Changing needs of Chinese family caregivers of stroke survivors

Journal of Clinical Nursing - Tập 16 Số 5 - Trang 971-979 - 2007
Annie Km Mak1, Ann Mackenzie, May How-Lin Lui
1Rehabilitation unit in Hong Kong, Princess Margaret Hospital, Kwai Chung, NT, Hong Kong.

Tóm tắt

Aim.  To examine the changing needs of Chinese family caregivers before and after stroke survivors’ discharge from hospital.Background.  Stroke ranks third as the most common cause of death in Hong Kong and is the leading cause of adult disability. Community care has been adopted as the major source of care for older people in Hong Kong and this has impacted on family caregivers.Design and methods.  This is a descriptive‐correlational design using a within‐subjects design. The needs of 40 Chinese family caregivers who met the inclusion criteria were assessed before discharge and two weeks later using the Carer Assessment Scale, Cost of Care Index and one open‐ended question. Modified Barthel Index measured the functional ability of stroke survivors.Results.  Family caregivers are able to anticipate most of their needs and to make provision to meet the basic practical needs before discharge. Although needs changed after discharge the four most important needs persisted. These were associated with emotional and psychological problems and financial difficulties. Discharge destinations made no difference to the total scores obtained using the above scales.Conclusions.  This study provides information about need at a time of transition in an under‐researched population of Chinese caregivers. Assessment of need is important with Chinese family carers in order to identify focused interventions in a population, i.e. reluctant to make their needs known to professional services. More research about caregiving problems for Chinese family caregivers at the transition from hospital to community is required.Relevance to clinical practice.  Ongoing need assessment by nurses who are in regular contact with caregivers in hospital and community will enable appropriate interventions such as providing education and emotional support both before and after discharge to be offered to Chinese communities.

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Tài liệu tham khảo

American Stroke Association, 2003, Heart and Stroke Statistical Update, 2002

10.1161/01.STR.26.5.843

Au W, 1994, Care in the Chinese Community: The Way Ahead

10.1046/j.1365-2702.2002.00564.x

10.1161/01.STR.30.8.1517

Chan H, 1995, Hong Kong families. At the crossroads of modernism and traditionalism, Journal of Comparative Family Studies, 26, 82, 10.3138/jcfs.26.1.83

10.1161/01.STR.29.11.2325

10.1046/j.0309-2402.2003.02832.x

10.1300/J031v05n01_08

Chow EO, 1997, Quality of life and associated factors in Chinese stroke survivors in Hong Kong, Health Care in Later Life, 2, 227

Clinical Standards Advisory Group, 1998, Report on Clinical Effectiveness Using Stroke Care as an Example

10.1136/bmj.312.7047.1642

Forster A, 2001, Information Provision for Stroke Patients and their Caregivers, 10.1002/14651858.CD001919

Friedland J, 1992, Social support intervention after stroke: results of a randomized control trial after stroke, Archives of Physical Medical Rehabilitation, 73, 573

10.1037/h0087746

10.1177/0038038591025001004

10.1046/j.1365-2524.2003.00434.x

10.1161/01.STR.30.7.1478

Hong Kong Government, 2004, Hong Kong Report

10.1300/J083v31n01_08

10.1136/bmj.328.7448.1099

Kay R, 1993, Cerebrovascular disease in Hong Kong, Journal of Hong Kong Medical Association, 45, 985

10.1093/geront/26.3.273

10.1093/geront/30.2.236

Kwan A, 1991, A Study of the Coping Behaivor of Caregivers of Chinese Elderly in Hong Kong

Kwok J, 1997, Urban Community Based Rehabilitation and Caregiving in the Family

10.1016/S0277-9536(99)00194-X

10.1046/j.1365-2648.1999.01087.x

10.1111/j.1741-6612.2000.tb00232.x

10.1016/S0020-7489(98)00008-X

Mackenzie AE, 1998, Evaluation of a pilot project to introduce case management into the community nursing services, Quality Bulletin, 3, 28

10.1177/105477389600500307

Mahoney FI, 1965, Functional evaluation: the Barthel Index, Maryland State Medical Journal, 14, 61

Morse JM, 1995, Qualitative Research Methods for Health Professionals

Ngan R, 1992, The caring dilemma: stress and needs of caregivers for the Chinese frail elderly, Hong Kong Journal of Gerontology, 6, 34

Ngan R, 1995, Injustice in family care of the Chinese elderly in Hong Kong, Journal of Gerontology, 6, 34

10.1111/j.1440-172X.2004.00469.x

Office for National Statistics, 2002, Living in Britain: Results from the 2000 General Household Survey

10.1037/0090-5550.48.4.255

Portney LG, 2000, Foundations of Clinical Research: Applications to Practice

10.1191/0269215505cr787oa

10.1161/01.STR.30.12.2585

Rudd AG, 2000, The national clinical guidelines for stroke, Journal of the Royal College of Physicians London, 34, 131

10.1016/0895-4356(89)90065-6

Social Welfare Department, 2002, Annual Report 2002

10.1111/j.1365-2648.2004.02983.x

Sprotson K, 1999, Health and Lifestyles of the Chinese population in England

10.1053/apmr.2000.6279

Talbot LA, 1995, Principles and Practice of Nursing Research

Wade DT, 1992, Measurement in Neurological Rehabilitation

Wolfe C, 1996, Stroke Services & Research. An Overview, with Recommendations for Future Research

10.1177/026921559500900105