A pilot study of videotelephone-based support for newly diagnosed paediatric oncology patients and their families

Journal of Telemedicine and Telecare - Tập 14 Số 6 - Trang 315-321 - 2008
Mark Bensink1, Nigel R Armfield1, Helen Irving2, Andrew R. Hallahan2, Deborah Theodoros1,3, Trevor Russell1,3, Adrian Barnett4, Paul Scuffham5, Richard Wootton1
1Centre for Online Health, University of Queensland, Brisbane
2Paediatric Haematology, Oncology and Stem Cell Transplant Unit, Royal Children's Hospital, Brisbane
3School of Health and Rehabilitation Sciences, University of Queensland, Brisbane
4School of Public Health, Queensland University of Technology, Brisbane
5School of Medicine, Griffith University, Logan, Australia

Tóm tắt

As part of the preparation for a randomized controlled trial, we conducted a pilot study to investigate the feasibility of providing videotelephone-based support to a sample of families ( n = 8) with a child diagnosed with cancer, returning home for the first time after diagnosis and initial treatment. Seven of these families received support via videotelephone over a three-month period. Twenty videotelephone calls were made totalling 400 minutes (median 21 min, IQR 16–24). All videotelephone calls involved the specialist nurse providing support to mothers (85%) or fathers (15%) and involved communicating directly with the patient in most of the calls (55%). Social workers were involved in three calls (15%). All families expressed satisfaction with services delivered in this way. There were few technical problems. The use of a hybrid approach to providing videotelephony, using the family home computer and Internet connection for video and the home telephone line for full-duplex audio, was less costly than the custom-made device used in past studies.

Từ khóa


Tài liệu tham khảo

10.1002/pon.761

10.1002/pon.530

10.1093/jpepsy/25.2.79

10.1046/j.0966-0410.2001.00326.x

10.1002/ijc.10815

10.1016/0959-8049(95)00475-0

10.1007/s00787-003-0352-0

10.1093/jpepsy/20.5.567

10.1258/135763306777889082

10.1258/1357633042614465

StewartPW. Protocol submission. See http://www.cincinnatichildrens.org/research/cores/gcrc/protocols/Small_or_Pilot_Studies.htm (last checked 29 June 2008)

10.1186/1472-6963-7-38

RealVNC. See http://www.realvnc.com/ (last checked 29 June 2008)

OpenVPN. See http://openvpn.net/index.php (last checked 9 June 2008)

Drummond MF, 2005, Methods for the Economic Evaluation of Health Care Programmes, 3, 10.1093/oso/9780198529446.001.0001

Doolittle G, 1997, Telemed Today, 5, 18

10.1258/1357633001934645

Laila M, 2008, Stud Health Technol Inform, 136, 39

10.1258/jtt.2007.070601

10.1258/135763307779701149

10.1258/jtt.2008.070107

TechTarget. Videotelephony. See http://searchunifiedcommunications.techtarget.com/sDefinition/0,sid186_gci772533,00.html (last checked 29 June 2008)

10.1258/13576330260440745

10.1258/135763303322596228

Australian Bureau of Statistics. Outcomes of ABS views on remoteness consultation, Australia. Canberra: ABS, 2001. See http://www.abs.gov.au/AUSSTATS/[email protected]/DetailsPage/1244.0.00.001Jun%202001? OpenDocument (last checked 29 June 2008)