Blockchain Technology for Healthcare: Facilitating the Transition to Patient-Driven Interoperability

Health Affairs Health Policy Brief, 2014 Henry, 2008, Adoption of electronic health record systems among U.S. Non-Federal Acute Care Hospitals, ONC Data Brief, 35 Rosenbaum, 2015, Transitional Chaos or enduring harm? The EHR and the disruption of medicine, N Engl J Med, 373, 1585, 10.1056/NEJMp1509961 Office of the National Coordinator for Health Information Technology, 2015 Holmgren, 2017, Progress in interoperability: Measuring US Hospitals' engagement in sharing patient data, Health Aff Proj Hope, 36, 1820, 10.1377/hlthaff.2017.0546 Rahurkar, 2015, Despite the spread of health information exchange, there is little evidence of its impact on cost, use, and quality of care, Health Aff Proj Hope, 34, 477, 10.1377/hlthaff.2014.0729 H.R.34 - 21st Century Cures Act. n.d. Department of Veterans Affairs. Open API Pledge n.d. https://www.oit.va.gov/developer/pledge.cfm accessed March 26, 2018. Center for Medicare & Medicaid Services Julia Adler-Milstein. Moving past the EHR interoperability blame game. N Engl J Catal n.d. https://catalyst.nejm.org/ehr-interoperability-blame-game/ (accessed March 28, 2018). Catalini, 2016 Nakamoto, 2008 Gordon, 2017, Blockchain Technology in Health Care: Decoding the hype, NEJM Catal HIMSS. What is interoperability? n.d. Zhou, 2013, The impact of interoperability of electronic health records on ambulatory physician practices: A discrete-event simulation study, Inform Prim Care, 21, 21, 10.14236/jhi.v21i1.36 Stewart, 2010, A preliminary look at duplicate testing associated with lack of electronic health record interoperability for transferred patients, J Am Med Inform Assoc, 17, 341, 10.1136/jamia.2009.001750 Walker, 2005, The value of health care information exchange and interoperability, Health Aff Proj Hope, 10.1377/hlthaff.W5.10 Bipartisan Policy Center Health Information, 2012, Technology initiative Kierkegaard, 2014, Applications of health information exchange information to public health practice, AMIA Annu Symp Proc, 2014, 795 HealthIT.gov. State health information exchange. State health Inf Exch coop Agreem program n.d. https://www.healthit.gov/policy-researchers-implementers/state-health-information-exchange (accessed March 29, 2018). Adler, 2015, Patients in context — EHR capture of social and behavioral determinants of health, N Engl J Med, 372, 698, 10.1056/NEJMp1413945 Gold, 2017, Developing electronic health record (EHR) strategies related to health center patients' social determinants of health, J Am Board Fam Med, 30, 428, 10.3122/jabfm.2017.04.170046 Committee on the Recommended Social and Behavioral Domains and Measures for Electronic Health Records, 2015 Downing, 2017, Health information exchange policies of 11 diverse health systems and the associated impact on volume of exchange, J Am Med Inform Assoc, 24, 113, 10.1093/jamia/ocw063 Dolin, 2001, The HL7 clinical document architecture, J Am Med Inform Assoc, 8, 552, 10.1136/jamia.2001.0080552 2014 Centers for Medicare & Medicaid Services (CMS), 2015 Klein, 2016, Your patient is now reading your note: Opportunities, problems, and prospects, Am J Med, 129, 1018, 10.1016/j.amjmed.2016.05.015 Mandel, 2016, SMART on FHIR: A standards-based, interoperable apps platform for electronic health records, J Am Med Inform Assoc, 23, 899, 10.1093/jamia/ocv189 A next-generation smart contract and decentralized application platform. n.d. Angraal, 2017, Blockchain technology: Applications in health care, Circ Cardiovasc Qual Outcomes, 10, 10.1161/CIRCOUTCOMES.117.003800 Mettler, 2016, Blockchain technology in healthcare: The revolution starts here. 2016 IEEE 18th Int. Conf. E-Health Netw, Appl Serv Heal, 1 Kuo, 2017, Blockchain distributed ledger technologies for biomedical and health care applications, J Am Med Inform Assoc, 24, 1211, 10.1093/jamia/ocx068 Just, 2016, Why patient matching is a challenge: Research on master patient index (MPI) data discrepancies in key identifying fields, Perspect Health Inf Manag, 1e, 13 Joffe, 2012, Duplicate patient records – implication for missed laboratory results, AMIA Annu Symp Proc, 2012, 1269 Cohen, 2016, Integrating patient-generated health data into clinical care settings or clinical decision-making: Lessons learned from project HealthDesign, JMIR Hum Factors, 3, 10.2196/humanfactors.5919 Chung, 2016, Harnessing person-generated health data to accelerate patient-centered outcomes research: The Crohn's and Colitis Foundation of America PCORnet patient powered research network (CCFA Partners), J Am Med Inform Assoc, 23, 485, 10.1093/jamia/ocv191 Joffe, 2013, Optimized dual threshold entity resolution for electronic health record databases – training set size and active learning, AMIA Annu Symp Proc, 2013, 721 Dinov, 2016, Volume and value of big healthcare data, J Med Stat Inform, 4, 10.7243/2053-7662-4-3 Fornell, 2016, Cardiac MRI advances, Diagn Interv Cardiol Lightning Network n.d. https://lightning.network/ (accessed April 2, 2018). Sweeney, 2000 L119, Regulation on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (Data Protection Directive). n.d., 4 May 2016, p. 1–88. Yue, 2016, Healthcare data gateways: Found healthcare intelligence on Blockchain with novel privacy risk control, J Med Syst, 40, 10.1007/s10916-016-0574-6 Ivan, 2016 Gordon, 2016 Zyskind, 2015, Decentralizing privacy: Using blockchain to protect personal data, IEEE Secur Priv Work, 2015, 180 Health Level Seven International (HL7). Introducing HL7 FHIR n.d. http://www.hl7.org/fhir/summary.html accessed January 9, 2017. Zhang, 2018 Azaria, 2016, MedRec: Using blockchain for medical data access and permission management, 25 Dubovitskaya, 2017 Apple Sync 4 Science n.d. http://syncfor.science/ accessed May 31, 2018