Being a Parent: Findings from a Grounded Theory of Memory-Making in Neonatal End-of-Life Care

Journal of Pediatric Nursing - Tập 61 - Trang 51-58 - 2021
Rebecca Thornton1,2, Patricia Nicholson3, Louise Harms1
1Department of Social Work, Alan Gilbert Building, The University of Melbourne, Australia
2Deakin University, Australia
3School of Nursing and Midwifery, Centre of Quality and Safe Patient Research, Deakin University, Australia

Tài liệu tham khảo

Abraham, 2017, “You Can Only Give Warmth to Your Baby When It’s Too Late”: Parents’ Bonding With Their Extremely Preterm and Dying Child, Qualitative Health Research, 27, 2100, 10.1177/1049732317721476 Australian College of Neonatal Nurses Baughcum, 2017, Perspectives from bereaved parents on improving end of life care in the NICU, Clinical Practice in Pediatric Psychology, 5, 392, 10.1037/cpp0000221 British Association of Perinatal Medicine, 2010 Brosig, 2007, Infant end-of-life care: the parents' perspective, Journal of Perinatology, 27, 510, 10.1038/sj.jp.7211755 Cacciatore, 2010, The unique experiences of women and their families after the death of a baby, Social Work in Health Care, 49, 134, 10.1080/00981380903158078 Cacciatore, 2008, When a baby dies: Ambiguity and stillbirth, Marriage & Family Review, 44, 439, 10.1080/01494920802454017 Cacciatore, 2012, Mediating grief: Postmortem ritualization after child death, Journal of Loss and Trauma, 17, 158, 10.1080/15325024.2011.595299 Cooney, 2011, Rigour and grounded theory, Nurse Researcher, 18, 17, 10.7748/nr2011.07.18.4.17.c8631 Corbin, 2008 Crawley, 2013, Recovering from stillbirth: The effects of making and sharing memories on maternal mental health, Journal of Reproductive and Infant Psychology, 31, 195, 10.1080/02646838.2013.795216 Currie, 2016, Parent perspectives of neonatal intensive care at the end-of-Life, Journal of Pediatric Nursing, 31, 478, 10.1016/j.pedn.2016.03.023 Cutcliffe, 2005, Adapt or adopt: Developing and transgressing the methodological boundaries of grounded theory, Journal of Advanced Nursing, 51, 421, 10.1111/j.1365-2648.2005.03514.x Doka, 1999, Disenfranchised grief, Bereavement Care, 18, 37, 10.1080/02682629908657467 Draucker, 2009, Developing distress protocols for research on sensitive topics, Archives of Psychiatric Nursing, 23, 343, 10.1016/j.apnu.2008.10.008 Engward, 2013, Understanding grounded theory, Nursing Standard, 28, 37, 10.7748/ns2013.10.28.7.37.e7806 Gale, 1998, Toward a standard of care for parents of infants in the neonatal intensive care unit, Critical Care Nurse, 18, 10.4037/ccn1998.18.5.62 Glaser, 1967 Gold, 2007, Hospital care for parents after perinatal death, Obstetrics and Gynecology, 109, 1156, 10.1097/01.AOG.0000259317.55726.df Harvey, 2008, Effectiveness of bereavement interventions in neonatal intensive care: A review of the evidence, Seminars in Fetal & Neonatal Medicine, 13, 341, 10.1016/j.siny.2008.03.011 Kersting, 2012, Clinical research complicated grief after perinatal loss, Dialogues in Clinical Neuroscience, 14, 187, 10.31887/DCNS.2012.14.2/akersting Koopmans, 2013, Support for mothers, fathers and families after perinatal death, Cochrane Database of Systematic Reviews, 6 Lathrop, 2011, Affirming motherhood: Validation and invalidation in women’s perinatal hospice narratives, Birth, 38, 256, 10.1111/j.1523-536X.2011.00478.x Lemmer, 1991, Parental perceptions of caring following perinatal bereavement, Western Journal of Nursing Research, 13, 475, 10.1177/019394599101300404 Malacrida, 1997, Perinatal death: Helping parents find their way, Journal of Family Nursing, 3, 130, 10.1177/107484079700300203 McGuinness, 2015, A shortened experience of motherhood, World of Irish Nursing & Midwifery, 23, 63 Mcspedden, 2017, The presence and predictors of complicated grief symptoms in perinatally bereaved mothers from a bereavement support organization, Death Studies, 41, 112, 10.1080/07481187.2016.1210696 Meert, 2005, The spiritual needs of parents at the time of their child’s death in the pediatric intensive care unit and during bereavement: A qualitative study, Pediatric Critical Care Medicine: A Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies, 6, 420, 10.1097/01.PCC.0000163679.87749.CA National Association of Neonatal Nurses (NANN) National Institute for Health Care Excellence (NICE) Perinatal Society of Australia and New Zealand Red Nose Grief and Loss Robinson, 1999, The relationship of attachment theory and perinatal loss, Death Studies, 23, 257, 10.1080/074811899201073 Strauss, 1990, Grounded theory research: Procedures, canons, and evaluative criteria, Qualitative Sociology, 13, 3, 10.1007/BF00988593 Strauss, 2015 Thornton, 2019, Scoping review of memory-making in bereavement care for parents after the death of a newborn, Journal of Obstetric, Gynecologic, and Neonatal Nursing, 48, 351, 10.1016/j.jogn.2019.02.001 Thornton, 2020, Creating evidence: Findings from a grounded theory of memory-making in neonatal bereavement care in Australia, Journal of Pediatric Nursing, 53, 29, 10.1016/j.pedn.2020.04.006 UNICEF