Inside an Occupational Therapy–Disability Community Partnership to Promote Health Management: Ethnography of a Research Collaboration

American Journal of Occupational Therapy - Tập 75 Số 4 - 2021
Susan Magasi1, Amber M. Angell2, Christina Papadimitriou3, Ricardo Daniel Ramirez4, Alli Ferlin5, Judy Panko Reis6, Tom Wilson7
1Susan Magasi, PhD, is Associate Professor, Departments of Occupational Therapy and Disability and Human Development, University of Illinois at Chicago; [email protected]
2Amber M. Angell, PhD, OTR/L, is Assistant Professor, Chan Division of Occupational Science and Occupational Therapy, University of Southern California, Los Angeles. At the time of the study, Angell was Postdoctoral Fellow, Department of Occupational Therapy, University of Illinois at Chicago.
3Christina Papadimitriou, PhD, is Associate Professor, Department of Interdisciplinary Health Sciences and Department of Sociology, Oakland University, Rochester, MI.
4Ricardo D. Ramirez, OTD, OTR/L, is Occupational Therapist, University of Illinois Hospital and Health Systems, Chicago. At the time of the study, Ramirez was Doctoral Student and Research Specialist, Department of Occupational Therapy, University of Illinois at Chicago.
5Alli Ferlin, OTD, OTR/L, is Occupational Therapist, Vibra Rehabilitation Hospital of Denver, Denver, CO. At the time of the study, Ferlin was Doctoral Student, Department of Occupational Therapy, University of Illinois at Chicago.
6Judy Panko Reis, MS, MA, is Robert Wood Johnson Community Health Leader, Chicago. At the time of the study, Reis was Health Policy Analyst, Access Living Center for Independent Living, Chicago.
7Tom Wilson, MS, is Community Activist, Chicago. At the time of the study, Wilson was Community Development Organizer for Health Care, Access Living Center for Independent Living, Chicago.

Tóm tắt

Abstract Importance: Disability studies–informed occupational therapy is predicated on full and equal partnerships among occupational therapy practitioners, researchers, and disability communities. Community-based participatory research (CBPR) is an approach to research that aligns with this vision yet is not without challenges. Understanding the tensions that arise from stakeholders’ perspectives and priorities is critical for promoting collaboration between occupational therapy professionals and disability community partners. Objective: To understand the group dynamics and relational processes of a CPBR team in the context of an intervention development study focused on health management for people with disabilities (PWD). Design: This 9-mo ethnographic study included semistructured interviews and participant observation. Data were analyzed thematically. Setting: Community-based multiagency collaborative. Participants: Nine participants (6 academic team members, 4 of whom were trained as occupational therapists; 2 disability partners; and 1 managed-care organization representative) took part. Three participants self-identified as PWD. Findings: CBPR processes, although productive, were fraught with challenges. Team members navigated competing priorities, varying power dynamics, and multifaceted roles and identities. Flexibility was needed to address diverse priorities, respond to unexpected challenges, and facilitate the project’s success. Conclusions and Relevance: Deep commitment to a shared goal of health care justice for PWD and team members’ willingness to address tensions promoted successful collaboration. Intentional relationship building is needed for occupational therapy researchers to collaborate with members of disability communities as equal partners. What This Article Adds: Disability studies–informed occupational therapy research demands that team members intentionally nurture equitable relationships through shared governance, clear communication, and recognition of the fluid nature of power dynamics.

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American Journal of Occupational Therapy

Tập 75 Số 4

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