Principles of effective communication with patients who have intellectual disability among primary care physicians

Schalock, 2010 Wehmeyer, 1996, Essential characteristics of self-determined behavior of individuals with mental retardation, Am. J. Ment. Retard., 100, 632 Convention on the Rights of Persons with Disabilities: Resolution (adopted by the UN General Assembly, A/RES/61/106 (January 24, 2007). Cooper, 2004, People with intellectual disabilities: their health needs differ and need to be recognized and met, Br. Med. J., 329, 414, 10.1136/bmj.329.7463.414 van Schrojenstein Lantman-de-Valk, 2008, Managing health problems in people with intellectual disabilities, Br. Med. J., 337, 1408, 10.1136/bmj.a2507 Ervin, 2014, Healthcare for persons with intellectual and developmental disability in the community, Front. Public Health, 2, 83 National Institute of Child Health and Human Development, 2001 Mastebroek, 2014, Health information exchange in general practice care for people with intellectual disabilities: a qualitative review of the literature, Res. Dev. Disabil., 35, 1978, 10.1016/j.ridd.2014.04.029 Platonova, 2015, Patient assessment of primary care physician communication: segmentation approach, Int. J. Health Care Qual. Assur., 28, 332, 10.1108/IJHCQA-11-2013-0136 Iacono, 2004, Patients with disabilities and complex communication needs, Aust. Fam. Physician, 33, 585 Lennox, 2005 Wullink, 2009, Doctor–patient communication with people with intellectual disability: a qualitative study, BMC Fam. Pract., 10, 82, 10.1186/1471-2296-10-82 Werner, 2013, Psychiatrists’ knowledge, training and attitudes regarding the care of individuals with intellectual disability, J. Intellect. Disabil. Res., 57, 774, 10.1111/j.1365-2788.2012.01604.x Gill, 2002, General practitioners’ attitudes to patients who have learning disabilities, Psychol. Med., 32, 1445, 10.1017/S0033291702006608 Fisher, 2009, Proxy healthcare decision-making for persons with intellectual disability: perspectives of residential-agency directors, J. Intellect. Dev. Disabil., 114, 401, 10.1352/1944-7558-114.6.401 Carlson, 2012 Wong, 2000, The capacity of people with a “mental disability” to make a healthcare decision, Psychol. Med., 30, 295, 10.1017/S0033291700001768 Devi, 2011, Moving towards substituted or supported decision-making? Article 12 of the convention on the rights of persons with disabilities, Eur. J. Disabil. Res., 15, 249, 10.1016/j.alter.2011.07.002 Ziviani, 2004, Meeting in the middle: improving communication in primary health care consultations with people with intellectual disability, J. Intellect. Dev. Disabil., 29, 211, 10.1080/13668250412331285163 Wilkinson, 2012, “Sometimes I feel overwhelmed”: educational needs of family physicians caring for people with intellectual disability, Intellect. Dev. Disabil., 50, 243, 10.1352/1934-9556-50.3.243 Wagemans, 2010, End-of-life decisions: an important theme in the care for people with intellectual disabilities, J. Intellect. Disabil. Res., 54, 516, 10.1111/j.1365-2788.2010.01276.x Fisher, 2009, A content analysis from a US statewide survey of memorable healthcare decisions for individuals with intellectual disability, J. Intellect. Dev. Disabil., 34, 258, 10.1080/13668250903083332 Heslop, 2004, Informed decision-making by people with intellectual disabilities (ID) when taking psychotrophic medication? Step 1: the provision of information, J. Intellect. Disabil. Res., 48, 471 Rosen, 2014, Low rate of non-attenders to primary care providers in Israel – a retrospective longitudinal study, Isr. J. Health Policy Res., 3, 15, 10.1186/2045-4015-3-15 Voss Horrell, 2006, Patient and parent/guardian perspectives on the health care of adults with mental retardation, Ment. Retard., 44, 239, 10.1352/0047-6765(2006)44[239:PAGPOT]2.0.CO;2 Brown, 2003 Thomas, 2014, Standardised patients with intellectual disabilities in training tomorrow's doctors, Psychiatr. Bull., 38, 132, 10.1192/pb.bp.113.043547 Brown, 2009, New voices in women's health: perceptions of women with intellectual and developmental disabilities, Intellect. Dev. Disabil., 47, 337, 10.1352/1934-9556-47.5.337