Health related quality of life and family impact of type 1 diabetes among adolescents in Saudi Arabia

Guariguata, 2014, Global estimates of diabetes prevalence in adults for 2013 and projections for 2035, Diabetes Res Clin Pract, 103, 137, 10.1016/j.diabres.2013.11.002 Al-Mendalawi, 2010, Incidence trends of childhood type 1 diabetes in eastern Saudi Arabia, Saudi Med J, 31, 1074 Craig, 2009, Definition, epidemiology and classification of diabetes in children and adolescents, Pediatr Diabetes, 10, 3, 10.1111/j.1399-5448.2009.00568.x Diabetes Control and Complications Trial Research Group, 1994, Effect of intensive diabetes treatment on the development and progression of long-term complications in adolescents with insulin-dependent diabetes mellitus: Diabetes Control and Complications Trial, J Pediatr, 125, 177 Solans, 2008, Health-related quality of life measurement in children and adolescents: a systematic review of generic and disease-specific instruments, Val Health, 11, 10.1111/j.1524-4733.2007.00293.x Health-Related Quality of Life and Well-Being. [online] Washington2014 [cited 30 Oct, 2014]; Available from: http://www.healthypeople.gov/2020/about/foundation-health-measures/Health-Related-Quality-of-Life-and-Well-Being. Varni, 2009, The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents, Pediatr Clin North Am, 56, 843, 10.1016/j.pcl.2009.05.016 de Wit, 2007, Monitoring health related quality of life in adolescents with diabetes: a review of measures, Arch Dis Child, 92, 434, 10.1136/adc.2006.102236 Varni, 2003, The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module, Diabetes Care, 26, 631, 10.2337/diacare.26.3.631 Graue, 2003, Measuring self-reported, health-related, quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments, Acta Paediatr, 92, 1190 Hesketh, 2004, Health-related quality of life and metabolic control in children with type 1 diabetes: a prospective cohort study, Diabetes Care., 27, 415, 10.2337/diacare.27.2.415 Nardi, 2008, Quality of life, psychological adjustment and metabolic control in youths with type 1 diabetes: a study with self- and parent-report questionnaires, Pediatr Diabetes, 9, 496, 10.1111/j.1399-5448.2008.00414.x Wagner, 2005, Age metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus, Eur J Pediatr, 164, 491, 10.1007/s00431-005-1681-4 Wagner, 2004, Age related differences in individual quality of life domains in youth with type 1 diabetes, Health Qual Life Outcomes, 2, 54, 10.1186/1477-7525-2-54 Dantzer, 2003, Anxiety and depression in juvenile diabetes: a critical review, Clin Psychol Rev, 23, 787, 10.1016/S0272-7358(03)00069-2 Lawrence, 2006, Prevalence and correlates of depressed mood among youth with diabetes: the SEARCH for Diabetes in Youth study, Pediatrics, 117, 1348, 10.1542/peds.2005-1398 Law, 2013, Adolescent and parent diabetes distress in type 1 diabetes: the role of self-efficacy, perceived consequences, family responsibility and adolescent-parent discrepancies, J Psychosom Res, 74, 334, 10.1016/j.jpsychores.2012.12.009 AlBuhairan, 2012 Moore, 2013, Adolescents with Type 1 Diabetes: parental perceptions of child health and family functioning and their relationship to adolescent metabolic control, Health Qual Life Outcomes, 11, 50, 10.1186/1477-7525-11-50 Eiser, 2001, A review of measures of quality of life for children with chronic illness, Arch Dis Child, 84, 205, 10.1136/adc.84.3.205 Eiser, 2001, Quality-of-life measures in chronic diseases of childhood, Health Technol Assess, 5, 1, 10.3310/hta5040 Al-Hayek, 2014, Assessment of health-related quality of life among adolescents with type 1 diabetes mellitus in Saudi Arabia, Saudi Med J, 35, 712 Varni, 2004, The PedsQL Family Impact Module: preliminary reliability and validity, Health Qual Life Outcomes, 2, 55, 10.1186/1477-7525-2-55 Varni, 2014 Kul, 2013, Quality of life in children and adolescents with chronic kidney disease: a comparative study between different disease stages and treatment modalities, Turk J Pediatr, 55, 493 Tong, 2013, Quality of life of young adults and adolescents with chronic kidney disease, J Pediatr, 163, 1179, 10.1016/j.jpeds.2013.04.066 Moreira, 2013, Psychological and quality of life outcomes in pediatric populations: a parent–child perspective, J Pediatr, 163, 1471, 10.1016/j.jpeds.2013.06.028 Pakpour, 2013, Health-related quality of life in young adult patients with rheumatoid arthritis in Iran: reliability and validity of the Persian translation of the PedsQL 4.0 Generic Core Scales Young Adult Version, Clin Rheumatol, 32, 15, 10.1007/s10067-012-2084-3 Abdul-Rasoul, 2013, Quality of life of children and adolescents with type 1 diabetes in Kuwait, Med Princ Pract, 22, 379, 10.1159/000347052 Jafari, 2011, Health related quality of life of Iranian children with type 1 diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module, Health Qual Life Outcomes, 9, 104, 10.1186/1477-7525-9-104 Kalyva, 2011, Health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): self and parental perceptions, Pediatr Diabetes, 12, 34, 10.1111/j.1399-5448.2010.00653.x Abolfotouh, 2011, Quality of life and glycemic control in adolescents with type 1 diabetes and the impact of an education intervention, Int J Gen Med, 4, 141, 10.2147/IJGM.S16951 Sand, 2012, The reliability of the Health Related Quality Of Life questionnaire PedsQL 3.0 Diabetes Module™ for Swedish children with type 1 diabetes, Acta Paediatr, 101, e344, 10.1111/j.1651-2227.2012.02706.x Lukács, 2012, Health-related quality of life of youths with type 1 diabetes: reliability and validity of the Hungarian version of the PedsQL 3.0 Diabetes Module, J Diabetes Metab, 3, 10.4172/2155-6156.1000191 d'Annunzio, 2014, Italian translation, cultural adaptation and validation of the PedsQL™ 3.0 Diabetes Module questionnaire in children with type 1 diabetes and their parents, Health Qual Life Outcomes, 12, 115, 10.1186/s12955-014-0115-2 Hoey, 2001, Good metabolic control is associated with better quality of life in 2,101 adolescents with type 1 diabetes, Diabetes Care, 24, 1923, 10.2337/diacare.24.11.1923 AlBuhairan, 2015, Time for an adolescent health surveillance system in Saudi Arabia: findings from “Jeeluna”, J Adolesc Health, 57, 263, 10.1016/j.jadohealth.2015.06.009 Asiri, 2015, Client education plan for improving diabetes management during primary health care in Saudi Arabia, Austin J Nurs Health Care, 2. Naughton, 2014, Longitudinal associations between sex, diabetes self-care, and health-related quality of life among youth with type 1 or type 2 diabetes mellitus, J Pediatr, 164, 1376, 10.1016/j.jpeds.2014.01.027 International Diabetes Federation HTaSA, 2008, Vol 52 Ingersoll, 1991, A modified quality-of-life measure for youths: psychometric properties, Diabetes Educ, 17, 114, 10.1177/014572179101700219 Wysocki, 2011, Youth and parent knowledge and communication about major complications of type 1 diabetes: associations with diabetes outcomes, Diabetes Care, 34, 1701, 10.2337/dc11-0577 Crowley, 2011, Improving the transition between paediatric and adult healthcare: a systematic review, Arch Dis Child, 96, 548, 10.1136/adc.2010.202473