Sexual and reproductive health care utilization and preferences reported by young women with cystic fibrosis

Journal of Cystic Fibrosis - Tập 17 - Trang 64-70 - 2018
Traci M. Kazmerski1,2, Gregory S. Sawicki1, Elizabeth Miller3,4, Kelley A. Jones3, Kaleab Z. Abebe5,6, Lisa K. Tuchman7, Sigrid Ladores8, Ronald C. Rubenstein9, Scott D. Sagel10, Daniel J. Weiner3, Joseph M. Pilewski5, David M. Orenstein3, Sonya Borrero4,5,11
1Division of Respiratory Diseases, Department of Medicine, Boston Children's Hospital, Boston, MA, United States
2Institute for Healthcare Improvement, Cambridge, MA, United States
3Children's Hospital of Pittsburgh of UPMC, Department of Pediatrics, University of Pittsburgh School of Medicine, Pittsburgh, PA, United States
4Center for Women's Health Research and Innovation (CWHRI), University of Pittsburgh School of Medicine, Pittsburgh, PA, United States
5Department of Medicine, University of Pittsburgh Medical Center, University of Pittsburgh, Pittsburgh, PA, United States
6Center for Research on Health Care Data Center, Division of General Internal Medicine, University of Pittsburgh, Pittsburgh, PA, United States
7Division of Adolescent and Young Adult Medicine, Children's National Health System, Washington, DC, United States
8University of Alabama-Birmingham, School of Nursing, Birmingham, AL, United States
9Division of Pulmonary Medicine and Cystic Fibrosis Center, The Children's Hospital of Philadelphia, Department of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, United States
10Department of Pediatrics, Children's Hospital Colorado, University of Colorado School of Medicine, Aurora, CO, United States
11VA Pittsburgh Center for Health Equity Research and Promotion, Pittsburgh, PA, United States

Tài liệu tham khảo

Sawyer, 1995, Reproductive health in young women with cystic fibrosis: knowledge, behavior, and attitudes, J Adolesc Health, 17, 46, 10.1016/1054-139X(94)00096-W Nixon, 2002, Urinary incontinence in female adolescents with cystic fibrosis, Pediatrics, 110, 1, 10.1542/peds.110.2.e22 Lyon, 2002, Fertility issues in cystic fibrosis, Paediatr Respir Rev, 3, 236, 10.1016/S1526-0542(02)00184-7 McArdle, 2011, Pregnancy in cystic fibrosis, Clin Chest Med, 32, 111, 10.1016/j.ccm.2010.10.005 Frayman, 2015, Sexual and reproductive health in cystic fibrosis: a life-course perspective, Lancet Respir Med, 3, 70, 10.1016/S2213-2600(14)70231-0 Roe, 2016, Contraception in women with cystic fibrosis: a systematic review of the literature, Contraception, 93, 3, 10.1016/j.contraception.2015.07.007 Kazmerski, 2017, Sexual and reproductive health experiences and behaviors reported by young women with cystic fibrosis, J Cyst Fibros Cystic Fibrosis Foundation, 2014 Mogayzel, 2014, Improving chronic care delivery and outcomes: the impact of the cystic fibrosis Care Center Network, BMJ Qual Saf, 23, i1, 10.1136/bmjqs-2013-002363 Britto, 1999, Preventive services received by adolescents with cystic fibrosis and sickle cell disease, Arch Pediatr Adolesc Med, 153, 27, 10.1001/archpedi.153.1.27 Kazmerski, 2016, Patient and provider attitudes regarding sexual health in young women with cystic fibrosis, Pediatrics, 10.1542/peds.2015-4452 Kazmerski, 2015, Cystic fibrosis program directors' attitudes toward sexual and reproductive health in young women with CF, Pediatr Pulmonol, 51, 22, 10.1002/ppul.23321 Kazmerski, 2016, Attitudes and decision making related to pregnancy in young women with cystic fibrosis, Matern Child Health J National Survey for Family Growth (NSFG) Harris, 2009, Research electronic data capture (REDCap) — a metadata-driven methodology and workflow process for providing translational research informatics support, J Biomed Inform, 42, 377, 10.1016/j.jbi.2008.08.010 National Survey for Family Growth (NSFG) Gatiss, 2009, Provision of contraception services and advice for women with cystic fibrosis, J Fam Plann Reprod Health Care, 35, 157, 10.1783/147118909788708075 Plant, 2008, Contraceptive practices in women with cystic fibrosis, J Cyst Fibros, 7, 412, 10.1016/j.jcf.2008.03.001 Roe, 2016, Contraceptive choices and preferences in a cohort of women with cystic fibrosis, Respir Med, 121, 1, 10.1016/j.rmed.2016.10.012 Dickinson, 2001, Drug interactions between oral contraceptives and antibiotics, Obstet Gynecol, 98, 853 Jones, 2015, Potential impact on fertility of new systemic therapies for cystic fibrosis, Paediatr Respir Rev, 16, 25 Heltshe, 2017, Pregnancy among cystic fibrosis women in the era of CFTR modulators, J Cyst Fibros, 16, 687, 10.1016/j.jcf.2017.01.008 Rousset Jablonski, 2015, Contraceptive practices and cervical screening in women with cystic fibrosis, Hum Reprod, 30, 2547, 10.1093/humrep/dev217 Malouf, 2004, Sexual health issues after lung transplantation: importance of cervical screening, J Heart Lung Transplant, 23, 894, 10.1016/j.healun.2003.07.018 Kazmerski, 2017, Provider attitudes and practices toward sexual and reproductive health care for young women with cystic fibrosis, J Pediatr Adolesc Gynecol, 10.1016/j.jpag.2017.01.009 Rogers, 2007, A collaborative clinic between contraception and sexual health services and an adult congenital heart disease clinic, J Fam Plann Reprod Health Care, 33, 17, 10.1783/147118907779399648 Crawford, 2005, Best practice guidelines for the management of women with epilepsy, Epilepsia, 46, 117, 10.1111/j.1528-1167.2005.00323.x de Leeuw, 1992