Psychosocial Outcomes and Service Use Among Young Adults With Cancer
Tài liệu tham khảo
2006
Bleyer, 2007, Introduction, 1
2007
Bandura, 1997
Haase, 2004, The adolescent/young adult experience, J Pediatr Oncol Nurs, 21, 145, 10.1177/1043454204264385
Cwikel, 1999, Organizing social work services with adult cancer patients: Integrating empirical research, Social Work Health Care, 28, 55, 10.1300/J010v28n03_04
Bleyer, 2005, The adolescent and young adult gap in cancer care and outcome, Curr Probl Pediatr Adolesc Health Care, 35, 182, 10.1016/j.cppeds.2005.02.001
Rowland, 1990, Developmental stage and adaptation: adult model, 25
Shama, 2007, Psychosocial issues of the adolescent cancer patient and the development of the teenage outreach program (TOP), J Psychosocial Oncol, 25, 99, 10.1300/J077v25n03_06
Albritton, 2003, The management of cancer in the older adolescent, Eur J Cancer, 39, 2584, 10.1016/j.ejca.2003.09.013
Zebrack, 2007, Psychosocial support, 375
Zeltzer, 1993, Cancer in adolescents and young adults, Cancer, 71, 3463, 10.1002/1097-0142(19930515)71:10+<3463::AID-CNCR2820711753>3.0.CO;2-B
Eiser, 2007, Psychological support for adolescents and young adults, 365
Roberts, 1998, Psychosocial issues of adolescents with cancer, Social Work Health Care, 27, 3, 10.1300/J010v27n04_02
Evan, 2006, Psychosocial dimensions of cancer in adolescents and young adults, Cancer, 107, 1663, 10.1002/cncr.22107
Arnett, 2000, Emerging adulthood: a theory of development from the late teens through the twenties, Am Psychol, 55, 469, 10.1037/0003-066X.55.5.469
Bleyer, 2009, Cancer in young adults 20 to 39 years of age: overview, Semin Oncol, 36, 194, 10.1053/j.seminoncol.2009.03.003
Bleyer, 2002, Cancer in older adolescents and young adults: epidemiology, diagnosis, treatment, survival, and importance of clinical trials, Med Pediatr Oncol, 38, 1, 10.1002/mpo.1257
Mills, 2003
Quinn, 2000
Maurice-Stam, 2007, Course of life of survivors of childhood cancer is related to quality of life in young adulthood, J Psychosocial Oncol, 25, 43, 10.1300/J077v25n03_03
Grinyer, 2007, The biographical impact of teenage and adolescent cancer, Chronic Illness, 3, 265, 10.1177/1742395307085335
Bleyer, 2007, Introduction, 1
Palmer, 2008
Whiteson, 2003, The Teenage Cancer Trust—advocating a model for teenage cancer services, Eur J Cancer, 39, 2688, 10.1016/j.ejca.2003.08.023
Whelan, 2003, Where should teenagers with cancer be treated?, Eur J Cancer, 39, 2573, 10.1016/j.ejca.2003.09.014
Jones, 2008, Promoting healthy development among survivors of adolescent cancer, Family Community Health, 31, S61, 10.1097/01.FCH.0000304019.98007.ae
Wenzel, 2005, Defining and measuring reproductive concerns of female cancer survivors, JNCI Monogr, 34, 94, 10.1093/jncimonographs/lgi017
Roberts, 2005, Fertility preservation: a comprehensive approach to the young woman with cancer, JNCI Monogr, 57, 10.1093/jncimonographs/lgi014
Janson, 2000, Possibilities of fertility preservation in children and young adults undergoing treatment for malignancy, Acta Obstet Gynecol Scand, 79, 240, 10.1080/j.1600-0412.2000.079004240.x
Schover, 1999, Psychosocial aspects of infertility and decisions about reproduction in young cancer survivors: a review, Med Pediatr Oncol, 33, 53, 10.1002/(SICI)1096-911X(199907)33:1<53::AID-MPO10>3.0.CO;2-K
Arai, 1997, Sexuality and fertility in long-term survivors of testicular cancer, J Clin Oncol, 15, 1444, 10.1200/JCO.1997.15.4.1444
Hartmann, 1999, Long-term effects on sexual function and fertility after treatment of testicular cancer, Br J Cancer, 80, 801, 10.1038/sj.bjc.6690424
Kokkonen, 1997, Physical and psychosocial outcome for young adults with treated malignancy, Pediatr Hematol Oncol, 14, 223, 10.3109/08880019709009492
Mitchell, 2004, Cancer in adolescents and young adults: treatment and outcome in Victoria, Med J Aust, 180, 59, 10.5694/j.1326-5377.2004.tb05799.x
Feldman, 1998, Long-term outcome in women less than 30 years of age with breast cancer, J Surg Oncol, 68, 193, 10.1002/(SICI)1096-9098(199807)68:3<193::AID-JSO12>3.0.CO;2-2
Knobf, 2001, The menopausal symptom experience in young mid-life women with breast cancer, Cancer Nurs, 24, 201, 10.1097/00002820-200106000-00006
Roberts, 1997, Life changes and problems experienced by young adults with cancer, J Psychosocial Oncol, 15, 15, 10.1300/J077v15n01_02
Bello, 1995, Body image disturbances in young adults with cancer: implications for the oncology clinical nurse specialist, Cancer Nurs, 18, 138, 10.1097/00002820-199504000-00007
Daiter, 1988, Psychosocial symptomatology, personal growth, and development among young adult patients following the diagnosis of leukemia or lymphoma, J Clin Oncol, 6, 613, 10.1200/JCO.1988.6.4.613
Felder-Puig, 1998, Quality of life and psychosocial adjustment of young patients after treatment of bone cancer, Cancer, 83, 69, 10.1002/(SICI)1097-0142(19980701)83:1<69::AID-CNCR10>3.0.CO;2-A
Kyngas, 2001, Coping with the onset of cancer: coping strategies and resources of young people with cancer, Eur J Cancer Care, 10, 6, 10.1046/j.1365-2354.2001.00243.x
Tuulio-Hendriksson, 1997, Psychological defense styles in late adolescence and young adulthood: a follow-up study, J Am Acad Adolesc Psychiatry, 36, 1148, 10.1097/00004583-199708000-00025
Bloom, 1993, Psychosocial outcomes of cancer: a comparative analysis of Hodgkin's disease and testicular cancer, J Clin Oncol, 11, 979, 10.1200/JCO.1993.11.5.979
Bloom, 1988, Effects of treatment on the work experiences of long-term survivors of Hodgkin's disease, J Psychosocial Oncol, 6, 65, 10.1300/J077v06n03_05
Fobair, 1986, Psychosocial problems among survivors of Hodgkin's disease, J Clin Oncol, 4, 805, 10.1200/JCO.1986.4.5.805
Cella, 1987, Identifying survivors of pediatric Hodgkin's disease who need psychological interventions, J Psychosocial Oncol, 5, 83, 10.1300/J077v05n04_07
Kornblith, 1992, Hodgkin's disease survivors at increased risk for problems in psychosocial adaptation, Cancer, 70, 2214, 10.1002/1097-0142(19921015)70:8<2214::AID-CNCR2820700833>3.0.CO;2-X
Arai, 1996, Psychosocial aspects in long-term survivors of testicular cancer, J Urol, 155, 574, 10.1016/S0022-5347(01)66452-8
Fossea, 1999, Health-related quality of life in patients treated for testicular cancer, Curr Opin Urol, 9, 425, 10.1097/00042307-199909000-00010
Heidenreich, 1999, Quality of life issues in the treatment of testicular cancer, World J Urol, 17, 230, 10.1007/s003450050138
Ozen, 1998, Psychosocial adjustment after testicular cancer treatment, J Urol, 159, 1947, 10.1016/S0022-5347(01)63204-X
Dunn, 2000, Young women's experience of breast cancer: defining young and identifying concerns, Psychooncology, 9, 137, 10.1002/(SICI)1099-1611(200003/04)9:2<137::AID-PON442>3.0.CO;2-0
Sammarco, 2001, Perceived social support, uncertainty, and quality of life of younger breast cancer survivors, Cancer Nurs, 24, 212, 10.1097/00002820-200106000-00007
Abrahamson, 2006, Recreational physical activity and survival among young women with breast cancer, Cancer, 107, 1777, 10.1002/cncr.22201
Zebrack, 2006, Assessing the health care needs of adolescent and young adult (AYA) cancer patients and survivors, Cancer, 107, 2915, 10.1002/cncr.22338
White, 2002, Access to health care: health insurance considerations for young adults with special health care needs/disabilities, Pediatrics, 110, 1328, 10.1542/peds.110.S3.1328
Grinyer, 2001, Young adults with cancer: the effect of the illness on parents and families, Int J Palliat Nurs, 7, 162, 10.12968/ijpn.2001.7.4.9032
Mor, 1994, The psychosocial impact of cancer on older versus younger patients and their families, Cancer, 74, 2118, 10.1002/1097-0142(19941001)74:7+<2118::AID-CNCR2820741720>3.0.CO;2-N
Costanzo, 2009, Psychosocial adjustment among cancer survivors: findings from a national survey of health and well-being, Health Psychol, 28, 147, 10.1037/a0013221
Zebrack, 2008, The impact of cancer and quality of life for long-term survivors, Psychooncology, 17, 891, 10.1002/pon.1300
Lev, 1999, Age, self-efficacy, and change in patients' adjustment to cancer, Cancer Practice, 7, 170, 10.1046/j.1523-5394.1999.74004.x
Parker, 2003, Psychosocial and demographic predictors of quality of life in a large sample of cancer patients, Psychooncology, 12, 183, 10.1002/pon.635
Schnoll, 2001, Using disease-related and demographic variables to form cancer-distress risk groups, J Behav Med, 24, 57, 10.1023/A:1005686404723
Short, 2006, Income disparities in the quality of life of cancer survivors, Med Care, 44, 16, 10.1097/01.mlr.0000188986.84819.3a
Schnoll, 2002, Correlates of adjustment among cancer survivors, J Psychosocial Oncol, 20, 37, 10.1300/J077v20n01_03
Michalec, 2005, Exploring the multidimensional benefits of breast cancer support groups, J Psychosocial Oncol, 23, 159, 10.1300/J077v23n02_10
Fleer, 2006, Objective and subjective predictors of cancer-related stress symptoms in testicular cancer survivors, Patient Educ Counsel, 64, 142, 10.1016/j.pec.2005.12.009
Steiner, 2008, The impact of physical and psychosocial factors on work characteristics after cancer, Psychooncology, 17, 138, 10.1002/pon.1204
Wiener, 2006, Persistent psychological distress in long-term survivors of pediatric sarcoma: the experience at a single institution, Psychooncology, 15, 898, 10.1002/pon.1024
Zebrack, 2002, Quality of life in childhood cancer survivors, Psychooncology, 11, 132, 10.1002/pon.569
Baker, 2007, Factor structure and concurrent validity of the satisfaction with life domains scale for cancer (SLDS-C), J Psychosocial Oncol, 25, 1, 10.1300/J077v25n02_01
Chen, 1998, Pathways linking treatment intensity and psychosocial outcomes among adult survivors of childhood leukemia, J Health Psychol, 3, 23, 10.1177/135910539800300102
Stava, 2006, Health profiles of younger and older breast cancer survivors, Cancer, 107, 1752, 10.1002/cncr.22200
Ganz, 1985, The psychosocial impact of cancer on the elderly: a comparison with younger patients, J Am Geriatr Soc, 33, 429, 10.1111/j.1532-5415.1985.tb07154.x
Vinokur, 1990, The process of recovery from breast cancer for younger and older patients: changes during the first year, Cancer, 65, 1242, 10.1002/1097-0142(19900301)65:5<1242::AID-CNCR2820650535>3.0.CO;2-1
Zebrack, 2001, Living beyond the sword of Damocles: surviving childhood cancer, Exp Rev Anticancer Ther, 1, 163, 10.1586/14737140.1.2.163
O'Connor, 2006
Holland, 2003, The relation of social support and coping to positive adaptation to breast cancer, Psychol Health, 18, 15, 10.1080/0887044031000080656
Michael, 2002, Social networks and health-related quality of life in breast cancer survivors: a prospective study, J Psychosom Res, 52, 285, 10.1016/S0022-3999(01)00270-7
Lim, 2008, Different pathways in social support and quality of life between Korean American and Korean breast and gynecological cancer survivors, Quality Life Res, 17, 679, 10.1007/s11136-008-9343-4
Boer, 1998, Psychosocial factors and mental health in cancer patients: opportunities for health promotion, Psychol Health Med, 3, 71, 10.1080/13548509808400591
Corey, 2008, Social support and symptom distress in adolescents/young adults with cancer, J Pediatr Oncol Nurs, 25, 275, 10.1177/1043454208321117
Kreitler, 2007, Stress, self-efficacy and quality of life in cancer patients, Psychooncology, 16, 329, 10.1002/pon.1063
Merluzzi, 1997, Assessment of self-efficacy and coping with cancer: development and validation of the Cancer Behavior Inventory, Health Psychol, 16, 163, 10.1037/0278-6133.16.2.163
Cunningham, 1991, A relationship between perceived self-efficacy and quality of life in cancer patients, Patient Educ Counseling, 17, 71, 10.1016/0738-3991(91)90052-7
Kohno Y, Maruyama M, Matsuoka Y, Matsushita T, Koeda M, Matsushima E. Relationship of psychological characteristics and self-efficacy in gastrointestinal cancer survivors. Psychooncology. [Epub ahead of print, February 9, 2009].
Beckham, 1997, Self-efficacy and adjustment in cancer patients: a preliminary report, Behav Med, 23, 138, 10.1080/08964289709596370
Manne, 2006, Cancer-specific self-efficacy and psychosocial and functional adaptation to early stage breast cancer, Ann Behav Med, 31, 145, 10.1207/s15324796abm3102_6
Gallagher, 2002, Appraisal and psychological distress six months after diagnosis of breast cancer, Br J Health Psychol, 7, 365, 10.1348/135910702760213733
Merluzzi, 2001, Self-efficacy for coping with cancer: revision of the Cancer Behavior Inventory (version 2.0), Psychooncology, 10, 206, 10.1002/pon.511
Luszczynska, 2005, Self-efficacy and social support predict benefit finding 12 months after cancer surgery: the mediating role of coping strategies, Psychology Health Med, 10, 365, 10.1080/13548500500093738
Boehmer, 2007, Coping and quality of life after tumor surgery: Personal and social resources promote different domains of quality of life, Anxiety Stress Coping, 20, 61, 10.1080/10615800701195439
Neipp, 2007, Control beliefs in cancer: a literature review, An Psicol, 38, 333
Zebrack, 2006, Assessing the health care needs of young adult cancer patients and survivors, Cancer, 107, 2915, 10.1002/cncr.22338
Zebrack, 2008, Information and service needs for young adult cancer patients, Support Care Cancer, 16, 1353, 10.1007/s00520-008-0435-z
Zebrack, 2009, Information and service needs for young adult cancer survivors, Support Care Cancer, 17, 349, 10.1007/s00520-008-0469-2
McQuellon, 2006, Psychosocial rehabilitation in cancer care, 1942
Chesler, 1987
Coluzzi, 1995, Survey of the provision of supportive care services at National Cancer Institute-designated cancer centers, J Clin Oncol, 13, 756, 10.1200/JCO.1995.13.3.756
Holland, 1999, Update: NCCN practice guidelines for the management of psychosocial distress, Oncology, 13, 113
Clerici, 2008, Psychological referral and consultation for adolescents and young adults with cancer treated at a pediatric oncology unit, Pediatr Blood Cancer, 51, 105, 10.1002/pbc.21484
Hewitt, 2002, Mental health service use among adult cancer survivors: analyses of the National Health Interview survey, J Clin Oncol, 20, 4581, 10.1200/JCO.2002.03.077
Gadalla, 2007, Cancer patients' use of social work services in Canada: prevalence, profile, and predictors of use, Health Social Work, 32, 189, 10.1093/hsw/32.3.189
Stegina, 2008, Socio-demographic, psychosocial and attitudinal predictors of help seeking after cancer diagnosis, Psychooncology, 17, 997, 10.1002/pon.1317
Grande, 2006, How do patients who participate in cancer support groups differ from those who do not?, Psychooncology, 15, 321, 10.1002/pon.956
Krizek, 1999, Gender and cancer support group participation, Cancer Practice, 7, 86, 10.1046/j.1523-5394.1999.07206.x
Cameron, 2005, Cognitive and affective determinants of decisions to attend a group psychosocial support program for women with breast cancer, Psychosom Med, 67, 584, 10.1097/01.psy.0000170834.54970.f5
Owen, 2007, Use of health-related and cancer-specific support groups among adult cancer survivors, Cancer, 109, 2580, 10.1002/cncr.22719
Mehnert, 2008, Psychological comorbidity and health-related quality of life and its association with awareness, utilization, and need for psychosocial support in a cancer register-based sample of long-term breast cancer survivors, J Psychosom Res, 64, 383, 10.1016/j.jpsychores.2007.12.005
Eakin, 2001, Awareness and barriers to use of cancer support and information resources by HMO patients with breast, prostate, or colon cancer: patient and provider perspectives, Psychooncology, 10, 103, 10.1002/pon.500
Sherman, 2008, Determinants of participation in cancer support groups: the role of health beliefs, Int J Behav Med, 15, 92, 10.1080/10705500801929601
Boesen, 2007, Comparison of participants and non-participants in a randomized psychosocial intervention study among patients with malignant melanoma, Psychosomatics, 48, 510, 10.1176/appi.psy.48.6.510
Plass, 2001, Participation of oncological outpatients in psychosocial support, Psychooncology, 10, 511, 10.1002/pon.543
Mols, 2007, Increased health care utilization among long-term cancer survivors compared to the average Dutch population: a population-based study, Int J Cancer, 121, 871, 10.1002/ijc.22739
Michalec, 2004, The race gap in support group participation by breast cancer survivors: real or artifact?, Eval Rev, 28, 123, 10.1177/0193841X03260313
Bauman, 1992, Factors associated with cancer patients' participation in support groups, J Psychosocial Oncol, 10, 1, 10.1300/J077V10N03_01
Taylor, 1986, Social support, support groups, and the cancer patient, J Consult Clin Psychol, 54, 608, 10.1037/0022-006X.54.5.608
Edgar, 2000, Resource use in women completing treatment for breast cancer, Psychooncology, 9, 428, 10.1002/1099-1611(200009/10)9:5<428::AID-PON481>3.0.CO;2-L
Voerman, 2007, Determinants of participation in social support groups for prostate cancer patients, Psychooncology, 16, 1092, 10.1002/pon.1160
Canada, 2007, A pilot intervention to enhance psychosexual development in adolescents and young adults with cancer, Pediatr Blood Cancer, 49, 824, 10.1002/pbc.21130
Eiser, 2000, Surviving cancer: what does it mean for you?, Psychooncology, 9, 214, 10.1002/1099-1611(200005/06)9:3<214::AID-PON455>3.0.CO;2-O
Roberts, 1997, A support group intervention to facilitate young adults' adjustment to cancer, Health Social Work, 22, 133, 10.1093/hsw/22.2.133
Schwartz, 1999, An evaluation of a psychosocial intervention for survivors of childhood cancer: paradoxical effects of response shift over time, Psychooncology, 8, 344, 10.1002/(SICI)1099-1611(199907/08)8:4<344::AID-PON399>3.0.CO;2-T
Meyer, 1995, Effects of psychosocial interventions with adult cancer patients: a meta-analysis of randomized experiments, Health Psychol, 14, 101, 10.1037/0278-6133.14.2.101
Trijsburg, 1992, Effects of psychological treatment on cancer patients: a critical review, Psychosom Med, 54, 489, 10.1097/00006842-199207000-00011
Cwikel, 2000, A comparison of a vote count and meta-analysis review of intervention research with adult cancer patients, Res Social Work Practice, 10, 139, 10.1177/15527581-00010001-02
Gottlieb, 2007, Cancer support groups: a critical review of empirical studies, Psychooncology, 16, 379, 10.1002/pon.1078
Hoey, 2008, Systematic review of peer-support programs for people with cancer, Patient Educ Counseling, 70, 315, 10.1016/j.pec.2007.11.016
Campbell, 2004, Cancer peer support programs—do they work?, Patient Educ Counseling, 55, 3, 10.1016/j.pec.2003.10.001
Jacobsen, 2008, Psychosocial interventions for anxiety and depression in adult cancer patients: achievements and challenges, CA Cancer J Clin, 58, 214, 10.3322/CA.2008.0003
Graves, 2003, Social cognitive theory and cancer patients' quality of life: a meta-analysis of psychosocial intervention components, Health Psychol, 22, 210, 10.1037/0278-6133.22.2.210
Bandura, 1977, Self-efficacy: toward a unifying theory of behavioral change, Psychol Rev, 84, 191, 10.1037/0033-295X.84.2.191
Jerusalem, 1992, Self-efficacy as a resource factor in stress appraisal processes, 195
Bandura, 1994, Self-efficacy, 71
Greve, 2001, Self-efficacy and externality in adolescence: theoretical conceptions and measurement in New Zealand and German secondary school students, Identity Int J Theory Res, 1, 321, 10.1207/S1532706XID0104_02
Lev, 2000, Counseling women with breast cancer using principles developed by Albert Bandura, Perspect Psychiatr Care, 36, 131, 10.1111/j.1744-6163.2000.tb00601.x
Weber, 2007, The impact of dyadic social support on self-efficacy and depression after radical prostatectomy, J Aging Health, 19, 630, 10.1177/0898264307300979
Giese-Davis, 2006, The effect of peer counseling on quality of life following diagnosis of breast cancer: an observational study, Psychooncology, 15, 1014, 10.1002/pon.1037
Telch, 1986, Group skills instruction and supportive group therapy for cancer patients: a comparison of strategies, J Consult Clin Psychol, 54, 802, 10.1037/0022-006X.54.6.802
Bass, 2006, Relationship of internet health information use with patient behavior and self-efficacy: experiences of newly diagnosed cancer patients who contact the National Cancer Institute's cancer information service, J Health Commun, 11, 219, 10.1080/10810730500526794
Török, 2006, Outcome effectiveness of therapeutic recreation camping program for adolescents living with cancer and diabetes, J Adolesc Health, 39, 445, 10.1016/j.jadohealth.2005.12.018
Helgeson, 2006, Moderators of the benefits of psychoeducational interventions for men with prostate cancer, Health Psychol, 25, 348, 10.1037/0278-6133.25.3.348
Rose, 2008, Cancer Quality Alliance: blueprint for a better cancer care system, CA Cancer J Clin, 58, 266, 10.3322/CA.2008.0012
Holland, 2000