Dying With Dementia: Symptoms, Treatment, and Quality of Life in the Last Week of Life
Tài liệu tham khảo
van der Steen, 2010, Dying with dementia: what we know after more than a decade of research, J Alzheimers Dis, 22, 37, 10.3233/JAD-2010-100744
Mitchell, 2009, The clinical course of advanced dementia, N Engl J Med, 361, 1529, 10.1056/NEJMoa0902234
van der Steen, 2013, Retrospective and prospective data collection compared in the Dutch End of Life in Dementia (DEOLD) Study, Alzheimer Dis Assoc Disord
Di Giulio, 2008, Dying with advanced dementia in long-term care geriatric institutions: a retrospective study, J Palliat Med, 11, 1023, 10.1089/jpm.2008.0020
Black, 2006, Health problems and correlates of pain in nursing home residents with advanced dementia, Alzheimer Dis Assoc Disord, 20, 283, 10.1097/01.wad.0000213854.04861.cc
Cordner, 2010, Quality of life in nursing home residents with advanced dementia, J Am Geriatr Soc, 58, 2394, 10.1111/j.1532-5415.2010.03170.x
Caprio, 2008, Pain, dyspnea, and the quality of dying in long-term care, J Am Geriatr Soc, 56, 683, 10.1111/j.1532-5415.2007.01613.x
Stewart, 1999, The concept of quality of life of dying persons in the context of health care, J Pain Symptom Manage, 17, 93, 10.1016/S0885-3924(98)00131-6
Borgsteede, 2009, Prescribing of pain medication in palliative care. A survey in general practice, Pharmacoepidemiol Drug Saf, 18, 16, 10.1002/pds.1678
Van Deijck, 2010, The practice of continuous palliative sedation in elderly patients: a nationwide explorative study among Dutch nursing home physicians, J Am Geriatr Soc, 58, 1671, 10.1111/j.1532-5415.2010.03014.x
Koopmans, 2010, Dutch elderly care physician: a new generation of nursing home physician specialists, J Am Geriatr Soc, 58, 1807, 10.1111/j.1532-5415.2010.03043.x
Dutch Geriatrics Society. [Directive: diagnostics and pharmacological treatment of dementia]. [in Dutch]. Available from http://www.cbo.nl/Downloads/387/rl_dement_2005.pdf. Accessed July 6, 2013.
McKhann, 1984, Clinical diagnosis of Alzheimer's disease: report of the NINCDS-ADRDA Work Group under the auspices of Department of Health and Human Services Task Force on Alzheimer's Disease, Neurology, 34, 939, 10.1212/WNL.34.7.939
Roman, 1993, Vascular dementia: diagnostic criteria for research studies. Report of the NINDS-AIREN International Workshop, Neurology, 43, 250, 10.1212/WNL.43.2.250
McKeith, 1996, Consensus guidelines for the clinical and pathologic diagnosis of dementia with Lewy bodies (DLB): report of the consortium on DLB international workshop, Neurology, 47, 1113, 10.1212/WNL.47.5.1113
Reisberg, 1982, The Global Deterioration Scale for assessment of primary degenerative dementia, Am J Psychiatry, 139, 1136, 10.1176/ajp.139.9.1136
Morris, 1994, MDS Cognitive Performance Scale, J Gerontol, 49, M174, 10.1093/geronj/49.4.M174
De Graeff, 2010
Committee on National Guideline for Palliative Sedation, Royal Dutch Medical Association. Guideline for palliative sedation. [in English]. Available from http://knmg.artsennet.nl/Publicaties/KNMGpublicatie-levenseinde/Guideline-for-palliative-sedation-2009.htm. Accessed July 6, 2013.
Weiner, 2000, The quality of life in late-stage dementia (QUALID) scale, J Am Med Dir Assoc, 1, 114
Schalkwijk, 2009, Measuring quality of life in nursing home residents with severe dementia: psychometric properties of the QUALID scale, Tijdschr Gerontol Geriatr, 40, 184, 10.1007/BF03079587
O'Connell A. An illustration of multilevel models for ordinal response data. Data and context in statistics education: towards an evidence-based society. Proceedings of the Eighth International Conference on Teaching Statistics, July 8, 2010. Available from www.stat.auckland.ac.nz/∼iase/publications/icots8/ICOTS8_4C3_OCONNELL.pdf. Accessed July 6, 2013.
Mitchell, 2006, Advanced dementia research in the nursing home: the CASCADE study, Alzheimer Dis Assoc Disord, 20, 166, 10.1097/00002093-200607000-00008
Helton, 2006, A cross-cultural study of physician treatment decisions for demented nursing home patients who develop pneumonia, Ann Fam Med, 4, 221, 10.1370/afm.536
Cohen, 2012, Family perceptions of end-of-life care for long-term care residents with dementia: differences between the United States and the Netherlands, J Am Geriatr Soc, 60, 316, 10.1111/j.1532-5415.2011.03816.x
van der Steen, 2009, Discomfort in dementia patients dying from pneumonia and its relief by antibiotics, Scand J Infect Dis, 41, 143, 10.1080/00365540802616726
van der Steen, 2002, Pneumonia: the demented patient's best friend? Discomfort after starting or withholding antibiotic treatment, J Am Geriatr Soc, 50, 1681, 10.1046/j.1532-5415.2002.50460.x
Koopmans, 2007, The ‘natural’ endpoint of dementia: death from cachexia or dehydration following palliative care?, Int J Geriatr Psychiatry, 22, 350, 10.1002/gps.1680
Pasman, 2004, Forgoing artificial nutrition and hydration in nursing home patients with dementia: patients, decision making, and participants, Alzheimer Dis Assoc Disord, 18, 154, 10.1097/01.wad.0000137522.69111.56
Santangelo G. Relationship to subjective pain reports by patients and their caregivers. Abstract from the Gerontological Society of America 2012 annual conference. Available from www.geron.org/meeting2012/ProgramBookFinal_web.pdf. Accessed July 6, 2013.
Rosenberg, 2011, Treating agitation in dementia, BMJ, 343, d3913, 10.1136/bmj.d3913
Manfredi, 2003, Opioid treatment for agitation in patients with advanced dementia, Int J Geriatr Psychiatry, 18, 700, 10.1002/gps.906
Pieper, 2011, The implementation of the serial trial intervention for pain and challenging behaviour in advanced dementia patients (STA OP!): a clustered randomized controlled trial, BMC Geriatr, 11, 12, 10.1186/1471-2318-11-12
Verenso, the Dutch Association of Elderly Care Physicians and Social Geriatricians. [Guideline: behaviour problems]. [in Dutch]. 2008. Available from http://www.verenso.nl/wat-doen-wij/vakinhoudelijke-producten/richtlijnen/probleemgedrag. Accessed July 6, 2013.
Swart, 2012, Continuous palliative sedation for cancer and noncancer patients, J Pain Symptom Manage, 43, 172, 10.1016/j.jpainsymman.2011.04.004
Miccinesi, 2006, Continuous deep sedation: physicians' experiences in six European countries, J Pain Symptom Manage, 31, 122, 10.1016/j.jpainsymman.2005.07.004
Fainsinger, 2000, A multicentre international study of sedation for uncontrolled symptoms in terminally ill patients, Palliat Med, 14, 257, 10.1191/026921600666097479
Muller-Busch, 2003, Sedation in palliative care—a critical analysis of 7 years experience, BMC Palliat Care, 2, 2, 10.1186/1472-684X-2-2
Stone, 1997, A comparison of the use of sedatives in a hospital support team and in a hospice, Palliat Med, 11, 140, 10.1177/026921639701100208
Chiu, 2001, Sedation for refractory symptoms of terminal cancer patients in Taiwan, J Pain Symptom Manage, 21, 467, 10.1016/S0885-3924(01)00286-X
Sykes, 2003, The use of opioids and sedatives at the end of life, Lancet Oncol, 4, 312, 10.1016/S1470-2045(03)01079-9
Rietjens, 2008, Palliative sedation in a specialized unit for acute palliative care in a cancer hospital: comparing patients dying with and without palliative sedation, J Pain Symptom Manage, 36, 228, 10.1016/j.jpainsymman.2007.10.014
Rietjens, 2008, Continuous deep sedation for patients nearing death in the Netherlands: descriptive study, BMJ, 336, 810, 10.1136/bmj.39504.531505.25
Houttekier, 2010, Place of death of older persons with dementia. A study in five European countries, J Am Geriatr Soc, 58, 751, 10.1111/j.1532-5415.2010.02771.x