrogates make authentic decisions for incapacitated patients with advanced illness., Am J Respir Crit Care Med, 186, 480, 10.1164/rccm.201204-0710CP

Llewellyn-Thomas, 2013, Decision support for patients: values clarification and preference elicitation., Med Care Res Rev, 70, 50S, 10.1177/1077558712461182

Fried, 2002, Understanding the treatment preferences of seriously ill patients., N Engl J Med, 346, 1061, 10.1056/NEJMsa012528

Karel, 2007, Three methods of assessing values for advance care planning: comparing persons with and without dementia., J Aging Health, 19, 123, 10.1177/0898264306296394

Ditto, 1996, Fates worse than death: the role of valued life activities in health-state evaluations., Health Psychol, 15, 332, 10.1037/0278-6133.15.5.332

Hawkins, 2005, Micromanaging death: process preferences, values, and goals in end-of-life medical decision making., Gerontologist, 45, 107, 10.1093/geront/45.1.107

Patrick, 1994, Measuring preferences for health states worse than death., Med Decis Making, 14, 9, 10.1177/0272989X9401400102

Schwarze, 2016, You can’t get what you want: innovation for end-of-life communciation in the intensive care unit., Am J Respir Crit Care Med, 193, 14, 10.1164/rccm.201508-1592OE

Volandes, 2013, Audio-video decision support for patients: the documentary genré as a basis for decision aids., Health Expect, 16, e80, 10.1111/hex.2013.16.issue-3

You, 2015, Barriers to goals of care discussions with seriously ill hospitalized patients and their families: a multicenter survey of clinicians., JAMA Intern Med, 175, 549, 10.1001/jamainternmed.2014.7732

Sudore, 2010, Redefining the “planning” in advance care planning: preparing for end-of-life decision making., Ann Intern Med, 153, 256, 10.7326/0003-4819-153-4-201008170-00008

Norton, 2013, Palliative care communication: linking patients’ prognoses, values, and goals of care., Res Nurs Health, 36, 582, 10.1002/nur.v36.6

McDonagh, 2004, Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction., Crit Care Med, 32, 1484, 10.1097/01.CCM.0000127262.16690.65

Joseph-Williams, 2014, Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making., Patient Educ Couns, 94, 291, 10.1016/j.pec.2013.10.031

Barratt, 2008, Evidence based medicine and shared decision making: the challenge of getting both evidence and preferences into health care., Patient Educ Couns, 73, 407, 10.1016/j.pec.2008.07.054

Légaré, 2010, Interventions for improving the adoption of shared decision making by healthcare professionals., Cochrane Database Syst Rev, CD006732

Arnold, 2015, The Critical Care Communication project: improving fellows’ communication skills., J Crit Care, 30, 250, 10.1016/j.jcrc.2014.11.016

Crabtree, 1999, Doing Qualitative Research, 2nd ed