Development of common data elements: the experience of and recommendations from the early detection research network

International Journal of Medical Informatics - Tập 70 - Trang 41-48 - 2003
Marcy D. Winget1, John A. Baron2, Margaret R. Spitz3, Dean E. Brenner4, Denise Warzel5, Heather Kincaid1, Mark Thornquist1, Ziding Feng1
1Cancer Prevention Research Program, Fred Hutchinson Cancer Research Center, 1100 Fairview Ave. N., MP-859, Seattle, WA 98109, USA
2Department of Community and Family Medicine, Dartmouth Medical School, Hanover, NH, USA
3Department of Epidemiology, M.D. Anderson Cancer Center, University of Texas, Houston, TX, USA
4Department of Internal Medicine, University of Michigan Medical School, Ann Arbor, MI, USA
5National Cancer Institute Center for Bioinformatics, Bethesda, MD, USA

Tài liệu tham khảo

Srivastava, 2000, Early detection cancer research network, Lab. Invest., 80, 1147, 10.1038/labinvest.3780122 Hubbard, 2001, The cancer informatics infrastructure: a new initiative of the national cancer institute, Semin. Oncol. Nurs., 17, 55, 10.1053/sonu.2001.20420 2002 International Organization of Standardization. Information technology—Specification and standardization of data elements Part 2 Classification of data elements. ISO/IEC 11179-2, 2000. International Organization of Standardization. Information technology—Specification and standardization of data elements Part 3 Basic attributes of data elements. ISO/IEC 11179-3, 1994. International Organization of Standardization. Information technology—Specification and standardization of data elements Part 4 Rules and guidelines for the formulation of data definitions. ISO/IEC 11179-4, 1995. International Organization of Standardization. Information technology—Specification and standardization of data elements Part 5 Naming and identification principles for data elements. ISO/IEC 11179-5, 1995. Health Insurance Portability and Accountability Act. Standards for Privacy of Individually Identifiable Health Information—Rules and Regulations. Federal Register 65:250, 2000.