Valoración de la actividad, del daño crónico y alteración de la calidad de vida en una cohorte de pacientes colombianos con lupus eritematoso sistémico por medio de SELENA-SLEDAI, BILAG 2004, SLICC/ACR y SF-36

Revista Colombiana de Reumatología - Tập 20 - Trang 211-217 - 2013
Jorge Enrique Medina1, Claudia Mora1, Diego Alejandro Jaimes1, Ana Milena Arbeláez1, Paula Andrea Valencia Toro1, Rosa Elena Salazar1, Alberto de Zubiria2, Lina Murcia1, Giovanny de la Cruz1, Rafael Valle Oñate1, John Londoño1
1Grupo de estudio de Espondiloartropatías, Universidad de La Sabana – Hospital Militar Central de Bogotá, Bogotá, Colombia
2Departamento de Medicina Interna, Hospital de La Samaritana, Universidad de La Sabana, Chía, Cundinamarca, Colombia

Tài liệu tham khảo

Rahman, 2008, Systemic lupus erythematosus, N Engl J Med, 358, 929, 10.1056/NEJMra071297 Gaviria Jaramillo, 2007, Características clínicas y serológicas de los pacientes con LES de inicio tardío en una población colombiana, Rev Colomb Reumatol, 14, 23 Gordon, 2013, The substantial burden of systemic lupus erythematosus on the productivity and careers of patients: a European patient-driven online survey, Rheumatology, 52, 2292, 10.1093/rheumatology/ket300 Balsamo, 2013, Low dynamic muscle strength and its associations with fatigue, functional performance, and quality of life in premenopausal patients with systemic lupus erythematosus and low disease activity: a case–control study, BMC Musculoskelet Disord, 14, 263, 10.1186/1471-2474-14-263 Nikpour, 2009, Frequency and determinants of flare and persistently active disease in systemic lupus erythematosus, Arthritis Rheum, 61, 1152, 10.1002/art.24741 Bombardier, 1992, Derivation of the SLEDAI. A disease activity index for lupus patients. The Committee on Prognosis Studies in SLE, Arthritis Rheum, 35, 630, 10.1002/art.1780350606 Petri, 1992, Validity and reliability of lupus activity measures in the routine clinic setting, J Rheumatol, 19, 53 Petri, 2005, Combined oral contraceptives in women with systemic lupus erythematosus, N Engl J Med, 353, 2550, 10.1056/NEJMoa051135 Liang, 1989, Reliability and validity of six systems for the clinical assessment of disease activity in systemic lupus erythematosus, Arthritis Rheum, 32, 1107, 10.1002/anr.1780320909 Symmons, 1988, Development and assessment of a computerized index of clinical disease activity in systemic lupus erythematosus. Members of the British Isles Lupus Assessment Group (BILAG), Q J Med, 69, 927 Hay, 1993, The BILAG index: a reliable and valid instrument for measuring clinical disease activity in systemic lupus erythematosus, Q J Med, 86, 447 Isenberg, 2005, BILAG 2004. Development and initial validation of an updated version of the British Isles Lupus Assessment Group›s disease activity index for patients with systemic lupus erythematosus, Rheumatology, 44, 902, 10.1093/rheumatology/keh624 Gladman, 1992, Systemic lupus international collaborative clinics: development of a damage index in systemic lupus erythematosus, J Rheumatol, 19, 1820 Gladman, 1997, The reliability of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index in patients with systemic lupus erythematosus, Arthritis Rheum, 40, 809, 10.1002/art.1780400506 Rahman, 2001, Early damage as measured by the SLICC/ACR damage index is a predictor of mortality in systemic lupus erythematosus, Lupus, 10, 93, 10.1191/096120301670679959 Kuriya, 2008, Quality of life over time in patients with systemic lupus erythematosus, Arthritis Rheum, 59, 181, 10.1002/art.23339 Panopalis, 2006, Quality of life in systemic lupus erythematosus, Clin Dev Immunol, 13, 321, 10.1080/17402520600877760 Jolly, 2005, How does quality of life of patients with systemic lupus erythematosus compare with that of other common chronic illnesses?, J Rheumatol, 32, 1706 Panopalis, 2005, The systemic lupus erythematosus tri-nation study: longitudinal changes in physical and mental well-being, Rheumatology, 44, 751, 10.1093/rheumatology/keh580 Pons-Estel, 2004, The GLADEL multinational Latin American prospective inception cohort of 1,214 patients with systemic lupus erythematosus: ethnic and disease heterogeneity among “Hispanics”, Medicine, 83, 1, 10.1097/01.md.0000104742.42401.e2 Alarcón, 1999, Systemic lupus erythematosus in three ethnic groups: III. A comparison of characteristics early in the natural history of the LUMINA cohort, LUpus in MInority populations: NAture vs. Nurture, Lupus, 8, 197, 10.1191/096120399678847704 Panqueva Martínez U. Caracterización clínica e inmunológica de pacientes con lupus eritematoso sistémico de origen tardío [tesis de graduación]. Universidad Nacional de Colombia; 2010. Ariza K, Isaza P, Gaviria A, Quiceno J, Vinaccia S, Alvarán L, et al. Calidad de vida relacionada con la salud, factores psicológicos y fisiopatológicos en pacientes con diagnóstico de Lupus Eritematoso Sistémico - LES. Terapia psicológica. 2010; 28:27–36. Disponible en: http://www.scielo.cl/scielo.php?pid=S0718-48082010000100003&script=sci_arttext&tlng=pt. Gladman, 1996, Systemic Lupus International Collaborating Clinics conference on assessment of lupus flare and quality of life measures in SLE. Systemic Lupus International Collaborating Clinics Group, J Rheumatol, 23, 1953 Vilagut, 2005, [The Spanish version of the Short Form 36 Health Survey: a decade of experience and new developments], Gac Sanit, 19, 135, 10.1157/13074369 Hochberg, 1997, Updating the American College of Rheumatology revised criteria for the classification of systemic lupus erythematosus, Arthritis Rheum, 40, 1725, 10.1002/art.1780400928 Tan, 1982, The 1982 revised criteria for the classification of systemic lupus erythematosus, Arthritis Rheum, 25, 1271, 10.1002/art.1780251101 Tikly, 2008, Lupus in the developing world–is it any different?, Best Pract Res Clin Rheumatol, 22, 643, 10.1016/j.berh.2008.05.003 Ruiz, 2003, Descripción de una cohorte de pacientes con Lupus Eritematoso Sistémico (LES) en un Hospital de Bogotá-Colombia, Rev Colomb Reumatol, 10, 266 Molina, 1996, Systemic lupus erythematosus in males. A study of 107 Latin American patients, Medicine, 75, 124, 10.1097/00005792-199605000-00002 Manger, 2002, Definition of risk factors for death, end stage renal disease, and thromboembolic events in a monocentric cohort of 338 patients with systemic lupus erythematosus, Ann Rheum Dis, 61, 1065, 10.1136/ard.61.12.1065 García, 2005, Male systemic lupus erythematosus in a Latin-American inception cohort of 1214 patients, Lupus, 14, 938, 10.1191/0961203305lu2245oa Baer, 2010, Secondary Sjogren's syndrome in systemic lupus erythematosus defines a distinct disease subset, J Rheumatol, 37, 1143, 10.3899/jrheum.090804 Pons-Estel, 2010, Understanding the epidemiology and progression of systemic lupus erythematosus, Semin Arthritis Rheum, 39, 257, 10.1016/j.semarthrit.2008.10.007 Toloza, 2010, Quality-of-life measurements in multiethnic patients with systemic lupus erythematosus: cross-cultural issues, Curr Rheumatol Rep, 12, 237, 10.1007/s11926-010-0110-5 Duran, 2007, Damage, accelerated atherosclerosis, and mortality in patients with systemic lupus erythematosus: lessons from LUMINA, a multiethnic US cohort, J Clin Rheumatol, 13, 350, 10.1097/RHU.0b013e31815d23ad Lalani, 2010, Clinical features and prognosis of late-onset systemic lupus erythematosus: results from the 1000 faces of lupus study, J Rheumatol, 37, 38, 10.3899/jrheum.080957 Gladman, 1996, The development and initial validation of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology damage index for systemic lupus erythematosus, Arthritis Rheum, 39, 363, 10.1002/art.1780390303 Stoll, 2004, Analysis of the relationship between disease activity and damage in patients with systemic lupus erythematosus—a 5-yr prospective study, Rheumatology, 43, 1039, 10.1093/rheumatology/keh238 Stoll, 1996, SLICC/ACR Damage Index is valid, and renal and pulmonary organ scores are predictors of severe outcome in patients with systemic lupus erythematosus, Br J Rheumatol, 35, 248, 10.1093/rheumatology/35.3.248 Chambers, 2009, Damage and mortality in a group of British patients with systemic lupus erythematosus followed up for over 10 years, Rheumatology, 48, 673, 10.1093/rheumatology/kep062 Alarcón, 2004, Systemic lupus erythematosus in three ethnic groups. XX. Damage as a predictor of further damage, Rheumatology, 43, 202, 10.1093/rheumatology/keg481 Gilboe, 2001, Disease course in systemic lupus erythematosus: changes in health status, disease activity, and organ damage after 2 years, J Rheumatol, 28, 266 Yazdany, 2010, Health-related quality of life and employment among persons with systemic lupus erythematosus, Rheum Dis Clin North Am, 36, 15, 10.1016/j.rdc.2009.12.006 Alarcón, 2004, Systemic lupus erythematosus in a multiethnic lupus cohort (LUMINA). XVII. Predictors of self-reported health-related quality of life early in the disease course, Arthritis Rheum, 51, 465, 10.1002/art.20409