Cultural issues: Perspectives and experiences of patients with dissociative seizures in Argentina
Tài liệu tham khảo
Reuber, 2019, Dissociative (non-epileptic) seizures : tackling common challenges after the diagnosis, Pract Neurol, 19, 332, 10.1136/practneurol-2018-002177
Reuber, 2016, Nonepileptic seizures – subjective phenomena, Handb Clin Neurol, 139, 283, 10.1016/B978-0-12-801772-2.00025-4
Robson, 2017, Blaming, shaming, humiliation”: stigmatizing medical interactions among people with non-epileptic seizures, Welcome Open Res, 2:55
Lafrance, 2013, Minimum requirements for the diagnosis of psychogenic nonepileptic seizures: a staged approach: a report from the International League Against Epilepsy Nonepileptic Seizures Task Force, Epilepsia, 54, 2005, 10.1111/epi.12356
Perez, 2016, Nonepileptic seizures: an updated review, CNS Spectr, 21, 239, 10.1017/S109285291600002X
Hendrickson, 2015, Thoughts, emotions, and dissociative features differentiate patients with epilepsy from patients with psychogenic nonepileptic spells (PNESs), Epilep Behav, 51, 158, 10.1016/j.yebeh.2015.07.016
Gates, 2002, Nonepileptic seizures: classification, coexistence with epilepsy, diagnosis, therapeutic approaches, and consensus, Epilep Behav, 3, 28, 10.1006/ebeh.2001.0310
Duncan, 2011, Newly presenting psychogenic nonepileptic seizures: incidence, population characteristics, and early outcome from a prospective audit of a first seizure clinic, Epilep Behav, 20, 308, 10.1016/j.yebeh.2010.10.022
Scévola, 2013, Psychiatric disorders in patients with psychogenic nonepileptic seizures and drug-resistant epilepsy: a study of an Argentine population, Epilep Behav, 29, 155, 10.1016/j.yebeh.2013.07.012
Areco Pico M.M., Sarudiansky M., Lanzillotti A.I., Tenreyro C., Kochen S.S.,D´Alessio L., Korman G.P. Trayectorias terapéuticas: análisis de un itinerario terapéutico de un paciente diagnosticado con crisis no epilépticas de origen psicóGeno. Scr Ethnol 2015;XXXVII:167–182.
Barrett-Naylor, 2018, The effectiveness and acceptability of a guided self-help Acceptance and Commitment Therapy (ACT) intervention for psychogenic nonepileptic seizures, Epilep Behav, 88, 332, 10.1016/j.yebeh.2018.09.039
Clegg, 2019, Self-compassion and adjustment in epilepsy and psychogenic nonepileptic seizures, Epilep Behav, 100, 10.1016/j.yebeh.2019.106490
Goldstein, 2020, Cognitive behavioral therapy for adults with dissociative seizures (CODES): a pragmatic, multicenter, randomized controlled trial, Lancet Psychiatry, 7, 491, 10.1016/S2215-0366(20)30128-0
Labudda, 2020, Outcome of CBT-based multimodal psychotherapy in patients with psychogenic nonepileptic seizures: a prospective naturalistic study, Epilep Behav, 106, 10.1016/j.yebeh.2020.107029
Lesser, 2003, Treatment and outcome of psychogenic nonepileptic seizures, Epilep Curr, 3, 198, 10.1046/j.1535-7597.2003.03601.x
Wiseman, 2015, New insights into psychogenic nonepileptic seizures 2011–2014, Seizure, 29, 69, 10.1016/j.seizure.2015.03.008
Myers, 2021, Using evidence-based psychotherapy to tailor treatment for patients with FND, Epilep Behav Rep, 16
Carton, 2003, Non-epileptic seizures : patients ’ understanding and reaction to the diagnosis and impact on outcome, Seizure, 1311, 287, 10.1016/S1059-1311(02)00290-X
Thompson, 2009, What is it like to receive a diagnosis of nonepileptic seizures?, Epilep Behav, 14, 508, 10.1016/j.yebeh.2008.12.014
Nordahl, 2010, Changing the diagnosis from epilepsy to PNES: patients’ experiences and understanding of their new diagnosis, Seizure, 19, 40, 10.1016/j.seizure.2009.11.001
Rawlings, 2016, What patients say about living with psychogenic nonepileptic seizures: a systematic synthesis of qualitative studies, Seizure, 41, 100, 10.1016/j.seizure.2016.07.014
Hagger, 2003, A meta-analytic review of the common-sense model of illness representations, Psychol Health, 18, 141, 10.1080/088704403100081321
Plug, 2010, Seizure, fit or attack the use of diagnostic labels by patients with epileptic or non-epileptic seizures, Appl Linguist, 31, 94, 10.1093/applin/amp012
Plug, 2011, Metaphors in the description of seizure experiences: common expressions and differential diagnosis, Lang Cogn, 3, 209, 10.1515/LANGCOG.2011.008
Canna, 2020, Dealing with the unknown. Functional neurological disorder (FND) and the conversion of cultural meaning, Social Sci Med Part B, 246
Kleinman, 1978, Concepts and a model for the comparison of medical systems as cultural systems, Social Sci Med Part B, 12, 85
Pretorius, 2016, Barriers and facilitators to reaching a diagnosis of PNES from the patients’ perspective: preliminary findings, Seizure, 38, 1, 10.1016/j.seizure.2016.03.007
Areco Pico, 2020, La experiencia de pacientes con crisis no epilépticas psicógenas: marcos interpretativos y de acción, Psicologia USP, 31, 1
Sarudiansky, 2017, What patients think about psychogenic nonepileptic seizures in Buenos Aires, Argentina: a qualitative approach, Seizure, 51, 14, 10.1016/j.seizure.2017.07.004
Wechsler, 2003
Hofmeijer, 2009
Braun, 2006, Using thematic analysis in psychology, Qual Res Psychol, 3, 77, 10.1191/1478088706qp063oa
Karterud, 2010, Changing the diagnosis from epilepsy to PNES: patients’ experiences and understanding of their new diagnosis, Seizure, 19, 40, 10.1016/j.seizure.2009.11.001
Fairclough, 2014, Understanding the perceived treatment needs of patients with psychogenic nonepileptic seizures, Epilep Behav, 31, 295, 10.1016/j.yebeh.2013.10.025
Dickinson, 2011, Patients diagnosed with nonepileptic seizures: their perspectives and experiences, Epilep Behav, 20, 454, 10.1016/j.yebeh.2010.12.034
Wyatt, 2014, The experience of adjusting to a diagnosis of non-epileptic attack disorder (NEAD) and the subsequent process of psychological therapy, Seizure, 23, 799, 10.1016/j.seizure.2014.06.012
Breier, 1998, Quality of life perception in patients with intractable epilepsy or pseudoseizures, Arch Neurol, 55, 660, 10.1001/archneur.55.5.660
Pretorius, 2015, Life after being diagnosed with psychogenic non-epileptic seizures (PNES): a South African perspective, Seizure, 30, 32, 10.1016/j.seizure.2015.05.008
Karterud, 2015, The impact of conveying the diagnosis when using a biopsychosocial approach: a qualitative study among adolescents and young adults with NES (non-epileptic seizures), Seizure, 24, 107, 10.1016/j.seizure.2014.09.006
Arain, 2016, Communicating the diagnosis of psychogenic nonepileptic seizures: the patient perspective, J Clinic Neurosci, 28, 67, 10.1016/j.jocn.2015.10.030
Malterud, 2001, A shared room of reflection where the patient's symptoms are valid sources of knowledge, Tidsskrift for den Norske Laegeforening: Tidsskrift for Praktisk Medicin, ny Raekke, 121, 3605
Album, 2008, Do diseases have a prestige hierarchy? A survey among physicians and medical students, Soc Sci Med, 66, 182, 10.1016/j.socscimed.2007.07.003
Baxter, 2012, Understanding patient perceptions following a psycho-educational intervention for psychogenic non-epileptic seizures, Epilep Behav, 23, 487, 10.1016/j.yebeh.2011.12.002
Brown, 2013, Emotional dysregulation, alexithymia, and attachment in psychogenic nonepileptic seizures, Epilep Behav, 29, 178, 10.1016/j.yebeh.2013.07.019
Cetrángolo, 2015, Financiamiento fragmentado, cobertura desigual y falta de equidad en el sistema de salud argentino, Rev Econ Polít Buenos Aires, 13, 145
Green, 2004, Illness representations among people with non-epileptic seizures attending a neuropsychiatry clinic: a qualitative study based on the self-regulation model, Seizure, 13, 331, 10.1016/j.seizure.2003.09.001
Pick, 2016, Emotion and dissociative seizures- a phenomenological analysis of patients’ perspectives, Epilep Behav, 56, 5, 10.1016/j.yebeh.2015.12.010
Stone, 2004, Illness beliefs and locus of control: a comparison of patients with pseudoseizures and epilepsy, J Psychosom Res, 57, 541, 10.1016/j.jpsychores.2004.03.013
Monzoni, 2011, How do neurologists discuss functional symptoms with their patients: a conversation analytic study, J Psychosom Res, 71, 377, 10.1016/j.jpsychores.2011.09.007
Korman, 2016, The establishment of cognitive behavioural therapy in Argentina, Aust Psychol, 55, 585, 10.1111/ap.12195
Korman, 2022, Cognitive behavioral therapy in Argentina, 31
Whitehead, 2015, Differences in relatives' and patients' illness perceptions in functional neurological symptom disorders compared with neurological diseases, Epilep Behav, 42, 159, 10.1016/j.yebeh.2014.10.031
Reuber, 2011, Psychogenic nonepileptic seizure manifestations reported by patients and witnesses, Epilepsia, 52, 2028, 10.1111/j.1528-1167.2011.03162.x
Lafrance, 2013, Management of psychogenic nonepileptic seizures, Epilepsia, 54, 53, 10.1111/epi.12106
Sarudiansky, 2015, La inclusión de nuevas herramientas cualitativas para la comprensión del cáncer: la MINI en el campo de la oncología, 297
Farmer, 1992, Help-seeking strategies for epilepsy by previously untreated patients in northern Ecuador, Epilepsy Res., 11, 205, 10.1016/0920-1211(92)90100-8
Martínez-Taboas A., Lewis-Fernández R., Sar V. Cultural aspects of psychogenic nonepileptic seizures. Gates and Rowan's nonepileptic seizures 2010:121–30. https://doi.org/https://doi.org/10.1017/9781316275450.013.
Rawlings, 2018, Health care practitioners’ perceptions of psychogenic nonepileptic seizures: a systematic review of qualitative and quantitative studies, Epilepsia, 59, 1109, 10.1111/epi.14189
Ghane, 2010, Assessment of explanatory models of mental illness: effects of patient and interviewer characteristics, Soc Psychiatry Psychiatr Epidemiol, 45, 175, 10.1007/s00127-009-0053-1
Baslet, 2022, Sustained improvement with mindfulness-based therapy for psychogenic nonepileptic seizures, Epilep Behav, 126, 10.1016/j.yebeh.2021.108478