A short form of the neonatal intensive care unit family needs inventory

Jornal de Pediatria - Tập 92 - Trang 73-80 - 2016
Elisabete Alves1, Milton Severo1,2, Mariana Amorim1,3, Catarina Grande4, Susana Silva1
1EpiUnit - Institute of Public Health, Universidade do Porto, Porto, Portugal
2Department of Clinical Epidemiology, Predictive Medicine and Public Health, Medical School, Universidade do Porto, Porto, Portugal
3Global Public Health Doctoral Programme, Institute of Public Health, Universidade do Porto, Portugal
4Faculty of Psychology and Education Sciences, Universidade do Porto, Porto, Portugal

Tài liệu tham khảo

Saigal, 2008, An overview of mortality and sequelae of preterm birth from infancy to adulthood, Lancet, 371, 261, 10.1016/S0140-6736(08)60136-1 Howson, 2012 Lasiuk, 2013, Unexpected: an interpretive description of parental traumas’ associated with preterm birth, BMC Pregnancy Childbirth, 13, S13, 10.1186/1471-2393-13-S1-S13 Rich-Edwards, 2013, Pregnancy characteristics and women's future cardiovascular health: an underused opportunity to improve women's health?, Epidemiol Rev, 36, 57, 10.1093/epirev/mxt006 Flacking, 2006, Trustful bonds: a key to becoming a mother and to reciprocal breastfeeding. Stories of mothers of very preterm infants at a neonatal unit, Soc Sci Med, 62, 70, 10.1016/j.socscimed.2005.05.026 Padden, 1997, Maternal experiences of preterm birth and neonatal intensive care, J Reprod Infant Psychol, 15, 121, 10.1080/02646839708404539 de Carvalho, 2009, Social representation of fathers regarding their premature child in the Neonatal Intensive Care Unit, Rev Bras Enferm, 62, 734 Arockiasamy, 2008, Fathers’ experiences in the neonatal intensive care unit: a search for control, Pediatrics, 121, e215, 10.1542/peds.2007-1005 Bernaix, 2006, The NICU experience of lactation and its relationship to family management style, MCN Am J Matern Child Nurs, 31, 95, 10.1097/00005721-200603000-00008 Pepper, 2012, More than information: a qualitative study of parents’ perspectives on neonatal intensive care at the extremes of prematurity, Adv Neonatal Care, 12, 303, 10.1097/ANC.0b013e318265b3d5 Staniszewska, 2012, The POPPY study: developing a model of family-centred care for neonatal units, Worldviews Evid Based Nurs, 9, 243, 10.1111/j.1741-6787.2012.00253.x Jubinville, 2012, Symptoms of acute stress disorder in mothers of premature infants, Adv Neonatal Care, 12, 246, 10.1097/ANC.0b013e31826090ac Ward, 2001, Perceived needs of parents of critically ill infants in a neonatal intensive care unit (NICU), Paediatr Nurs, 27, 281 Jacono, 1990, Comparison of perceived needs of family members between registered nurses and family members of critically ill patients in intensive care and neonatal intensive care units, Heart Lung, 19, 72 Dickson-Swift, 2008 Alves, 2014, Parenting roles and knowledge in neonatal intensive care units: protocol of a mixed methods study, BMJ Open, 4, e005941, 10.1136/bmjopen-2014-005941 American Academy of Pediatrics Committee on Fetus And Newborn, 2012, Levels of neonatal care, Pediatrics, 130, 587, 10.1542/peds.2012-1999 World Health Organization, 1992 Cortina, 1993, What is coefficient alpha? An examination of theory and applications, J Appl Psychol, 78, 98, 10.1037/0021-9010.78.1.98 Hu, 1999, Cutoff criteria for fit indexes in covariance structure analysis: conventional criteria versus new alternatives, Struct Equ Model, 6, 1, 10.1080/10705519909540118 Heermann, 2005, Mothers in the NICU: outsider to partner, Paediatr Nurs, 31, 176 Reeves, 2006, Parents’ experiences of negotiating care for their technology-dependent child, J Child Health Care, 10, 228, 10.1177/1367493506066483 Sawyer, 2013, Parents’ experiences and satisfaction with care during the birth of their very preterm baby: a qualitative study, BJOG, 120, 637, 10.1111/1471-0528.12104 Greisen, 2009, Parents, siblings and grandparents in the neonatal intensive care unit. A survey of policies in eight European countries, Acta Paediatr, 98, 1744, 10.1111/j.1651-2227.2009.01439.x Skene, 2012, Parental involvement in neonatal comfort care, J Obstet Gynecol Neonatal Nurs, 41, 786, 10.1111/j.1552-6909.2012.01393.x Frost, 2007, What is sufficient evidence for the reliability and validity of patient-reported outcome measures?, Value Health, 10, S94, 10.1111/j.1524-4733.2007.00272.x Bell, 2004, Intensive performances of mothering: a sociological perspective, Qual Res, 4, 45, 10.1177/1468794104041107 Arendell, 2000, Conceiving and investigating motherhood: the decade's scholarship, J Marriage Fam, 62, 1192, 10.1111/j.1741-3737.2000.01192.x Bialoskurski, 2002, The relationship between maternal needs and priorities in a neonatal intensive care environment, J Adv Nurs, 37, 62, 10.1046/j.1365-2648.2002.02057.x Streiner, 2014, Recommendations for reporting the results of studies of instrument and scale development and testing, J Adv Nurs, 70, 1970, 10.1111/jan.12402