Opiniones de Familiares de Personas con Enfermedad Mental Sobre su Participación en la Toma de Decisiones Clínicas. Un Estudio de Grupo Focal

Revista Colombiana de Psiquiatría - Tập 52 - Trang S60-S69 - 2023
Ricardo de la Espriella1, Carlos Gómez-Restrepo1,2,3
1Departamento de Psiquiatría, Facultad de Medicina, Pontificia Universidad Javeriana, Bogotá, Colombia
2Departamento de Epidemiología Clínica, Facultad de Medicina, Pontificia Universidad Javeriana, Bogotá, Colombia
3Hospital Universitario San Ignacio, Bogotá, Colombia

Tài liệu tham khảo

Overton, 2013, Alternative decision-makers’ perspectives on assent and dissent for dementia research, Am J Geriatr Psychiatry., 21, 346, 10.1016/j.jagp.2013.01.027 Bernal, 2013, Fundamento de la responsabilidad del cuidado en la familia, 239 Hayes, 2006, Cultural competency and quality of care: obtaining the patient's perspective, Fund Rep., 50 Roberts, 2016, Are individuals living with mental illness and their preferred alternative decision-makers aligned in their attitudes regarding treatment decisions?, J Psychiatr Res., 78, 42, 10.1016/j.jpsychires.2016.03.004 Algora Gayán, 2014, El cuidador del enfermo esquizofrénico: sobrecarga y estado de salud. Mallari, 2017, Ethical frameworks for decision-making in nursing practice and research: an integrative review, J Nurs Res. Hamann, 2007, Shared decision-making and long-term outcome in schizophrenia treatment, J Clin Psychiatr., 68, 993, 10.4088/JCP.v68n0703 Müller-Engelmann, 2008, Decision making preferences in the medical encounter — A factorial survey design, BMC Health Serv Res., 8, 1, 10.1186/1472-6963-8-260 Biagini, 2005, La evidencia y el proceso de toma de decisiones, Rev Med Chile., 871 Brevers, 2012, Decision making under ambiguity but not under risk is related to problem gambling severity, Psychiatr Res., 200, 568, 10.1016/j.psychres.2012.03.053 Davis, 2003, Exploring doctor and patient views about risk communication and shared decision-making in the consultation, Health Expectations., 6, 198, 10.1046/j.1369-6513.2003.00235.x Rogers, 1994, The residential needs and preferences of persons with serious mental illness: A comparison of consumers and family members, J Mental Health Admin., 21, 42, 10.1007/BF02521344 Agyapong, 2012, Continuing care for mentally stable psychiatric patients in primary care: patients’ preferences and views, Int J Fam Med., 10.1155/2012/575381 De la Espriella, 2020, Toma de decisiones en pacientes psiquiátricos: un estudio cualitativo con grupos focales, Rev Colomb Psiquiatr., 49, 231, 10.1016/j.rcp.2019.06.004 Adams, 2007, Shared decision-making preferences of people with severe mental illness, Psychiatr Serv., 58, 1219, 10.1176/ps.2007.58.9.1219 Palmer, 2004, Correlates of treatment-related decision-making capacity among middle-aged and older patients with schizophrenia, Arch Gen Psychiatry., 61, 230, 10.1001/archpsyc.61.3.230 Drake, 2010, The promise of shared decision making in mental health, Psychiatr Rehabil J., 34, 7, 10.2975/34.1.2010.7.13 Buller, 2006, What can neuroscience contribute to ethics?, J Med Ethics., 32, 63, 10.1136/jme.2005.014506 Hamann, 2010, Can psychiatrists and neurologists predict their patients’ participation preferences?, J Nerv Mental Dis., 198, 309, 10.1097/NMD.0b013e3181d6128c Chang, 2016, Providing care to relatives with mental illness: reactions and distress among primary informal caregivers, BMC Psychiatry., 16, 80, 10.1186/s12888-016-0786-9 Chadda, 2014, Caring for the family caregivers of persons with mental illness, Indian J Psychiatry., 56, 221, 10.4103/0019-5545.140616 NAMI. Hospital Guide: what families need to know about mental health treatment. 2007. Disponible en: https://1bo8dy15n7cz1sjbz5hoj5lt-wpengine.netdna-ssl.com/wp-content/uploads/sites/122/2017/07/Hospital-Booklet-Final-080309-View-only-version.pdf. An, 2017, Effectiveness of shared decision-making training program in people with schizophrenia in South Korea, Perspect Psychiatr Care., 53, 111, 10.1111/ppc.12144 Chen, 2017 Gutiérrez, 1996 Mills, 2008, The development of constructivist grounded theory, Int J Qual Method., 5, 25, 10.1177/160940690600500103 Byng-Hall, 1985, The family script: a useful bridge between theory and practice, J Fam Ther., 7, 301, 10.1046/j..1985.00688.x Topor, 2006, The role of family, friends, and professionals in the recovery process, Am J Psychiatr Rehabil., 9, 17, 10.1080/15487760500339410 Cox, 2009 Sabanciogullari, 2015, Information needs, care difficulties, and coping strategies in families of people with mental illness, Neurosci (Riyadh)., 20, 145 Drake, 2009, Shared decision making in mental health: Prospects for personalized medicine, Dialog Clin Neurosci., 11, 455, 10.31887/DCNS.2009.11.4/redrake Berglund, 2015, Health and wellbeing in informal caregivers and non-caregivers: a comparative cross-sectional study of the Swedish a general population, Health QoL Outcomes., 13, 109, 10.1186/s12955-015-0309-2 Edwards, 2012, Patient and family caregiver decision making in the context of advanced cancer, Cancer Nursing., 35, 178, 10.1097/NCC.0b013e31822786f6 Evans, 2007, Prominent strategy but rare in practice: Shared decision-making and patient decision support technologies in the UK, Zeitschrift Fur Arztliche Fortbildung Und Qualitatssicherung, 101, 247 van der Krieke, 2013, A web-based tool to support shared decision making for people with a psychotic disorder, J Med Internet Res., 15 Car, 2011, Interventions for enhancing consumers’ online health literacy, Cochrane Database Syst Rev., CD007092 WHO. (2013). Health literacy. Kickbusch I, Pelikan JM, Apfel F & Tsouros AD (editors), WHO Regional Office for Europe. Copenhagen. ISBN 978 92 890 00154 Levy, 2014, Health numeracy: The importance of domain in assessing numeracy, Med Decis Mak., 34, 107, 10.1177/0272989X13493144 NSW Government. Mental Health Family and Carer Information Guide, 2017. Disponible en: https://www.nslhd.health.nsw.gov.au/Services/Directory/Documents/Family and Carer Info Guide 2017 NSLHD.pdf. Milkman, 2009, How can decision making be improved?, Perspectives on Psychological Sciences., 4, 379, 10.1111/j.1745-6924.2009.01142.x Nemeth, 2012, The psychological basis of quality decision making. Rummel, 2005, Peer-to-peer psychoeducation in schizophrenia: A new approach, J Clin Psychiatry., 66, 1580, 10.4088/JCP.v66n1214 Alcalá Pompeo, 2016, Strategies for coping with family members of patients with mental disorders, Rev Lat Am Enfermagem., 24 Cáceda, 2014, Toward an understanding of decision making in severe mental illness, J Neuropsychiatr Clin Neurosci., 26, 196, 10.1176/appi.neuropsych.12110268 Kinderman, 2006, Illness beliefs in schizophrenia, Soc Sci Med., 63, 1900, 10.1016/j.socscimed.2006.04.022 Janardhana, 2015, Care giving of people with severe mental illness: an Indian experience, Indian J Psychol Med., 37, 184, 10.4103/0253-7176.155619 Chakrabarti, 2016, Research on family caregiving for mental illness in India and its impact on clinical practice: Are we doing enough to help families?, Indian J Soc Psychiatry., 32, 19, 10.4103/0971-9962.176762 Haley, 1987, Stress, appraisal, coping, and social support as predictors of adaptational outcome among dementia caregivers, Psychol Aging., 2, 323, 10.1037/0882-7974.2.4.323 King, 2011, The potential of shared decision making to reduce health disparities, J Law Med Ethics., 31 Sepucha, 2014, Measuring shared decision making: A review of constructs, measures, and opportunities for cardiovascular care, Circulation., 7, 620 Leggatt, 2002, Families and mental health workers: the need for partnership, World Psychiatry., 1, 52 Perestelo-Perez, 2010, Decision aids for patients facing health treatment decisions in Spain: Preliminary results, Patient Educ Counsel., 80, 364, 10.1016/j.pec.2010.06.001 Stacey, 2014, Decision aids for people facing health treatment or screening decisions (Review) Decision aids for people facing health treatment or screening decisions, Cochrane Database System Rev., 10.1002/14651858.CD001431.pub4 Hardwig, 1990, What about the family?, The Hastings Center Report, 20, 5, 10.2307/3562603