Caregiving in the shadows: National analysis of health outcomes and intensity and duration of care among those who care for people with mental illness and for people with developmental disabilities

Disability and Health Journal - Tập 13 - Trang 100837 - 2020
Wesley R. Barnhart1, David W. Ellsworth1, Ann C. Robinson1, John V. Myers2, Rebecca R. Andridge2, Susan M. Havercamp1
1Nisonger Center, The Ohio State University, Columbus, USA
2College of Public Health, The Ohio State University, Columbus, USA

Tài liệu tham khảo

National Alliance for Caregiving & AARP, 2015 Balducci, 2008, Negative impact and positive value in caregiving: validation of the COPE index in a six-country sample of carers, Gerontol, 48, 276, 10.1093/geront/48.3.276 Karabulutlu, 2014, Coping with stress of family caregivers of cancer patients in Turkey, Asia Pacific J Oncol Nurs, 1, 55, 10.4103/2347-5625.135822 Carter, 2003, Family caregivers' sleep loss and depression over time, Cancer Nurs, 26, 253, 10.1097/00002820-200308000-00001 Johansen, 2018, The effect of cancer patients' and their family caregivers' physical and emotional symptoms on caregiver burden, Cancer Nurs, 41, 91, 10.1097/NCC.0000000000000493 Longacre, 2018, Reducing informal caregiver burden in cancer: evidence-based programs in practice, Transl Behav Med, 8, 145, 10.1093/tbm/ibx028 Pinquart, 2003, Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis, J Gerontol Ser B Psychol Sci Soc Sci, 58, P112 Schulz, 1999, Caregiving as a risk factor for mortality: the caregiver health effects study, J Am Med Assoc: J Am Med Assoc, 282, 2215, 10.1001/jama.282.23.2215 Sörensen, 2011, Issues in dementia caregiving: effects on mental and physical health, intervention strategies, and research needs, Am J Geriatr Psychiatry, 19, 491, 10.1097/JGP.0b013e31821c0e6e Griffin, 2012, The invisible side of war: families caring for us service members with traumatic brain injuries and polytrauma, J Head Trauma Rehabil, 27, 3, 10.1097/HTR.0b013e3182274260 Nijboer, 1998, Cancer and caregiving: the impact on the caregiver's health, Psycho Oncol, 7, 3, 10.1002/(SICI)1099-1611(199801/02)7:1<3::AID-PON320>3.0.CO;2-5 Kim, 2008, Quality of life of family caregivers of cancer survivors: across the trajectory of the illness, Cancer, 112, 2556, 10.1002/cncr.23449 Anderson, 2018 National Alliance for Caregiving, 2016 Chiu, 2006, Personal tragedy or system failure: a qualitative analysis of narratives of caregivers of people with severe mental illness in Hong Kong and Taiwan, Int J Soc Psychiatry, 52, 413, 10.1177/0020764006065155 Yip, 2004, The situation of family caregivers for people with mental illnesses in Hong Kong, Psychiatr Rehabil J, 28, 136, 10.2975/28.2004.136.141 Brickell, 2019 Griffin, 2017, Burden and mental health among caregivers of veterans with traumatic brain injury/polytrauma, Am J Orthopsychiatry, 87, 139, 10.1037/ort0000207 Schulz, 2003, End-of-life care and the effects of bereavement on family caregivers of persons with dementia, N Engl J Med, 349, 1936, 10.1056/NEJMsa035373 Kessler, 2007, Age of onset of mental disorders: a review of recent literature, Curr Opin Psychiatr, 20, 359, 10.1097/YCO.0b013e32816ebc8c Centers for Disease Control and Prevention (CDC), 2016 Baum, 1999, Health psychology: mapping biobehavioral contributions to health and illness, Annu Rev Psychol, 50, 137, 10.1146/annurev.psych.50.1.137 Ejaz, 2013 Miodrag, 2010, Chronic stress and health among parents of children with intellectual and developmental disabilities, Curr Opin Psychiatr, 23, 407, 10.1097/YCO.0b013e32833a8796 Kokanovic, 2006, “Nobody can help me. . . I am living through it alone”: experiences of caring for people diagnosed with mental illness in ethno-cultural and linguistic minority communities, J Immigr Minority Health, 8, 125, 10.1007/s10903-006-8521-0 Perron, 2002, Online support for caregivers of people with a mental illness, Psychiatr Rehabil J, 26, 70, 10.2975/26.2002.70.77 Shankar, 2007, Support needs of family caregivers of people who experience mental illness, and the role of mental health services, Fam Soc, 88, 302, 10.1606/1044-3894.3628 Stengård, 2002, Caregiving types and psychosocial well-being of caregivers of people with mental illness in Finland, Psychiatr Rehabil J, 26, 154, 10.2975/26.2002.154.164 Lefley, 1999, Helping parental caregivers and mental health consumers cope with parental aging and loss, Psychiatr Serv, 50, 369, 10.1176/ps.50.3.369 Akbari, 2018 Shi, 2019, Correlates of affiliate stigma among family caregivers of people with mental illness: a systematic review and meta-analysis, J Psychiatr Ment Health Nurs, 26, 49, 10.1111/jpm.12505 Zeng, 2017, Perceived burden and quality of life in Chinese caregivers of people with serious mental illness: a comparison cross-sectional survey, Perspect Psychiatr Care, 53, 183, 10.1111/ppc.12151 Zhang, 2018, Affiliate stigma and its association with quality of life among caregivers of relatives with mental illness in Singapore, Psychiatry Res, 265, 55, 10.1016/j.psychres.2018.04.044 Katz, 1963, Studies of illness in the aged: the index of ADL: a standardized measure of biological and psychosocial function, J Am Med Assoc: J Am Med Assoc, 185, 94, 10.1001/jama.1963.03060120024016 Barrow, 2005, Unsung heroes who put their lives at risk? Informal caring, health and neighbourhood attachment, J Public Health, 27, 292 Talley, 2007, Framing the public health of caregiving, Am J Public Health, 97, 224, 10.2105/AJPH.2004.059337