Genetics and ethics: a possible and necessary dialogue

Berg P, Baltimore D, Boyer HW, Cohen SN, Davis RW, Hogness DS, Nathans D, Roblin R, Watson JD, Weissman S, Zinder ND (1974) Potential biohazards of recombinant DNA molecules. Science 185:303 (letter) Berg P, Baltimore D, Brenner S, Roblin RO, Singer MF (1975) Summary statement of the Asilomar conference on recombinant DNA molecules. Proc Natl Acad Sci U S A 72:1981–1984 Brasil (1988) Ministério da Saúde, Conselho Nacional de Saúde. Normas de pesquisa em saúde. Resolução CNS 01/88, Pub. L. No. 01/88. Available at: www.bioetica.ufrgs.br/r01-88.htm; accessed on: 10/01/2015 Brasil (1996) Ministério da Saúde, Conselho Nacional de Saúde. Diretrizes e normas regulamentadoras de pesquisas envolvendo seres humanos. Resolução CNS 196/96. Available at: www.bioetica.ufrgs.br/res19696.htm; accessed on: 10/01/2015 Brasil (1999) Ministério da Saúde, Conselho Nacional de Saúde. Pesquisas coordenadas do exterior ou com participação estrangeira. Resolução CNS 292/99. Available at: www.bioetica.ufrgs.br/res292.htm; accessed on: 10/01/2015 Brasil (2000) Ministério da Saúde, Conselho Nacional de Saúde. Normas para pesquisas envolvendo seres humanos–area de povos indígenas. Resolução CNS 304/2000. Available at: www.bioetica.ufrgs.br/res304.htm; accessed on: 10/01/2015 Brasil (2004) Ministério da Saúde, Conselho Nacional de Saúde. Diretrizes para análise etica e tramitação dos projetos de pesquisa da área temática especial de genética humana. Resolução CNS 340/04. Available at: www.bioetica.ufrgs.br/res340.htm; accessed on: 10/01/2015 Brasil (2011) Ministério da Saúde, Conselho Nacional de Saúde. Armazenamento e utilização de material biológico humano em pesquisa. Resolução CNS 441/2011. Available at: www.bioetica.ufrgs.br/res441.htm; accessed on: 10/01/2015 Council of Europe (1997) Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: convention on human rights and biomedicine. Available at: http://conventions.coe.int/Treaty/en/Treaties/Html/164.htm; accessed on: 10/01/2015 Darwin CR (1859) On the origin of species by means of natural selection, or the preservation of favoured races in the struggle for life, 1st edn. Murray, London Dietrickx K, Borry P (2009) New challenges for biobanks: ethics, law and governance. Intersentia, Antwerp Galton F (1869) Hereditary genius. Macmillan, London Hottois G (1984) Le signe et la technique. La philosophie à l’épreuve de la technique. Aubier Montaigne, Paris Human Genome Organization, HUGO, Ethical, Legal, and Social Issues Committee (1996) Principled conduct of genetics research. Bull Med Ethics 121:10–11 Hutt PB (1978) Research on recombinant DNA molecules: the regulatory issues. South Calif Law Rev 51:1435–1450 Huxley TH (2009). Science and culture. In: Escritos sobre ciência e religião, pp. 25–58. São Paulo: UNESP Jansen R, van Embden JDA, Gaastra W, Schouls LM (2002) Identification of genes that are associated with DNA repeats in prokaryotes. Mol Microbiol 43:1565–1575 Jinek M, Chylinski K, Fonfara I, Hauer M, Doudna JA, Charpentier E (2012) A programmable dual-RNA-guided DNA endonuclease in adaptive bacterial immunity. Science 337:816–821 Knoppers BM, Hirtle M, Lormeau S (1996) Ethical issues in international collaborative research on the human genome: the HGP and the HGDP. Genomics 34:272–282 Latour B (1987) Science in action. Milton Keynes, Pennsylvania Lemke AA, Trinidad SB, Edwards KL, Starks H, Wiesner GL (2010) Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection. J Empir Res Hum Res Ethics 5:83–91 Lenoir N (1997) UNESCO, genetics, and human rights. Kennedy Inst Ethics J 7:31–42 Lucas JR (1979) Wilberforce and Huxley: a legendary encounter. Hist J 22:313–330 Mendel G (1866) Versuche über pflanzen-hybriden. Verh Naturforsch Ver Brünn 4:3–47 Moreno JL (1934) Who shall survive? Beacon House, New York Münch R (2001) The ethics of modernity: formation and transformation in Britain, France, Germany, and the United States. Rowman and Littlefield, Oxford Nau J-I (2014) L’ affaire «Crispr-Cas9» ou l’ humanité génétiquement dépassée. Rev Med Suisse 10:1428a-1429a Niu Y, Shen B, Cui Y, Chen Y et al (2014) Generation of gene-modified cynomolgus monkey via Cas9/RNA-mediated gene targeting in one-cell embryos. Cell 156:836–843 Paoletti RA (ed) (1974) The spirit: who will make the choices of life and death? In: Selected readings: genetic engineering and bioethics, 2nd ed, pp. 24–30. MSS, New York Percival T (1987) Medical ethics. S. Russell, Manchester Potter VR (1971) Bioethics: bridge to the future. Prentice-Hall, New Jersey Raffensperger C, Tickner JA (1999) Protecting public health and the environment: implementing the precautionary principle. Island Press, Washington DC Schweitzer A (1999) The words of A. Schweitzer. Cousins N (ed). New York: New Market Press SciELO–Scientific Electronic Library Online (2015). Available at: www.scielo.org/php/index.php; accessed on: 10/01/2015 Stoddard L (1920) The rising tide of colour against white world-supremacy. Charles Scribner’s Sons, New York Trials of war criminal before the Nuremberg Military Tribunals (1949) Control Council Law 10:181–182 UNESCO (1997) Universal declaration on the human genome and human rights (revised draft). Bull Med Ethics 126:9–11 US National Library of Medicine (2015) PubMed. Available at: www.ncbi.nlm.nih.gov/pubmed; accessed on: 10/01/2015 US Government (1978) The Belmont Report: ethical guidelines for the protection of human subjects. Available at: http:// http://www.hhs.gov/ohrp/humansubjects/guidance/belmont.html; accessed on: 10/01/2015 Webber P (2014) Does CRISPR-Cas open new possibilities for patents or present a moral maze? Nat Biotechnol 32:331–333 WMA (1964) The World Medical Association Declaration of Helsinki. Available at: www.bioetica.ufrgs.br/helsin1.htm; accessed on: 10/01/2015