Dementia Caregiver Intervention Research
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*Asterisks indicate articles included in the literature review. A table describing and summarizing outcomes for all studies included in this review is available from R. Schulz.
Bass D. M., McClendon M. J., Brennan P. F., McCarthy C., 1998. The buffering effect of a computer support network on caregiver strain. Journal of Aging and Health10:20-43.
Beck A. T., Epstein N., Brown G., Steer R. A., 1988. An inventory for measuring clinical anxiety: Psychometric properties. Journal of Consulting and Clinical Psychology56:893-897.
Beck A. T., Ward C. H., Mendelson M., Mock J., Erbaugh J., 1961. An inventory for measuring depression. Archives of General Psychiatry4:561-571.
Bédard M., Molloy D. W., Pedlar D., Lever J. A., Stones M. J., 1997. Associations between dysfunctional behaviors, gender, and burden in spousal caregivers of cognitively impaired older adults. Inter-national Psychogeriatrics9:277-290.
Belmin J., Hée C., Ollivet C., 1999. A health education program lessens the burden of family caregivers of demented patients. Journal of the American Geriatrics Society47:1388-1389.
Bendig A. W., 1956. The development of a short form of the Manifest Anxiety Scale. Journal of Consulting Psychology20:384
Bourgeois M. S., Burgio L. D., Schulz R., Beach S., Palmer B., 1997. Modifying repetitive verbalizations of community-dwelling patients with AD. The Gerontologist37:30-39.
Bourgeois M. S., Schulz R., Burgio L., 1996. Interventions for caregivers of patients with Alzheimer's disease: A review and analysis of content, process, and outcomes. International Journal of Aging and Human Development43:35-92.
Bourgeois, M. S., Schulz, R., Burgio, L. D., & Beach, S. (in press). Skills training for spouses of patients with Alzheimer's disease: Outcomes of an intervention study. Journal of Clinical Geropsychology.*
Broadhead W. E., Gehlbach S. H., de Gruy F. V., Kaplan B. H., 1988. The Duke-UNC Functional Social Support Questionnaire: Measurement of social support in family medicine patients. Medical Care26:709-723.
Brodaty H., Gresham M., Luscombe G., 1997. The Prince Henry Hospital dementia caregivers' training programme. International Journal of Geriatric Psychiatry12:183-192.
Brook R. H., Ware J. E., Davies-Avery A., Stewart A. L., Donald C. A., Rogers W., et al. 1979. Conceptualization and measurement of health for adults in the Health Insurance Study: Vol 8: Overview (Publication No. R–1987/8-HEW) Rand, Santa Monica, CA.
Browne G. B., Arpin K., Corey P., Fitch M., Gafni A., 1990. Individual correlates of health service utilization and the cost of poor adjustment to chronic illness. Medical Care18:43-58.
Buckwalter K. C., Gerdner L., Kohout F., Hall G. R., Kelly A., Richards B., et al. 1999. A nursing intervention to decrease depression in family caregivers of persons with dementia. Archives of Psychiatric Nursing13:80-88.
Burgio L., Corcoran M., Lichstein K. L., Nichols L., Czaja S., Gallagher-Thompson D., et al. 2001. Judging outcomes in psychosocial interventions for dementia caregivers: The problem of treatment implementation. The Gerontologist41:481-487.
Carey P. J., Oberst M. T., McCubbin M. A., Hughes S. H., 1991. Appraisal and caregiving burden in family members caring for patients receiving chemotherapy. Oncology Nursing Forum18:1341-1348.
Chang B. L., 1999. Cognitive-behavioral intervention for homebound caregivers of persons with dementia. Nursing Research48:173-182.
Charlesworth G. M., 2001. Reviewing psychosocial interventions for family carers of people with dementia. Aging & Mental Health5:104-106.
Clipp E. C., Moore M. J., 1995. Caregiver time use: An outcome measure in clinical trial research on Alzheimer's disease. Clinical Pharmacology & Therapeutics58:228-236.
Coen R. F., O'Boyle C. A., Coakley D., Lawlor B. A., 1999. Dementia carer education and patient behaviour disturbance. International Journal of Geriatric Psychiatry14:302-306.
Cohen S., Kamarck T., Mermelstein R., 1983. A global measure of perceived stress. Journal of Health and Social Behavior24:385-396.
Cohen S., Mermelstein R., Karmack T., Hoberman H., 1985. Measuring the functional components of social support. Sarason I. G., Sarason B. R., , ed.Social support: Theory, research and applications73-94. Martinus Nijhoff, Boston.
Cooke D. D., McNally L., Mulligan K. T., Harrison M. J. G., Newman S. P., 2001. Psychosocial interventions for caregivers of people with dementia: Systematic review. Aging & Mental Health5:120-135.
Corbeil R. R., Quayhagen M. P., Quayhagen M., 1999. Intervention effects on dementia caregiving interaction: A stress-adaptation modeling approach. Journal of Aging and Health11:79-95.
Cox C., 1997. Findings from a statewide program of respite care: A comparison of service users, stoppers, and nonusers. The Gerontologist37:511-517.
Cox C., 1998. The experience of respite: Meeting the needs of African American and white caregivers in a statewide program. Journal of Gerontological Social Work30:59-72.
Cummings S. M., Long J. K., Peterson-Hazan S., Harrison J., 1998. The efficacy of a group treatment model in helping spouses meet the emotional and practical challenges of early stage caregiving. Clinical Gerontologist20: (1) 29-45.
Czaja, S., Schulz, R., Lee, C. C., & Belle, S. (2002). A methodology for describing and decomposing complex psychosocial and behavioral interventions. Manuscript submitted for publication.
Davis L. L., 1998. Telephone-based interventions with family caregivers: A feasibility study. Journal of Family Nursing4:255-270.
De Leo D., Diekstra R. F. W., Cleiren J. P., Sampaio Faria J. G., Grigoletto F., Lonnquist J., et al. 1994. Quality of life assessment instrument to measure self-perceived functioning and well-being in the elderly (LEIPAD Project) WHO Regional Office for Europe, Copenhagen, Denmark.
Derogatis L. R., 1992. The Brief Symptom Inventory (BSI) administration, scoring & procedures manual—II Clinical Psychometric Research, Baltimore.
Derogatis L. R., Lipman R. S., Rickels K., Uhlenhuth E. H., Covi L., 1974. The Hopkins Symptom Checklist (HSCL): A self-report symptom inventory. Behavioral Science9:1-15.
Dunkin J., Anderson-Hanley C., 1998. Dementia caregiver burden: A review of the literature and guidelines for assessment and intervention. Neurology51(1:
Endicott J., Spitzer R., 1978. A diagnostic interview: The Schedule for Affective Disorders and Schizophrenia. Archives of General Psychiatry35:837-844.
Fillit H. M., Gutterman E. M., Brooks R. L., 2000. Impact of donepezil on caregiving burden for patients with Alzheimer's disease. Inter-national Psychogeriatrics12:389-401.
Folkman S., Lazarus R. S., Dunkel-Schetter C., DeLongis A., Gruen R., 1986. The dynamics of a stressful encounter: Cognitive appraisal, coping, and encounter outcomes. Journal of Personality and Social Psychology50:992-1003.
Gallagher-Thompson, D., Arean, P., Rivera, P., & Thompson, L. W. (in press). A psychoeducational intervention to reduce distress in Hispanic family caregivers: Results of a pilot study. Clinical Gerontologist.*
Gallagher-Thompson D., Lovett S., Rose J., McKibbin C., Coon D., Futterman A., et al. 2000. Impact of psychoeducational interventions on distressed family caregivers. Journal of Clinical Geropsychology6:91-110.
Gendron C., Poitras L., Dastoor D. P., Pérodeau G., 1996. Cognitive-behavioral group intervention for spousal caregivers: Findings and clinical considerations. Clinical Gerontologist17: (1) 3-19.
Gitlin L. N., Corcoran M., Winter L., Boyce A., Hauck W. W., 2001. A randomized, controlled trial of a home environmental intervention: Effect on efficacy and upset in caregivers and on daily function of persons with dementia. The Gerontologist41:4-14.
Given, C. W., Given, B., Stommel, M., Collins, C., & King, S. (1990). Development of scales to assess the reactions of caregivers of patients with physical impairments and Alzheimer's disease. Unpublished manuscript, College of Nursing and Department of Family Practice, Michigan State University, East Lansing.
Goldberg D. P., 1972. The detection of psychiatric illness by questionnaire: A technique for the identification and assessment of non-psychotic psychiatric illness Oxford University Press, London.
Granger C. V., Hamilton B. B., 1992. UDS report: The uniform data system for medical rehabilitation report of first admissions for 1990. American Journal of Physical Medicine and Rehabilitation71:108-113.
Hamilton M., 1967. Development of a rating scale for primary depressive illness. British Journal of Social and Clinical Psychology6:278-296.
Harkins S. W., Taylor J. R., Mattay V., Regelson W., 1997. Tacrine treatment in Alzheimer's disease enhances cerebral blood flow and mental status and decreases caregiver suffering. Annals of the New York Academy of Sciences826:472-474.
Hepburn K. W., Tornatore J., Center B., Ostwald S., 2001. Dementia family caregiver training: Affecting beliefs about caregiving and caregiver outcomes. Journal of the American Geriatrics Society49:450-457.
Hodgson C., Higginson I., Jefferys P., 1998. Carer's Checklist—An outcome measure for people with dementia and their carers The Mental Health Foundation, London.
Hosaka T., Sugiyama Y., 1999. A structured intervention for family caregivers of dementia patients: A pilot study. Tokai Journal of Experimental & Clinical Medicine24:35-39.
Hughes C., Berg L., Danziger W., Coben L., Martin R., 1982. A new clinical scale for the staging of dementia. British Journal of Psychiatry140:566-572.
Jacobson N. W., Truax P., 1991. Clinical significance: A statistical approach to defining meaningful change in psychotherapy research. Journal of Consulting and Clinical Psychology59:12-19.
Kazdin A. E., 1999. The meanings and measurement of clinical significance. Journal of Consulting and Clinical Psychology67:332-339.
Kendall P. C., 1999. Clinical significance. Journal of Consulting and Clinical Psychology67:283-284.
Kendall P. C., Marrs-Garcia A., Nath S. R., Sheldrick R. C., 1999. Normative comparisons for the evaluation of clinical significance. Journal of Consulting and Clinical Psychology67:285-299.
Kennet J., Burgio L., Schulz R., 2000. Interventions for in-home caregivers: A review of research 1990 to present. Schulz R., , ed.Handbook on dementia caregiving: Evidence-based interventions for family caregivers61-126. Springer, New York.
King A. C., Brassington G., 1997. Enhancing physical and psychological functioning in older family caregivers: The role of regular physical activity. Annals of Behavioral Medicine19:91-100.
Knight B. G., Lutzky S. M., Macofsky-Urban F., 1993. A meta-analytic review of interventions for caregiver distress: Recommendations for future research. The Gerontologist33:240-248.
Lawton M. P., 1988. Scales to measure competence in everyday activities. Psychopharmacology Bulletin24:609-614.
Lawton M. P., Brody E. M., 1969. Assessment of older people: Self-maintaining and instrumental activities of daily living. The Gerontologist9:179-186.
Lawton M. P., Kleban M. H., Moss M., Rovine M., Glicksman A., 1989. Measuring caregiver appraisal. Journal of Gerontology: Psychological Sciences44:P61-P71.
LoGiudice D., Waltrowicz W., Brown K., Burrows C., Ames D., Flicker L., 1999. Do memory clinics improve the quality of life of carers? A randomized pilot trial. International Journal of Geriatric Psychiatry14:626-632.
Marriott A., Donaldson C., Tarrier N., Burns A., 2000. Effectiveness of cognitive-behavioral family intervention in reducing the burden of care in carers of patients with Alzheimer's disease. British Journal of Psychiatry176:557-562.
Matthews H. P., Korbey J., Wilkinson D. G., Rowden J., 2000. Donepezil in Alzheimer's disease: Eighteen month results from Southampton Memory Clinic. International Journal of Geriatric Psychiatry15:713-720.
McClendon M. J., Bass D. M., Brennan P. F., McCarthy C., 1998. A computer network for Alzheimer's caregivers and use of support group services. Journal of Mental Health and Aging4:403-420.
McCurry S. M., Logsdon R. G., Vitiello M. V., Teri L., 1998. Successful behavioral treatment for reported sleep problems in elderly caregivers of dementia patients: A controlled study. Journal of Gerontology: Psychological Sciences53B:P122-P129.
McNair D., Lorr M., Droppleman L., 1971. Manual for the Profile of Mood States Educational & Industrial Testing Service, San Diego, CA.
Millán-Calenti J. C., Gandoy-Crego M., Antelo-Martelo M., López-Martinez M., Riveiro-López M. P., Mayán-Santos J. M., 2000. Helping the family carers of Alzheimer's patients: From theory … to practice. A preliminary study. Archives of Gerontology and Geriatrics30:131-138.
Miller R., Newcomer R., Fox P., 1999. Effects of the Medicare Alzheimer's Disease Demonstration on nursing home entry. Health Services Research34:691-714.
Mitchell E., 2000. Managing carer stress: An evaluation of a stress management programme for carers of people with dementia. British Journal of Occupational Therapy63:179-184.
Mittelman M. S., Ferris S. H., Shulman E., Steinberg G., Ambinder A., Mackell J. A., Cohen J., 1995. A comprehensive support program: Effect on depression in spouse-caregivers of AD patients. The Gerontologist35:792-802.
Mittelman M. S., Ferris S. H., Shulman E., Steinberg G., Levin B., 1996. A family intervention to delay nursing home placement of patients with Alzheimer disease: A randomized controlled trial. Journal of the American Medical Association276:1725-1731.
Moniz-Cook E., Agar S., Gibson G., Win T., Wang M., 1998. A preliminary study of the effects of early intervention with people with dementia and their families in a memory clinic. Aging and Mental Health2:199-211.
Montgomery R. J. V., Gonyea J. G., Hooyman N. R., 1985. Caregiving and the experience of subjective and objective burden. Family Relations: Journal of Applied Family & Child Studies34:19-26.
Moos R. H., 1992. Coping responses inventory adult form manual Center for Health Care Evaluation, Stanford University, and Department of Veterans Affairs Medical Center, Palo Alto, CA.
Newcomer R., Spitalny M., Fox P., Yordi C., 1999. Effects of the Medicare Alzheimer's Disease Demonstration on the use of community-based services. Health Services Research34:645-667.
Newcomer R., Yordi C., DuNah R., Fox P., Wilkinson A., 1999. Effects of the Medicare Alzheimer's Disease Demonstration on caregiver burden and depression. Health Services Research34:669-689.
Oberst M. T., Thomas S. E., Gass K. A., Ward S. E., 1989. Caregiving demands and appraisal of stress among family caregivers. Cancer Nursing12:209-215.
O'Boyle C. A., Browne J., Hickey A., McGee H. M., Jouce C. R. B., 1996. Manual for the SEIQoL-DW Department of Psychology, Royal College of Surgeons, Dublin, Ireland.
Ory M. G., Hoffman R. R., III Yee J. L., Tennstedt S., Schulz R., 1999. Prevalence and impact of caregiving: A detailed comparison between dementia and non-dementia caregivers. The Gerontologist39:177-185.
Ostwald S. K., Hepburn K. W., Caron W., Burns T., Mantell R., 1999. Reducing caregiver burden: A randomized psychoeducational intervention for caregivers of persons with dementia. The Gerontologist39:299-309.
Pfeiffer E., Baxter D., Candelora E., Haag S., Nadiminti L., Leaverton P., 1997. Finding and treating depression in Alzheimer's patients: A study of the effects on patients and caregivers. Psychopharmacology Bulletin33:721-729.
Pillemer K., Suitor J. J., Landreneau L. T., Henderson C. R., Jr. Brangman S., 2000. Peer support for Alzheimer's caregivers: Lessons from an intervention study. Pillemer K., Moen P., Wethington E., Glasgow N., , ed.Social integration in the second half of life265-286. Johns Hopkins University Press, Baltimore.
Poulshock S. W., Deimling G. T., 1984. Families caring for elders in residence: Issues in the measurement of burden. Journal of Gerontology39:230-239.
Pusey H., Richards D., 2001. A systematic review of the effectiveness of psychosocial interventions for carers of people with dementia. Aging & Mental Health5:107-119.
Quayhagen M. P., Quayhagen M., 1988. Alzheimer's stress: Coping with the caregiving role. The Gerontologist28:391-396.
Quayhagen M. P., Quayhagen M., 2001. Testing of a cognitive stimulation intervention for dementia caregiving dyads. Neuropsychological Rehabilitation11: (3–4) 319-332.
Quayhagen M. P., Quayhagen M., Corbeil R. R., Hendrix R. C., Jackson J. E., Snyder L., et al. 2000. Coping with dementia: Evaluation of four nonpharmacologic interventions. International Psychogeriatrics12:249-265.
Radloff L. S., 1977. The CES-D Scale: A self-report depression scale for research in the general population. Applied Psychological Measurement11:385-401.
Riordan J. M., Bennett A. V., 1998. An evaluation of an augmented domiciliary service to older people with dementia and their carers. Aging and Mental Health2:137-143.
Ripich D. N., Ziol E., Lee M. M., 1998. Longitudinal effects of communication training on caregivers of persons with Alzheimer's disease. Clinical Gerontologist19: (2) 37-55.
Roberts J., Browne G., Gafni A., Varieur M., Loney P., de Ruijter M., 2000. Specialized continuing care models for persons with dementia: A systematic review of the research literature. Canadian Journal of Aging19: (1) 106-126.
Roberts J., Browne G., Milne C., Spooner L., Gafni A., Drummond-Young M., et al. 1999. Problem-solving counseling for caregivers of the cognitively impaired: Effective for whom?. Nursing Research48:162-172.
Rosencranz H. A., Pihlblad C. T., 1970. Measuring the health of the elderly. Journal of Gerontology25:129-133.
Schulz R., , ed.Handbook on dementia caregiving: Evidence-based interventions for family caregivers2000Springer, New York.
Schulz R., O'Brien A. T., Bookwala J., Fleissner K., 1995. Psychiatric and physical morbidity effects of Alzheimer's disease caregiving: Prevalence, correlates, and causes. The Gerontologist35:771-791.
Shikiar R., Shakespeare A., Sagnier P.-P., Wilkinson D., McKeith I., Dartigues J.-F., et al. 2000. The impact of metrifonate therapy on caregivers of patients with Alzheimer's disease: Results from the MALT clinical trial. Journal of the American Geriatrics Society48:268-274.
Sorensen S., Pinquart M., Duberstein P., 2002. How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist42:356-372.
Spanier G. B., 1976. Measuring dyadic adjustment: New scales for assessing the quality of marriage and similar dyads. Journal of Marriage and the Family38:15-28.
Spielberger C. D., Gorsuch R. L., Lushene R., 1970. Manual for the State-Trait Anxiety Inventory (Self-Evaluation Questionnaire) Consulting Psychologists Press, Palo Alto, CA.
Spielberger C. D., Johnson E. H., Russell S. F., Crane R. J., Jacobs G. A., Worden T. J., 1985. The experience and expression of anger: Construction and validation of an anger expression scale. Chesney M., Rosenman R., , ed.Anger and hostility in cardiovascular and behavioral disorders5-30. Hemisphere McGraw-Hill, New York.
Steffen A. M., 2000. Anger management for dementia caregivers: A preliminary study using video and telephone interventions. Behavior Therapy31:281-299.
Steffen A. M., Berger S., 2000. Relationship differences in anger intensity during caregiving-related situations. Clinical Gerontologist21: (2) 3-19.
Steffen A. M., Futterman A., Gallagher-Thompson D., 1998. Depressed caregivers: Comparative outcomes of two interventions. Clinical Gerontologist19: (4) 3-15.
Stinnett N., Collins J., Montgomery J., 1970. Marital need satisfaction of older husbands and wives. Journal of Marriage and the Family32:428-434.
Strawn B. D., Hester S., Brown W. S., 1998. Telecare: A social support intervention for family caregivers of dementia victims. Clinical Gerontologist18: (3) 66-69.
Teri L., Logsdon R., 1991. Identifying pleasant activities for Alzheimer's disease patients: The Pleasant Events Schedule–AD. The Gerontologist31:124-127.
Teri L., Logsdon R. G., Uomoto J., McCurry S. M., 1997. Behavioral treatment of depression in dementia patients: A controlled clinical trial. Journal of Gerontology: Psychological Sciences52B:P159-P166.
Toseland R. W., Rossiter C., 1989. Group intervention to support caregivers: A review and analysis. The Gerontologist29:438-448.
Vaux A., Phillips J., Holly L., Thomson B., Williams D., Stewart D., 1986. The Social Support Appraisals (SS-A) scale: Studies of reliability and validity. American Journal of Community Psychology14:195-219.
Vitaliano P. P., Russo J., Young H. M., Becker J., Maiuro R. D., 1991. The screen for caregiver burden. The Gerontologist31:76-83.
Watson D., Clark L. A., Tellegen A., 1988. Development and validation of brief measures of positive and negative affect: The PANAS scales. Journal of Personality and Social Psychology54:1063-1070.
Weuve J. L., Boult C., Morishita L., 2000. The effects of outpatient geriatric evaluation and management on caregiver burden. The Gerontologist40:429-436.
Wilkins S. S., Castle S., Heck E., Tanzy K., Fahey J., 1999. Immune function, mood, and perceived burden among caregivers participating in a psychoeducational intervention. Psychiatric Services50:747-749.
Wood V., Wylie M. L., Sheafer B., 1969. An analysis of a short self-report measure of life satisfaction: Correlation with rater judgements. Journal of Gerontology24:465-469.
Yesavage J. A., Brink T. L., Rose T. L., Lum O., Huang V., Adey M., et al. 1983. Development and validation of a geriatric depression screening scale: A preliminary report. Journal of Psychiatric Research17:37-49.
Zanetti O., Metitieri T., Bianchetti A., Trabucchi M., 1998. Effectiveness of an educational program for demented persons' relatives. Archives of Gerontology and Geriatrics6: (Suppl) 531-538.
Zarit S. H., Orr N., Zarit J., 1987. Working with families of dementia victims: A treatment manual Andrus Gerontology Center, University of Southern California, Los Angeles.
Zarit S. H., Reever K. E., Bach-Peterson J., 1980. Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist20:260-266.
Zarit S. H., Stephens M. A. P., Townsend A., Greene R., 1998. Stress reduction for family caregivers: Effects of adult day care use. Journal of Gerontology: Social Sciences53B:S267-S277.
Zarit S. H., Teri L., 1992. Interventions and services for family caregivers. Schaie K. W., Lawton M. P., , ed.Annual review of gerontology and geriatrics (Vol. 11)287-310. Springer, New York.