Advance Care Planning Among Older Adults With Advanced Non–Dialysis-Dependent CKD and Their Care Partners: Perceptions Versus Reality?

Kidney Medicine - Tập 2 - Trang 116-124 - 2020
Tira Oskoui1, Renuka Pandya1, Daniel E. Weiner2,3, John B. Wong2, Susan Koch-Weser4, Keren Ladin1,5,6
1Research on Ethics, Aging, and Community Health (REACH Lab), Boston, MA
2Department of Medicine, Tufts Medical Center, Boston, MA
3William B Schwartz MD Division of Nephrology, Tufts Medical Center, Boston, MA
4Department of Public Health & Community Medicine, Tufts University School of Medicine, Boston, MA
5Department of Occupational Therapy, Tufts University, Medford, MA
6Department of Community Health, Tufts University, Medford, MA

Tài liệu tham khảo

Berger, 2016, Cognition in chronic kidney disease: a systematic review and meta-analysis, BMC Med, 14, 206, 10.1186/s12916-016-0745-9 Davison, 2007, The creation of an advance care planning process for patients with ESRD, Am J Kidney Dis, 49, 27, 10.1053/j.ajkd.2006.09.016 Kurella, 2005, Chronic kidney disease and cognitive impairment in the elderly: the Health, Aging, and Body Composition Study, J Am Soc Nephrol, 16, 2127, 10.1681/ASN.2005010005 Wachterman, 2019, One-year mortality after dialysis initiation among older adults, JAMA Intern Med, 179, 987, 10.1001/jamainternmed.2019.0125 Saran, 2019, US Renal Data System 2018 Annual Data Report: epidemiology of kidney disease in the United States, Am J Kidney Dis, 73, A7, 10.1053/j.ajkd.2019.01.001 Wong, 2012, Treatment intensity at the end of life in older adults receiving long-term dialysis, Arch Intern Med, 172, 661, 10.1001/archinternmed.2012.268 Wong, 2019, Care practices for patients with advanced kidney disease who forgo maintenance dialysis, JAMA Intern Med, 179, 305, 10.1001/jamainternmed.2018.6197 Sudore, 2017, Defining advance care planning for adults: a consensus definition from a multidisciplinary Delphi panel, J Pain Symptom Manage, 53, 821, 10.1016/j.jpainsymman.2016.12.331 Ladin, 2017, “End-of-life care? I’m not going to worry about that yet.” Health literacy gaps and end-of-life planning among elderly dialysis patients, Gerontologist, 58, 290, 10.1093/geront/gnw267 Brinkman-Stoppelenburg, 2014, The effects of advance care planning on end-of-life care: a systematic review, Palliat Med, 28, 1000, 10.1177/0269216314526272 Briggs, 2004, Patient-centered advance care planning in special patient populations: a pilot study, J Prof Nurs, 20, 47, 10.1016/j.profnurs.2003.12.001 Detering, 2010, The impact of advance care planning on end of life care in elderly patients: randomised controlled trial, BMJ, 340, c1345, 10.1136/bmj.c1345 Kirchhoff, 2012, Effect of a disease-specific advance care planning intervention on end-of-life care, J Am Geriatr Soc, 60, 946, 10.1111/j.1532-5415.2012.03917.x Song, 2015, Advance care planning and end-of-life decision making in dialysis: a randomized controlled trial targeting patients and their surrogates, Am J Kidney Dis, 66, 813, 10.1053/j.ajkd.2015.05.018 Hines, 1999, Dialysis patients' preferences for family-based advance care planning, Ann Intern Med, 130, 825, 10.7326/0003-4819-130-10-199905180-00016 Holley, 1997, Factors influencing dialysis patients' completion of advance directives, Am J Kidney Dis, 30, 356, 10.1016/S0272-6386(97)90279-1 Luckett, 2014, Advance care planning for adults with CKD: a systematic integrative review, Am J Kidney Dis, 63, 761, 10.1053/j.ajkd.2013.12.007 Ladin, 2016, Engagement in decision-making and patient satisfaction: a qualitative study of older patients' perceptions of dialysis initiation and modality decisions, Nephrol Dial Transplant, 32, 1394 Davison, 2006, Hope and advance care planning in patients with end stage renal disease: qualitative interview study, BMJ, 333, 886, 10.1136/bmj.38965.626250.55 McMahan, 2013, Advance care planning beyond advance directives: perspectives from patients and surrogates, J Pain Symptom Manage, 46, 355, 10.1016/j.jpainsymman.2012.09.006 Sinuff, 2015, Improving end-of-life communication and decision making: the development of a conceptual framework and quality indicators, J Pain Symptom Manage, 49, 1070, 10.1016/j.jpainsymman.2014.12.007 Tangri, 2016, Multinational assessment of accuracy of equations for predicting risk of kidney failure: a meta-analysis, JAMA, 315, 164, 10.1001/jama.2015.18202 Burt, 1984, Network items and the general social survey, Social Networks, 6, 293, 10.1016/0378-8733(84)90007-8 Hays, 1994, Development of the Kidney Disease Quality of Life (KDQOL TM) instrument, Qual Life Res, 3, 329, 10.1007/BF00451725 Spector, 1998, Combining activities of daily living with instrumental activities of daily living to measure functional disability, J Gerontol B Psychol Sci Soc Sci, 53, S46, 10.1093/geronb/53B.1.S46 Curtisa, 1999, The quality of patient-doctor communication about end-of-life care: a study of patients with advanced AIDS and their primary care clinicians, AIDS, 13, 1123, 10.1097/00002030-199906180-00017 Saha, 2003, Patient–physician relationships and racial disparities in the quality of health care, Am J Public Health, 93, 1713, 10.2105/AJPH.93.10.1713 2010 Sellars, 2018, An interview study of patient and caregiver perspectives on advance care planning in ESRD, Am J Kidney Dis, 71, 216, 10.1053/j.ajkd.2017.07.021 Couchoud, 2016, Supportive care: time to change our prognostic tools and their use in CKD, Clin J Am Soc Nephrol, 11, 1892, 10.2215/CJN.12631115 Holley, 2012, Advance care planning in CKD/ESRD: an evolving process, Clin J Am Soc Nephrol, 7, 1033, 10.2215/CJN.00580112 Enzinger, 2015, Outcomes of prognostic disclosure: associations with prognostic understanding, distress, and relationship with physician among patients with advanced cancer, J Clin Oncol, 33, 3809, 10.1200/JCO.2015.61.9239 Ladin, 2018, Discussing conservative management with older patients with CKD: an interview study of nephrologists, Am J Kidney Dis, 71, 627, 10.1053/j.ajkd.2017.11.011 Wendler, 2011, Systematic review: the effect on surrogates of making treatment decisions for others, Ann Intern Med, 154, 336, 10.7326/0003-4819-154-5-201103010-00008 Carson, 2017, Is the end in sight for the “don’t ask, don’t tell” approach to advance care planning?, Clin J Am Soc Nephrol, 12, 380, 10.2215/CJN.00980117 Silveira, 2010, Advance directives and outcomes of surrogate decision making before death, N Engl J Med, 362, 1211, 10.1056/NEJMsa0907901 Wong, 2016, Decisions about renal replacement therapy in patients with advanced kidney disease in the US Department of Veterans Affairs, 2000–2011, Clin J Am Soc Nephrol, 11, 1825, 10.2215/CJN.03760416 Combs, 2016, Working toward more effective advance care planning in patients with ESRD, Clin J Am Soc Nephrol, 11, 2107, 10.2215/CJN.10511016