Awareness and advocacy for adolescents and young adults with cancer

Cancer - Tập 117 Số S10 - Trang 2311-2315 - 2011
Devon McGoldrick1, Pamela Gordon1, Myrna Whiteson2, Heidi Adams1, Paul Rogers3, Simon Sutcliffe4
1LiveStrong, Austin, Texas
2Teenage Cancer Trust, London, United Kingdom
3BC Children's Hospital, Vancouver, British Columbia, Canada
4Canadian Partnership Against Cancer, Toronto, Ontario, Canada

Tóm tắt

AbstractIncreasing the awareness of the clinical and psychosocial needs that are particular to adolescents and young adults (AYA) was a top priority, as was strengthening advocacy efforts to empower and support this group. To date, AYA advocates had some success in generating public awareness and building a solid clinical justification for increased focus on this population. It had been established that the economic burden of their mortality was significant, their cancers were unusual, their medical care was often inadequate, and their outcomes for many cancers had not improved in the past 3 decades. As the awareness and advocacy campaign continued to grow and evolve across the globe, it was an important goal to integrate the efforts of all stakeholders to ensure that it progressed with a single, consensual, focused message identifying a common priority for action. By coordinating the efforts of the scientific, medical, and advocacy communities, it was possible to amplify their separate efforts and activities and more efficiently achieve large‐scale change in the world of AYA oncology. Cancer 2011;117(10 suppl):2311–5. © 2011 American Cancer Society.

Từ khóa


Tài liệu tham khảo

10.3322/canjclin.57.4.242

10.1111/j.1445-5994.2006.01062.x

Adolescent and Young Adult Oncology Progress Review Group. Closing the gap: research and care imperatives for adolescents and young adults with cancer Department of Health and Human Services National Institutes of Health National Cancer Institute and the LIVESTRONG Young Adult Alliance. Available at:http://planning.cancer.gov/disease/AYAO_PRG_Report_2006_FINAL.pdfAccessed June 10 2010.

10.1002/cncr.22338

10.1080/08880010701316850

10.1002/pbc.21457

10.1007/978-3-540-68152-6

10.1093/jnci/djn384

Notes from the C.P.A.C.‐C 17 Workshop on Adolescents and Young Adults with Cancer, 2010, Toward better outcomes

National Institute for Health and Clinical Excellence. Improving outcomes in children and young people with cancer. Available at:http://www.nice.org.ukAccessed June 30 2010.

The Lance Armstrong Foundation. Young Adult Alliance. Available at:http://www.livestrong.org/yaaAccessed June 10 2010.

10.1200/JCO.2009.23.8097

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Cancer

Tập 117 Số S10

2311-2315

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