Self-reported quality of life of 8–12-year-old children with cerebral palsy: a cross-sectional European study

1989 2006 1995, The World Health Organization quality of life assessment (WHOQOL): position paper from the World Health Organization, Soc Sci Med, 41, 1403, 10.1016/0277-9536(95)00112-K Eiser, 2001, Quality-of-life measures in chronic diseases of childhood, Health Technol Assess, 5, 1, 10.3310/hta5040 Riley, 2004, Evidence that school-age children can self-report on their health, Ambul Pediatr, 4, 371, 10.1367/A03-178R.1 Arnold, 1992, Self-esteem, aspirations and expectations of adolescents with physical disability, Dev Med Child Neurol, 34, 97, 10.1111/j.1469-8749.1992.tb14975.x Kuczynski, 2003, Quality of life evaluation in children and adolescents with chronic and/or incapacitating diseases: a Brazilian study, Ann Pediatr (Paris), 58, 550, 10.1016/S1695-4033(03)78120-X Shields, 2006, A systematic review of the self-concept of children with cerebral palsy compared with children without disability, Dev Med Child Neurol, 48, 151, 10.1017/S0012162206000326 Vargus-Adams, 2005, Health-related quality of life in childhood cerebral palsy, Arch Phys Med Rehabil, 86, 940, 10.1016/j.apmr.2004.10.036 Watson, 2002, Comparing the quality of life of school-age children with and without disabilities, Ment Retard, 40, 304, 10.1352/0047-6765(2002)040<0304:CTQOLO>2.0.CO;2 Varni, 2005, Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of children, Dev Med Child Neurol, 48, 592, 10.1111/j.1469-8749.2005.tb01209.x Liptak, 2001, The health status of children with moderate to severe cerebral palsy, Dev Med Child Neurol, 43, 364, 10.1017/S001216220100069X Grue, 2003, Do adolescents with disabilities view themselves different from other young people?, Dev Med Child Neurol, 45, 8 Wake, 2003, Health status of Australian children with mild to severe cerebral palsy: cross-sectional survey using the Child Health Questionnaire, Dev Med Child Neurol, 45, 194, 10.1111/j.1469-8749.2003.tb00930.x Kennes, 2002, Health status of school-aged children with cerebral palsy: information from a population-based sample, Dev Med Child Neurol, 44, 240, 10.1017/S0012162201002018 Houlihan, 2004, Bodily pain and health-related quality of life in children with cerebral palsy, Dev Med Child Neurol, 46, 305, 10.1111/j.1469-8749.2004.tb00490.x Rendeli, 2005, Assessment of health status in children with spina bifida, Spinal Cord, 43, 230, 10.1038/sj.sc.3101707 Pirpiris, 2006, Function and well-being in ambulatory children with cerebral palsy, J Pediatr Orthop, 26, 119, 10.1097/01.bpo.0000191553.26574.27 McCarthy, 2002, Comparing reliability and validity of pediatric instruments for measuring health and well-being of children with spastic cerebral palsy, Dev Med Child Neurol, 44, 468, 10.1111/j.1469-8749.2002.tb00308.x Davis, 2006, Paediatric quality of life instruments: a review of the impact of the conceptual framework on outcomes, Dev Med Child Neurol, 48, 311, 10.1017/S0012162206000673 Marks, 1997, Models of disability, Disabil Rehabil, 19, 85, 10.3109/09638289709166831 Oliver, 1990 Colver, 2006, Study protocol: SPARCLE—a multi-centre European study of the relationship of environment to participation and quality of life of children with cerebral palsy, BMC Public Health, 6, 105, 10.1186/1471-2458-6-105 Dickinson, 2006, Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy, BMC Public Health, 6, 273, 10.1186/1471-2458-6-273 Cummins, 1993 Ravens-Sieberer, 2005, KIDSCREEN-52 quality-of-life measure for children and adolescents, Expert Rev Pharmacoeconomics Outcomes Res, 5, 353, 10.1586/14737167.5.3.353 Detmar, 2006, The use of focus groups in the development of the KIDSCREEN HRQL questionnaire, Qual Life Res, 15, 1345, 10.1007/s11136-006-0022-z Bisegger, 2005, Health-related quality of life: gender differences in childhood and adolescence, Soz Praventivmed, 50, 281, 10.1007/s00038-005-4094-2 2006 Beaton, 2000, Guidelines for the process of cross-cultural adaptation of self-report measures, Spine, 25, 3186, 10.1097/00007632-200012150-00014 Cronbach, 1951, Coefficient alpha and the internal structure of test, Psychometrics, 16, 297, 10.1007/BF02310555 Landgraf, 1999 Palisano, 1997, Development and reliability of a system to classify gross motor function in children with cerebral palsy, Dev Med Child Neurol, 39, 214, 10.1111/j.1469-8749.1997.tb07414.x Beckung, 2002, Neuroimpairments, activity limitations, and participation restrictions in children with cerebral palsy, Dev Med Child Neurol, 44, 309, 10.1111/j.1469-8749.2002.tb00816.x Dales, 1978, An improper use of statistical significance testing in studying covariables, Int J Epidemiol, 7, 373, 10.1093/ije/7.4.373 Royall, 1986, Model robust confidence intervals using maximum likelihood estimators, Int Stat Rev, 54, 221, 10.2307/1403146 White-Koning, 2005, Subjective quality of life in children with intellectual impairment—how can it be assessed?, Dev Med Child Neurol, 47, 281, 10.1017/S0012162205000526 Jemta, 2005, Well-being among children and adolescents with mobility impairment in relation to demographic data and disability characteristics, Acta Paediatr, 94, 616, 10.1111/j.1651-2227.2005.tb01948.x Brunner, 2004, Health of children with chronic arthritis: relationship of different measures and the quality of parent proxy reporting, Arthritis Rheum, 51, 763, 10.1002/art.20689 Appleton, 1994, The self-concept of young people with spina bifida: a population-based study, Dev Med Child Neurol, 36, 198, 10.1111/j.1469-8749.1994.tb11833.x King, 1993, Self-evaluation and self-concept of adolescents with physical disabilities, Am J Occup Ther, 47, 132, 10.5014/ajot.47.2.132 Sallfors, 2004, Well-being in children with juvenile chronic arthritis, Clin Exp Rheumatol, 22, 125 Sawyer, 2004, The relationship between health-related quality of life, pain and coping strategies in juvenile idiopathic arthritis, Rheumatology, 43, 325, 10.1093/rheumatology/keh030 Bakoula, 2006, Prevalence of recurrent complaints of pain among Greek schoolchildren and associated factors: a population-based study, Acta Paediatr, 95, 947, 10.1080/08035250600684453 Petersen, 2006, Recurrent pain symptoms in young schoolchildren are often multiple, Pain, 121, 145, 10.1016/j.pain.2005.12.017 Kristjansdottir, 1997, Prevalence of pain combinations and overall pain: a study of headache, stomach pain and back pain among school-children, Scand J Soc Med, 25, 58, 10.1177/140349489702500112 Albrecht, 1999, The disability paradox: high quality of life against all odds, Soc Sci Med, 48, 977, 10.1016/S0277-9536(98)00411-0