Caring for teenagers and young adults with cancer: A grounded theory study of network-focused nursing

European Journal of Oncology Nursing - Tập 15 - Trang 152-159 - 2011
Pia Riis Olsen1, Ingegerd Harder2
1Department of Oncology, Aarhus University Hospital, Noerrebrogade 44, Building 5, 8000 Aarhus C, Denmark
2Department of Nursing Science, School of Public Health, University of Aarhus, Hoegh-Guldbergs Gade 6A, Building 1633, 8000 Aarhus C, Denmark

Tài liệu tham khảo

Albritton, 2003, The management of cancer in the older adolescent, European Journal of Cancer, 39, 2584, 10.1016/j.ejca.2003.09.013 Arnett, 2000, Emerging adulthood. A theory of development from the late teens through the twenties, The American Psychologist, 55, 469, 10.1037/0003-066X.55.5.469 Brown, 2009, Surviving childhood leukemia: career, family, and future expectations, Qualitative Health Research, 18, 19, 10.1177/1049732307309221 Bryant, 2007, Introduction. Grounded theory research: methods and practices, 1 Charmaz, 1990, ‘Discovering’ chronic illness: using grounded theory, Social Science & Medicine, 30, 1161, 10.1016/0277-9536(90)90256-R Charmaz, 2004, Premises, principles, and practices in qualitative research: revisiting the foundations, Qualitative Health Research, 14, 976, 10.1177/1049732304266795 Charmaz, 2006 Christie, 2005, Adolescent development, British Medical Journal, 330, 301, 10.1136/bmj.330.7486.301 Coyne, 2007, Challenging the philosophy of partnership with parents: a grounded theory study, International Journal of Nursing Studies, 44, 893, 10.1016/j.ijnurstu.2006.03.002 Decker, 2007, Social support and adolescent cancer survivors: a review of the literature, Psychooncology, 16, 1, 10.1002/pon.1073 Due, 1999, Social relations: network, support and relational strain, Social Science & Medicine, 48, 661, 10.1016/S0277-9536(98)00381-5 Eldh, 2006, The meaning of patient participation for patients and nurses at a nurse-led clinic for chronic heart failure, European Journal of Cardiovascular Nursing, 5, 45, 10.1016/j.ejcnurse.2005.06.002 Finfgeld-Connett, 2005, Clarification of social support, Journal of Nursing Scholarship, 37, 4, 10.1111/j.1547-5069.2005.00004.x Glaser, 1978 Glaser, 1967 Grinyer, 2002 Grinyer, 2009, Contrasting parental perspectives with those of teenagers and young adults with cancer: comparing the findings from two qualitative studies, European Journal of Oncology Nursing, 13, 200, 10.1016/j.ejon.2009.04.002 Grootenhuis, 1997, Adjustment and coping by parents of children with cancer: a review of the literature, Supportive Care in Cancer, 5, 466, 10.1007/s005200050116 Gubrium, 2009, Linkage Haase, 2004, The adolescent resilience model as a guide to interventions, Journal of Pediatric Oncology Nursing, 21, 289, 10.1177/1043454204267922 Hedström, 2004, Distressing and positive experiences and important aspects of care for adolescents treated for cancer. Adolescent and nurse perceptions, European Journal of Oncology Nursing, 8, 6, 10.1016/j.ejon.2003.09.001 Henderson, 2003, Power imbalance between nurses and patients: a potential inhibitor of partnership in care, Journal of Clinical Nursing, 12, 501, 10.1046/j.1365-2702.2003.00757.x Hove, 2004 Ishibashi, 2001, The needs of children and adolescents with cancer for information and social support, Cancer Nursing, 24, 61, 10.1097/00002820-200102000-00010 Kars, 2008, Being there: parenting a child with acute lymphoblastic leukaemia, Journal of Clinical Nursing, 17, 1553, 10.1111/j.1365-2702.2007.02235.x Kelly, 2004, ‘Being in the same boat’: ethnographic insights into an adolescent cancer unit, International Journal of Nursing Studies, 41, 847, 10.1016/j.ijnurstu.2004.03.011 Kyngas, 2001, Coping with the onset of cancer: coping strategies and resources of young people with cancer, European Journal of Cancer Care (Engl.), 10, 6, 10.1046/j.1365-2354.2001.00243.x Manne, 1998, Social support, social conflict, and adjustment among adolescents with cancer, Journal of Pediatric Psychology, 23, 121, 10.1093/jpepsy/23.2.121 Olsen, P.R., 2009. Towards a theory of network-focused nursing. A grounded theory study of teenager and young adult cancer care. PhD dissertation. Faculty of Health Sciences, Aarhus University. Denmark. ISBN 978-87-92552-01-3. Olsen, 2009, Keeping their world together - Meanings and actions created through network-focused nursing in teenager and young adult cancer care, Cancer Nursing, 32, 493, 10.1097/NCC.0b013e3181b3857e Radzik, 2008, Psychosocial development in normal adolescents, 27 Ravn, 2008, Erfaringer fra et ungdomsafsnit Ritchie, 2001, Sources of emotional support for adolescents with cancer, Journal of Pediatric Oncology Nursing, 18, 105, 10.1053/jpon.2001.23600 Ritchie, 2001, Psychosocial nursing care for adolescents with cancer, Issues in Comprehenvise Pediatric Nursing, 24, 165, 10.1080/01460860121107 Sahlsten, 2008, An analysis of the concept of patient participation, Nursing Forum, 43, 2, 10.1111/j.1744-6198.2008.00090.x Smith, 2004, Adolescent units – an evidence-based approach to quality nursing in adolescent care, European Journal of Oncology Nursing, 8, 20, 10.1016/S1462-3889(03)00057-7 Turner, 1969 von Essen, 2001, Important aspects of care and assistance for parents of children, 0–18 years of age, on or off treatment for cancer. Parent and nurse perceptions, European Journal of Oncology Nursing, 5, 254, 10.1054/ejon.2001.0151 Whelan, 2003, Where should teenagers with cancer be treated?, European Journal of Cancer, 39, 2573, 10.1016/j.ejca.2003.09.014 Wilkinson, 2003, Young people with cancer – how should their care be organized?, European Journal of Cancer Care (Engl.), 12, 65, 10.1046/j.1365-2354.2003.00313.x Wills, 2001, Social networks and social support, 209 Woodgate, 2006, The importance of being there: perspectives of social support by adolescents with cancer, Journal of Pediatric Oncology Nursing, 23, 122, 10.1177/1043454206287396