Associations between relationship support and psychological reactions of participants and partners to BRCA1 and BRCA2 testing in a clinic-based sample

Ford D, Easton D, Stratton M, et al.: Genetic heterogeneity and penetrance of the BRCA1 and BRCA2 genes in breast cancer families.American Journal of Human Genetics. 1998,62:676–689.

Struewing J, Hartge P,Wacholder S, et al.: The risk of cancer associated with specific mutations of BRCA1 and BRCA2 among Ashkenazi Jews.New England Journal of Medicine.1997,336:1401–1408.

Ford D, Easton DS, Bishop DT, et al.: Risks of cancer in BRCA1-mutation carriers.Lancet.1994,343:692–695.

Easton D, Ford D, Bishop T, Consortium TBCL: Breast and ovarian cancer incidence BRCA1 mutations carriers.American Journal of Human Genetics.1995,56:265–271.

Appleton S, Fry A, Rees G, Rush R, Cull A: Psychosocial effects of living with an increased risk of breast cancer: An exploratory study using telephone focus groups.Psycho-Oncology. 2000,9:511–521.

Croyle RT, Smith KR, Botkin JR, Baty B, Nash J: Psychological responses to BRCA1 mutation testing: Preliminary findings.Health Psychology.1997,16:63–72.

Lerman C, Croyle RT: Emotional and behavioral responses to genetic testing for susceptibility to cancer.Oncology.1996,10:191–202.

Coyne JC, Kruus L, Kagee A, Thompson R, Palmer S: Benign mental health consequences of screening for mutations of BRCA1/BRCA2.American Journal of Medical Genetics. 2002,107:346–347.

Dorval M, Patenaude AF, Schneider KA, et al.: Anticipated versus actual emotional reactions to disclosure of results of genetic tests for cancer susceptibility: Findings fromp53 andBRCA1 testing programs.Journal of Clinical Oncology. 2000,18:2135–2142.

Di Prospero L, Seminsky M, Honeyford J, et al.: Psychosocial issues following a positive result of genetic testing for BRCA1 and BRCA2 mutations: Findings from a focus group and a needs-assessment survey.Canadian Medical Association Journal. 2001,164:1005–1009.

Schwartz M, Peshkin B, Hughes C, et al.: Impact of BRCA1/BRCA2 mutation testing on psychologic distress in a clinic-based sample.Journal of Clinical Oncology. 2002,20:514–520.

Cella D, Hughes C, Peterman A, et al.: A brief assessment of concerns associated with genetic testing for cancer: The multidimensional impact of cancer risk assessment (MICRA) questionnaire.Health Psychology. 2002,21(6): 564–572.

Smith KR, West JA, Croyle RT, Botkin JR: Familial context of genetic testing for cancer susceptibility: Moderating effect of siblings’ test results on psychological distress one to two weeks after BRCA1 mutation testing.Cancer Epidemiology, Biomarkers & Prevention.1999,8:385–392.

Houfek J, Atwood J, Schaeffer G, Reiser G: Womens’ use of coping strategies while waiting for genetic testing results. The Annual Meeting of the American Society of Preventive Oncology, 2000.

Tercyak K, Hughes C, Main C, et al.: Parental communication of BRCA1/2 genetic test results to children.Patient Education and Counseling. 2001,42:213–224.

Hughes C, Lerman C, Schwartz M, et al.: All in the Family: Evaluation of the process and content of sisters’ communication about BRCA1 and BRCA2 genetic test results.American Journal of Medical Genetics. 2002,107:143–150.

Blood R, Wolfe D:Husbands and Wives: The Dynamics of Married Living. Glencoe, IL: Free Press, 1960.

Burke RJ, Weir T: Marital helping relationships: The moderators between stress and well-being.The Journal of Psychology. 1977,95:121–130.

Harrison J, Maguire P, Pitceathly C: Confiding in crisis: Gender differences in pattern of confiding among cancer patients.Social Science Medicine. 1995,41:255–1260.

Dehle C, Larsen D, Landers JE: Social support in marriage.The American Journal of Family Therapy. 2001,29:307–324.

Julian D, Markman H: Social support and social networks as determinants of individual and marital outcomes.Journal of Social and Personal Relationships. 1991,8:549–568.

Pasch L, Bradbury T: Social support, conflict and development of marital dysfunction.Journal of Consulting and Clinical Psychology. 1998,66:219–230.

Codori A, Brandt J: Psychological costs and benefits of predictive testing for Huntington’s disease.American Journal of Medical Genetics (Neuropsychiatric Genetics).1994,54:174–184.

Craufurd D, Kerzin-Storrar L: Long term adjustment after predictive testing for HD [Abstract]. The World Federation of Neurology Research Group on Huntingtons Chorea, Boston, MA: August 1993.

Quaid K, Wesson M: Exploration of the effects of predictive testing for Huntington Disease on intimate relationships.American Journal of Medical Genetics. 1995,57:46–51.

Tibben A, Frets P, van de Kamp J, et al.: On attitudes and appreciation 6 months after predictive DNA testing for Huntington’s Disease in the Dutch Program.American Journal of Medical Genetics. 1993,48:103–111.

Coyne JC, Smith DAF: Couples coping with a myocardial infarction: A contextual perspective on wives’ distress.Journal of Personality and Social Psychology. 1991,61(3):404–441.

Manne S, Dougherty J, Veach S, Kless R: Hiding worries from one’s spouse: Protective buffering among cancer patients and their spouses.Cancer Research, Therapy and Control. 1999,8:175–188.

Manne S, Pape S, Taylor K, Dougherty J: Spouse support, coping and mood among individuals with cancer.Annals of Behavorial Medicine. 1999,21(2):111–121.

Hays J, Steffens D, Flint E, Bosworth H, George L: Does social support buffer functional decline in elderly patients with unipolar depression?America Journal of Psychiatry. 2001;158(11):1850–1855.

Koopman C, Hermanson K, Diamond S, Angell K, Spiegel D: Social support, life stress, pain and emotional adjustment to advanced breast cancer.Psycho-Oncology. 1998,7:101–111.

Olstad R, Sexton H, Sogaard AJ: The Finnmark Study. A prospective population study of the social support buffer hypothesis, specific stressors and mental distress.Social Psychiatry Psychiatric Epidemiology. 2001,36(12):582–589.

Rook K: Social support versus companionship: effects on life stress, loneliness, and evaluations by others.Journal of Personal and Social Psychology.1987,52(6):1132–1147.

Wethington E, Kessler R: Perceived support, received support, and adjustment to stressful life events.Journal of Health and Social Behavior. 1986,27:78–89.

Ingersoll-Dayton B, Morgan D, Antonucci T: The effects of positive and negative social exchanges on aging adults.The journals of gerontology. Series B, Psychological sciences and social sciences. 1997,52(4):S190–199.

Butler L, Koopman C, Classen C, Speigel D: Traumatic stress, life events, and emotional support in women with metastatic breast cancer: Cancer-related traumatic stress symptoms associated with past and current stressors.Health Psychology. 1999,18(6):555–560.

Manne SL, Taylor KL, Dougherty J, Kemeny N: Supportive and negative responses in the partner relationship: Their association with psychological adjustment among individuals with cancer.Journal of Behavioral Medicine.1997,20(2):101–125.

Horowitz M, Wilner N, Alvarez W: Impact of events scale: A measure of subjective stress.Psychosomatic Medicine. 1979,41:209–218.

Derogotis L:BSI-18 Administration, Scoring and Procedures Manual. NCS Pearson, Inc. Minneapolis, MN, 2001.

Manne S, Schnoll R: Measuring supportive and unsupportive responses during cancer treatment: A factor analytic assessment of the partner responses to cancer inventory.Journal of Behavioral Medicine. 2001,24:297–322.

Julian-Reynier C, Eisinger F, Chabal F, et al.: Disclosure to the family of breast/ovarian cancer genetic test results. Patients’ Willingness and associated factors.American Journal of Medical Genetics. 2000,94:13–18.

Dunkel-Schetter C, Skokan L: Determinants of social support provision in personal relationships.Journal of Social and Personal Relationships. 1990,7:437–450.

Hobfoll S, Vaux A: Social support: Social resources and social context. In Goldberger L, Breznitz S (eds),Handbook of Stress. New York: The Free Press, 1993, 685–705.

Ell K, Nishimoto R, Mantell J, Hamovitch M: Longitudinal analysis of psychological adaptation among family members of patients with cancer.Journal of Psychosomatic Research. 1988,32:429–438.

Douglass LG: Reciprocal support in the context of cancer: Perspectives of the patient and spouse.Oncology Nursing Forum. 1997,24(9):1529–1536.