Atopic eczema score of emotional consequences—a questionnaire to assess emotional consequences of atopic eczema

Allergo Journal International - Tập 28 Số 7 - Trang 277-288 - 2019
B.W.M. Arents1, Ute Mensing2, Irmtraud A. Seitz2, Niels Wettemann2, Antje-H. Fink-Wagner1, Giuseppe De Carlo1, Alexander Zink3, Johannes Ring3
1European Federation of Allergy and Airways Diseases Patients’ Associations, Brussels, Belgium
2IMAS International, Munich, Germany
3Department of Dermatology and Allergy, Technical University of Munich, Biedersteiner Str. 29, 80802, Munich, Germany

Tóm tắt

Từ khóa


Tài liệu tham khảo

Weidinger S, Novak N. Atopic dermatitis. Lancet. 2016;387:1109–22.

Barbarot S, Auziere S, Gadkari A, Girolomoni G, Puig L, Simpson EL, et al. Epidemiology of atopic dermatitis in adults: results from an international survey. Allergy. 2018;73:1284–93.

Ring J, Ruzicka Th, Przybilla B, editors. Handbook of atopic eczema. Berlin New York: Springer; 2006.

Sampogna F, Finlay AY, Salek SS, Chernyshov P, Dalgard FJ, Evers AWM, et al. Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments. J Eur Acad Dermatol Venereol. 2017;31:1429–39.

Drucker AM, Wang AR, Li WQ, Sevetson E, Block JK, Qureshi AA. The burden of atopic dermatitis: summary of a report for the national eczema association. J Invest Dermatol. 2017;137:26–30.

Ring J. Atopic dermatitis—eczema. Berlin New York: Springer; 2016.

Nørreslet LB, Ebbehøj NE, Ellekilde BJP, Thomsen SF, Agner T. The impact of atopic dermatitis on work life—a systematic review. J Eur Acad Dermatol Venereol. 2018;32:23–38.

Silverberg JI, Gelfand JM, Margolis DJ, Boguniewicz M, Fonacier L, Grayson MH, et al. Patient-burden and quality of life in atopic dermatitis in US adults: a population-based cross-sectional study. Ann Allergy Asthma Immunol. 2018;3:340–7.

Steinke S, Beikert FC, Langenbruch A, Fölster-Holst R, Ring J, Schmitt J, et al. Measurement of healthcare quality in atopic dermatitis—development and application of a set of quality indicators. J Eur Acad Dermatol Venereol. 2018;12:2237–2243

Yaghmaie P, Koudelka CW, Simpson EL. Mental health comorbidity in patients with atopic dermatitis. J Allergy Clin Immunol. 2013;131:428–33.

Finlay AY, Khan GK. Dermatology Life Quality Index (DLQI)—a simple practical measure for routine clinical use. Clin Exp Dermatol. 1994;19:210–6.

Chren MM, Lasek RJ, Flocke SA, Zyzanski SJ. Improved discriminative and evaluative capability of a refined version of Skindex, a quality-of-life instrument for patients with skin diseases. Arch Dermatol. 1997;133:1433–40.

Whalley D, McKenna SP, Dewar AL, Erdman RA, Kohlmann T, Niero M, et al. A new instrument for assessing quality of life in atopic dermatitis: international development of the Quality of Life Index for Atopic Dermatitis (QoLIAD). Br J Dermatol. 2004;150:274–83.

Kiebert G, Sorensen SV, Revicki D, Fagan SC, Doyle JJ, Cohen J, et al. Atopic dermatitis is associated with a decrement in health-related quality of life. Int J Dermatol. 2002;41:151–8.

Warschburger P, Buchholz HT, Petermann F. Psychological adjustment in parents of young children with atopic dermatitis: which factors predict parental quality of life? Br J Dermatol. 2004;150:304–11.

Lee SH, Lee SH, Lee SY, Lee B, Lee SH, Park YL. Psychological health status and health-related quality of life in adults with atopic dermatitis: a nationwide cross-sectional study in South Korea. Acta Derm Venereol. 2018;98:89–97.

Thyssen JP, Hamann CR, Linneberg A, Dantoft TM, Skov L, Gislason GH, et al. Atopic dermatitis is associated with anxiety, depression, and suicidal ideation, but not with psychiatric hospitalization or suicide. Allergy. 2018;73:214–20.

Dieris-Hirche J, Gieler U, Kupfer JP, Milch WE. Suicidal ideation, anxiety and depression in adult patients with atopic dermatitis. Hautarzt. 2009;60:641–6.

Wollenberg A, Barbarot S, Bieber T, Christen-Zaech S, Deleuran M, Fink-Wagner A, et al. Consensus-based European guidelines for treatment of atopic eczema (atopic dermatitis) in adults and children: part I. J Eur Acad Dermatol Venereol. 2018;32:657–82.

Wollenberg A, Barbarot S, Bieber T, Christen-Zaech S, Deleuran M, Fink-Wagner A, et al. Consensus-based European guidelines for treatment of atopic eczema (atopic dermatitis) in adults and children: part II. J Eur Acad Dermatol Venereol. 2018;32:850–78.

Pärna E, Aluoja A, Kingo K. Quality of life and emotional state in chronic skin disease. Acta Derm Venereol. 2015;95:312–6.

Dieris-Hirche J, Gieler U, Petrak F, Milch W, Te Wildt B, Dieris B, et al. Suicidal ideation in adult patients with atopic dermatitis: a German cross-sectional study. Acta Derm Venereol. 2017;97:1189–95.

Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67:361–70.

Ring J, Zink A, Arents BWM, Seitz IA, Mensing U, Schielein MC, et al. Atopic eczema: burden of disease and individual suffering—results from a large EU-study in adults. J Eur Acad Dermatol Venereol. 2019. https://doi.org/10.1111/jdv.15634

Charman CR, Venn AJ, Williams HC. The patient-oriented eczema measure: development and initial validation of a new tool for measuring atopic eczema severity from the patients’ perspective. Arch Dermatol. 2004;140:1513–9.

Spuls PI, Gerbens LA, Simpson E, Apfelbacher CJ, Chalmers JR, Thomas KS, et al. POEM a core instrument to measure symptoms in clinical trials: a HOME statement. Br J Dermatol. 2017;4:979–84.

Charman CR, Venn AJ, Ravenscroft JC, Williams HC. Translating Patient-Oriented Eczema Measure (POEM) scores into clinical practice by suggesting severity strata derived using anchor-based methods. Br J Dermatol. 2013;6:1326–32.

Lauffer F, Ring J. Target-oriented therapy: emerging drugs for atopic dermatitis. Expert Opin Emerg Drugs. 2016;21:81–9.

Zink A, Gensbaur A, Zirbs M, Seifert F, Suarez IL, Mourantchanian V, et al. Targeting IgE in severe atopic dermatitis with a combination of Immunoadsorption and Omalizumab. Acta Derm Venereol. 2016;96:72–6.

Ruiz-Villaverde R, Dominguez-Cruz J, Armario-Hita JC, Martinez-Pilar L, Alcantara-Luna S, Dupilumab P‑RJJ. Short-term effectiveness and security in real clinical practice. A retrospective multicentric study. J Eur Acad Dermatol Venereol. 2019;1:e21–2.

Bieber T, D’Erme AM, Akdis CA, Traidl-Hoffmann C, Lauener R, Schäppi G, et al. Clinical phenotypes and endophenotypes of atopic dermatitis: where are we, and where should we go? J Allergy Clin Immunol. 2017;139:58–64.

Scheerer C, Eyerich K. Pathogenesis of atopic dermatitis. Hautarzt. 2018;69:191–6.

Subramanian I, Singh VK, Jere A. Elucidating mechanistic insights into drug action for atopic dermatitis: a systems biology approach. Bmc Dermatol. 2018;18:3.

Werfel T, Wollenberg A, Pumnea T, Heratizadeh A. New aspects in systemic treatment of atopic dermatitis. Hautarzt. 2018;69:217–24.

Schielein MC, Tizek L, Rotter M, Konstantinow A, Biedermann T, Zink A. Guideline-compliant prescription of biologicals and possible barriers in dermatological practices in Bavaria. J Eur Acad Dermatol Venereol. 2018;32:978–84.

Heratizadeh A, Werfel T, Gieler U, Kupfer J. Arbeitsgemeinschaft Neurodermitisschulung für Erwachsene (ARNE). [Patient education for adults with atopic dermatitis according to the ARNE concept. Hautarzt. 2018;69:225–31.

Lewis-Jones S. Quality of life and childhood atopic dermatitis: the misery of living with childhood eczema. Int J Clin Pract. 2006;60:984–92.

Tan J, Steinhoff M, Bewley A, Rosacea GU. Beyond the visible online report. 2019. http://hosted.bmj.com/rosaceabeyondthevisible . Accessed 04.2019.

Hongbo Y, Thomas CL, Harrison MA, Salek MS, Finlay AY. Translating the science of quality of life into practice: what do dermatology life quality index scores mean? J Invest Dermatol. 2005;4:659–64.