A cross-sectional evaluation of home health service in patients with chronic neurologic diseases in a province of Turkey

Parkinson’s Disease Foundation Statistics on Parkinson’s. http://www.pdf.org/en/parkinson_statistics World Health Organization (2006) Neurological disorders: public health challenges. World Health Organization, Geneva Graham JE, Rockwood K, Beattie BL, Eastwood R, Gauthier S, Tuokko H, McDowell I (1997) Prevalence and severity of cognitive impairment with and without dementia in an elderly population. Lancet 349(9068):1793 Martens PJ, Fransoo R, Burland E, Burchill C, Prior HJ, Ekuma O (2007) Prevalence of mental illness and its impact on the use of home care and nursing homes: a population-based study of older adults in Manitoba. Can J Psychiatry 52(9):581 Tellez-Zenteno JF, Pondal-Sordo M, Matijevic S, Wiebe S (2004) National and regional prevalence of self-reported epilepsy in Canada. Epilepsia 45(12):1623–1629 Evans C, Beland S-G, Kulaga S, Wolfson C, Kingwell E, Marriott J, Koch M, Makhani N, Morrow S, Fisk J, Dykeman J, Jetté N, Pringsheim T, Marrie R (2013) Incidence and prevalence of multiple sclerosis in the Americas: a systematic review. Neuroepidemiology 40(3):195–210 Marrie RA, Yu BN, Leung S, Elliott L, Caetano P, Warren S, Wolfson C, Patten SB, Svenson LW, Tremlett H, Fisk J, Blanchard JF (2012) CIHR team in the epidemiology and impact of comorbidity on multiple sclerosis: the utility of administrative data for surveillance of comorbidity in multiple sclerosis: a validation study. Neuroepidemiology 40(2):85–92 Moghal S, Rajput A, Meleth R, D’Arcy C, Rajput R (1995) Prevalence of movement disorders in institutionalized elderly. Neuroepidemiology 14(6):297–300 Oskoui M, Coutinho F, Dykeman J, Jetté N, Pringsheim T (2013) An update on the prevalence of cerebral palsy: a systematic review and meta-analysis. Dev Med Child Neurol 55(6):509–519 Steeves TD, Day L, Dykeman J, Jetté N, Pringsheim T (2012) The prevalence of primary dystonia: a systematic review and meta-analysis. Mov Disord 27(14):1789–1796 Knight T, Steeves T, Day L, Lowerison M, Jetté N, Pringsheim T (2012) Prevalence of tic disorders: a systematic review and meta-analysis. Pediatr Neurol 47(2):77–90 Pringsheim T, Wiltshire K, Day L, Dykeman J, Steeves T, Jetté N (2012) The incidence and prevalence of Huntington’s disease: a systematic review and meta-analysis. Mov Disord 27(9):1083–1091 Home-Based and Long-Term Care (1999) World Health Organization. s.1. http://whqlibdoc.who.int/trs/WHO_TRS_898.pdf. 06 May 2011 Ozer O, Santas F (2012) Home care services provided by the public sector and its finance. ACU Sağlık Bil Derg 3:96–103 www.tahud.org.tr/download?tip=sunumlar&id=8. Accessed 06 May 2011 www.tuik.gov.tr/PreHaberBultenleri.do?id=18620. 11 Nisan 2015 www.tuik.gov.tr/PreHaberBultenleri.do?id=18855. 30 Mar 2015 http://turkiyebeyinyili.org/wp-content/uploads/2014/01/noroloji_bulten.pdf Delivering of Home Care Services Regulation, Ankara. Official Government Newspaper. March 10th 2005, number 25751. www.sp.gov.tr/upload/xSPRapor/files/43V9k+aspb-faaliyetraporu2014.pdf Bots ML, Looman SJ, Koudstaal PJ, Hofman A, Hoes AW, Grobbee DE (1996) Prevalence of stroke in the general population (the rotterdam study). Stroke 27:1499–1501 Kutluk K (2004) İskemik İnme. Nobel Tıp Kitabevi 19:135–145 The National Burden of Disease and Cost–Effectiveness Project Report (2010) Erişim tarihi 2010 July 20. Available from http://www.hm.saglik.gov.tr/pdf/nbd/raporlar/hastalıkyukuTR.pdf Kumral E (2009) Epidemiology of cerebrovascular disease. In: Balkan S (ed) Cerebrovascular Diseases. Güneş Medical Books, Ankara, pp 37–50 Ropper AH, Brown RH (2011) In: Emre M (ed) Adams Principles of Neurology (Turkish), 9th edn, Güneş Medical Books, Ankara, p 786 Han B, Haley WE (1999) Family caregiving for patients with stroke: review and analysis. Stroke 30:1478–1485 Van den Heuvel ET, de Witte LP, Schure LM, Sanderman R, Meyboom-de Jong B (2001) Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clin Rehabil 15:669–677 Zarit SH, Reever KE, Bach-Peterson J (1980) Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 20:649–655 Ozlu A, Yıldız M, Aker TA (2009) Reliability and validity study on the Zarit Caregiver burden scale. Arch Neuropsychiatry 46(Supplement):38–42 Atagün Mİ, Balaban ÖD, Atagün Z, Elagöz M, Özpolat A (2011) Kronik hastalıklarda bakım veren yükü. Piskiyatride Güncel Yaklaşımlar 3(3):513–552 Kasim AB, Sayan S (2014) Home health services in the 3rd year; analysis of the 2013 datas. Oral presentation S-023. 13. National Congress of Family Medicine. 23–27 April 2014, Antalya–Turkey Söderhamn U, Dale B, Sundsli K, Söderhamn O (2012) Nutritional screening of older home-dwelling Norwegians: a comparison between two instruments. Clin Interv Aging 7:383–391 Vellas B, Guigoz Y, Garry PJ, Nourhashemi F, Bennahum D, Lauque S, Albarede JL (1999) The mini nutritional assessment (MNA) and its use in grading the nutritional state of elderly patients. Nutrition 15:116e22 Camina MMA, Barrera OS, Domínguez RL, Couceiro MC, de Mateo SB, del Redondo RMP (2012) Presence of malnutrition and risk of malnutrition in institutionalized elderly with dementia according to the type and deterioration stage. Nutr Hosp. 27(2):434–440 Tsai AC, Shih CL (2009) A population-specific mini-nutritional assessment can effectively grade the nutritional status of stroke rehabilitation patients in Taiwan. J Clin Nurs 18(1):82–88 Cankurtaran M, Saka B, Sahin S et al (2013) Turkish nursing homes and care homes nutritional status assessment project (THN-malnutrition). Eur Geriatr Med 4:329–334 Appelros P, Stegmayr B, Terént A (2009) Sex differences in stroke epidemiology. Stroke 40:1082 Sacco RL (2001) Stroke risk factors: an overview. In: Norris JW, Hachinski V (eds) Stroke prevention. Oxford University Press, New York, pp 17–42 Andersen KK, Olsen TS, Dehlendorff C, Kammersgaard LP (2009) Hemorrhagic and ischemic strokes compared. Stroke 40:2068–2072 Harmsen P, Wilhelmsen L, Jacobsson A (2009) Stroke Incidence and mortality Rates 1987 to 2006 related to secular trends of cardiovascular risk factors in Gothenburg, Sweden. Stroke 40(8):2691–2697 Brandstater ME (2005) Stroke rehabilitation. In: DeLisa JA, Gans BM, Walsh NE (eds) Physical Medicine & Rehabilitation principles and practice, 4th edn. Lippincott Williams & Wilkins, Philadelphia, pp 1655–1676 Ilse IB, Feys H, de Wit L, Putman K, de Weerdt W (2008) Stroke caregivers’ strain: prevalence and determinants in the first 6 months after stroke. Disabil Rehabil 30(7):523–530 Visser-Meily A, Post M, van de Port I, Maas C, Forstberg-Wärleby G, Lindeman E (2009) Psychosocial functioning of spouses of patients with stroke from initial inpatient rehabilitation to 3 years post stroke course and relations with coping strategies. Stroke 40(4):1399–1404 op Reimer WJMS, de Haan RJ, Pijnenborg JMA, Limburg M, van den Bos GAM (1998) Assessment of burden in partners of stroke patients with the sense of competence questionnaire. Stroke 29:373–379 Danila O, Hirdes JP, Maxwell CJ, Marrie RA, Patten S, Pringsheim T, Jetté N (2014) Prevalence of neurological conditions across the continuum of care based on interRAI assessments. BMC Health Serv Res 14:29 Kucukguclu O, Esen A, Yener G (2009) the reliability and validity of the caregiver burden inventory in Turkey. J Neurol Sci (Turkish) 26:60–73 McCullagh E, Brigstocke G, Donaldson N, Karla L (2005) Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke 36:2181–2186 Schreiner AS, Morimoto T, Arai Y, Zarit S (2006) Assessing family caregiver’s mental health using a statistically derived cut-off score for the Zarit Burden Interview. Aging Ment Health 10(2):107–111 Sales E (2003) Family burden and quality of life. Qual Life Res 2:33–41 Morimoto T, Schreiner AS, Asano H (2003) Caregiver burden and health- related quality of life among Japanese stroke caregivers. Age Ageing 32:218–223 Rinaldi P, Spazzafumo L, Mastriforti R (2005) Study group on brain aging of the Italian society of gerontology and geriatrics. Predictors of high level of burden and distress in caregivers of demented patients: results of an Italian multicenter study. Int J Geriatr Psychiatry 20(2):168–174 Pang FC, Chow TW, Cummings JL et al (2002) Effect of neuropsychiatric symptoms of Alzheimer’s disease on Chinese and American caregivers. Int J Geriatr Psychiatry 17(1):29–34 Aşiret GD, Kapucu S (2013) Burden of caregivers of stroke patients. Turk J Neurol 19:5–10 Chatcheydang J (2005) Factor influencing health-related quality of life of female caregivers of elderly stroke survivors in Thailand (Doctor’s thesis). Rochester University, Rochester Draper BM, Poulos CJ, Cole AM, Poulos RG, Ehrlich F (1992) A comparison of caregivers for elderly stroke and dementia victims. J Am Geriatr Soc 40:896–901 Van Exel NJ, Koopmanschap MA, van den Berg B, Brouwer WB, van den Bos GA (2005) Burden of informal caregiving for stroke patients. Identification of caregivers at risk of adverse health effects. Cerebrovasc Dis 19:11–17 Berg A, Palomaki H, Lonnqvist J, Lehtihalmes M, Kaste M (2005) Depression among caregivers of stroke survivors. Stroke 36:639–643 Bugge C, Alexander H, Hagen S (1999) Stroke patients’ informal caregivers. Patient, caregiver, and service factors that affect caregiver strain. Stroke 30:1517–1523 Forsberg-Warleby G, Moller A, Blomstrand C (2004) Psychological well-being of spouses of stroke patients during the first year after stroke. Clin Rehabil 18:430–437 Kalra L, Evans A, Perez I, Melbourn A, Patel A, Knapp M, Donaldson N (2004) Training carers of stroke patients: randomised controlled trial. BMJ 328:1099–1101