Undertaking ethical qualitative research in public health: are current ethical processes sufficient?
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Dickson‐Swift, 2005, Do university ethics committees adequately protect public health researchers?, Aust N Z J Public Health, 29, 576, 10.1111/j.1467-842X.2005.tb00254.x
Robertson, 2011, Interviewing older people: Relationships in qualitative research, ternet J Allied Health Sci Pract, 9, 1
Dickson‐Swift, 2007, Doing sensitive research: What challenges do qualitative researchers face?, Qual Res, 7, 327, 10.1177/1468794107078515
Colbourne, 2005, The culture of cancer and the therapeutic impact of qualitative research interviews, J Res Nurs, 10, 551, 10.1177/136140960501000501
Lakeman, 2013, ‘That was helpful … no one has talked to me about that before’: Research participation as a therapeutic activity, Int J Ment Health Nurs, 22, 76, 10.1111/j.1447-0349.2012.00842.x
Beale, 2004, Impact of in‐depth interviews on the interviewer: Roller coaster ride, Nurs Health Sci, 6, 141, 10.1111/j.1442-2018.2004.00185.x
Guillemin, 2004, Ethics, Reflexivity, and “Ethically Important Moments.”, Qual Inq, 12, 261, 10.1177/1077800403262360
Woodby, 2011, Expanding the notion of researcher distress: The cumulative effects of coding, Qual Health Res, 21, 830, 10.1177/1049732311402095
Liamputtong, 2007
2007
Tolich, 2006, If ethics committees were designed for ethnography, J Empir Res Hum Res Ethics, 1, 71, 10.1525/jer.2006.1.2.71
Banks, 2013, Everyday ethics in community‐based participatory research, Contemp Soc Sci, 8, 263, 10.1080/21582041.2013.769618
Campell‐Page, 2013, Managing ethical dilemmas in community‐based participatory research with vulnerable populations, Ethics Health Educ, 14, 485
Carter, 2013, Issues of disclosure and intrusion: Ethical challenges for a community researcher, Ethics Soc Welfare, 7, 92, 10.1080/17496535.2013.769344
Coles, 2010, Staying safe: Strategies for qualitative child abuse researchers, Child Abuse Rev, 19, 56, 10.1002/car.1080
Tolich, 2010, A critique of current practice: Ten foundational guidelines for auto ethnographers, Qual Health Res, 20, 1599, 10.1177/1049732310376076
Karnieli‐Miller, 2009, Power relations in qualitative research, Qual Health Res, 19, 279, 10.1177/1049732308329306
Glesne, 1989, Rapport and friendship in ethnographic research, Qual Stud Educ, 2, 45, 10.1080/0951839890020105
Davison, 2004, Dilemmas in research: Issues of vulnerability and disempowerment for the social worker/ researcher, J Soc Work Pract, 18, 379, 10.1080/0265053042000314447
Kidd, 2006, Navigating unchartered water: Research ethics and emotional engagement in human inquiry, J Psychiatr Ment Health Nurs, 13, 423, 10.1111/j.1365-2850.2006.00999.x
Dickson‐Swift, 2006, blurring boundaries in qualitative health research on sensitive topics, Qual Health Res, 16, 853, 10.1177/1049732306287526
De Laine, 2000
Lee, 1993
Birch, 2000, Inviting intimacy: The interview as therapeutic opportunity, Int J Soc Res Methodol, 3, 189, 10.1080/13645570050083689
Downey, 2007, Researching vulnerability: What about the researcher?, Eur J Mark, 41, 734, 10.1108/03090560710752375
Oakley, 1981, Interviewing women: A contradiction in terms, 30
Mellick, 2010, Personal narrative and the ethics of disclosure: A case study from elite sport, Qual Res, 10, 299, 10.1177/1468794110362873
Morrison, 2012, ‘Thanks for using me’: An exploration of exit strategy in qualitative research, Int J Qual Methodol, 11, 416, 10.1177/160940691201100408
Hewitt, 2007, Ethical components of researcher‐ researcher relationships in qualitative interviewing, Qual Health Res, 17, 1149, 10.1177/1049732307308305
Mitchell, 2011, A reflection on the emotional potential of qualitative interviewing, Br J Midwifery, 19, 653, 10.12968/bjom.2011.19.10.653
Jackson, 2013, Researching distressing topics: Emotional reflexivity and emotional labor in the secondary analysis of children and young people's narratives of abuse, Sage Open, 3, 1, 10.1177/2158244013490705
Woodby, 2011, Expanding the notion of researcher distress: The cumulative effects of coding, Qual Health Res, 21, 830, 10.1177/1049732311402095
Beauchamp, 2009
Hammersley, 2010, Creeping ethical regulation and the strangling of research, Sociol Res Online, 10.5153/sro.2255
Boulton, 2007, Informed consent in a changing environment, Soc Sci Med, 65, 2187, 10.1016/j.socscimed.2007.08.002
Chenhall, 2011, Negotiating human research ethics, Anthropol Today, 27, 13, 10.1111/j.1467-8322.2011.00827.x
Pollock, 2012, Procedure versus process: Ethical paradigms and the conduct of qualitative research, BMC Med Ethics, 10.1186/1472-6939-13-25
Hoeyer, 2005, Conflicting notions of research ethics. The mutually challenging traditions of social scientists and medical researchers, Soc Sci Med, 61, 1741, 10.1016/j.socscimed.2005.03.026
Hugman, 2011, When ‘Do No Harm’ Is Not Enough: The Ethics of Research with Refugees and Other Vulnerable Groups, Br J Soc Work, 41, 1271, 10.1093/bjsw/bcr013
Oeye, 2007, Doing participant observation in a psychiatric hospital‐ Research ethics resumed, Soc Sci Med, 65, 2296, 10.1016/j.socscimed.2007.07.016
Corrigan, 2003, Empty ethics: The problem with informed consent, Sociol Health Illness, 25, 768, 10.1046/j.1467-9566.2003.00369.x
Dingwall, 2008, The ethical case against ethical regulation in humanities and social science research, J Acad Soc Sci, 3, 1
Pleschberger, 2011, Interviews on end‐of‐life care with older people: Reflections on six European studies, Qual Health Res, 21, 1588, 10.1177/1049732311415286
Cochran, 2008, Indigenous ways of knowing: Implications for participatory research and community, Am J Public Health, 98, 22, 10.2105/AJPH.2006.093641
Walker, 2007
2007
Phelan, 2013, Picture this…safety, dignity, and voice‐ ethical research with children: Practical consideration for the reflexive researcher, Qual Inq, 19, 81, 10.1177/1077800412462987
Etherington, 2007, Ethical research in reflexive relationships, Qual Inq, 13, 599, 10.1177/1077800407301175
Atkinson, 1990
Fook, 1999, Reflexivity as method, Ann Rev Soc Sci, 9, 11
Fook, 2007
Nussbaum, 2001
2014
Dennison, 2010, Peer mentoring: untapped potential, J Nurs Educ, 49, 340, 10.3928/01484834-20100217-04
Byrne, 2002, Building research competence in nursing through mentoring, J Nurs Scholarsh, 34, 391, 10.1111/j.1547-5069.2002.00391.x
Guillemin, 2009, Rapport and respect: negotiating ethical relations between researcher and participant, Med Health Care Philos, 12, 291, 10.1007/s11019-008-9165-8