Satisfaction with genetic counseling for BRCA1 and BRCA2 mutations among African American women

Patient Education and Counseling - Tập 63 - Trang 196-204 - 2006
Sarah Charles1, Lisa Kessler2, Jill E. Stopfer3, Susan Domchek4, Chanita Hughes Halbert5
1Genetic Counseling Training Program, Arcadia University, Glenside, PA, United States
2Department of Psychiatry, University of Pennsylvania, Philadelphia, PA, United States
3Abramson Cancer Center, University of Pennsylvania, Philadelphia, PA, United States
4Department of Medicine and Abramson Cancer Center, University of Pennsylvania, Philadelphia, PA, United States
5Department of Psychiatry, Abramson Cancer Center, and Leonard Davis Institute of Economics, University of Pennsylvania, 3535 Market Street, Suite 4100, Philadelphia, PA 19104, United States

Tài liệu tham khảo

Gao, 2000, Prevalence of BRCA1 and BRCA2 mutations among clinic-based African American families with breast cancer, Hum Genet, 107, 186, 10.1007/s004390000290 Panguluri, 1999, BRCA1 mutations in African Americans, Hum Genet, 105, 28, 10.1007/s004390051059 Frank, 2002, Clinical characteristics of individuals with germline mutations in BRCA1 and BRCA2: analysis of 10,000 individuals, J Clin Oncol, 20, 1480, 10.1200/JCO.20.6.1480 Antoniou, 2003, Average risks of breast and ovarian cancer associated with BRCA1 or BRCA2 mutations detected in case series unselected for family history: a combined analysis of 22 studies, Am J Hum Genet, 72, 1117, 10.1086/375033 Ford, 1998, Genetic heterogeneity and penetrance analysis of the BRCA1 and BRCA2 genes in breast cancer families, Am J Hum Genet, 62, 676, 10.1086/301749 Easton, 1995, Breast and ovarian cancer incidence in BRCA1-mutation carriers, Am J Hum Genet, 56, 265 Thompson, 2002, Psychosocial predictors of BRCA counseling and testing decisions among urban African-American women, Cancer Epidemiol Biomark Prev, 11, 1579 Hughes, 2003, Sociocultural influences on participation in genetic risk assessment and testing among African American women, Patient Educ Couns, 51, 107, 10.1016/S0738-3991(02)00179-9 Lerman, 1999, Racial differences in testing motivation and psychological distress following pretest education for BRCA1 gene testing, Cancer Epidemiol Biomark Prev, 8, 361 Baty, 2003, Developing culturally sensitive cancer genetics communication aids for African Americans, Am J Med Genet, 118, 146, 10.1002/ajmg.a.10150 van Campen, 1995, Quality of care and patient satisfaction: a review of measuring instruments, Med Care Res Rev, 52, 109, 10.1177/107755879505200107 Shiloh, 1990, Satisfaction with genetic counseling: dimensions and measurement, Am J Med Genet, 37, 522, 10.1002/ajmg.1320370419 Powis, 2003, Male infertility: perceptions, utility, and satisfaction with genetic counseling services, Fertil Steril, 80, 52, 10.1016/S0015-0282(03)01942-3 Tercyak, 2001, Psychological response to prenatal genetic counseling and amniocentesis, Patient Educ Couns, 43, 73, 10.1016/S0738-3991(00)00146-4 DeMarco, 2004, Patient satisfaction with cancer genetic counseling: a psychometric analysis of the Genetic Counseling Satisfaction Scale, J Genet Couns, 13, 293, 10.1023/B:JOGC.0000035523.96133.bc Nordin, 2002, Coping style, psychological distress, risk perception, and satisfaction in subjects attending genetic counselling for hereditary cancer, J Med Genet, 39, 689, 10.1136/jmg.39.9.689 Clark, 2000, Patient motivation, satisfaction, and coping in genetic counseling and testing for BRCA1 and BRCA2, J Genet Couns, 9, 219, 10.1023/A:1009463905057 Lannin, 1998, Influence of socioeconomic and cultural factors on racial differences in late-stage presentation of breast cancer, J Am Med Assoc, 279, 1801, 10.1001/jama.279.22.1801 Bourjolly, 1998, Differences in religiousness among black and white women with breast cancer, Soc Work Health Care, 28, 21, 10.1300/J010v28n01_02 Schwartz, 2000, Spiritual faith and genetic testing decisions among high risk breast cancer probands, Cancer Epidemiol Biomark Prev, 9, 381 Lukwago, 2003, Sociocultural correlates of breast cancer knowledge and screening in urban African American women, Am J Public Health, 93, 1271, 10.2105/AJPH.93.8.1271 Boykin, 1997, Communalism: conceptualization and measurement of an Afrocultural social orientation, J Black Stud, 27, 409, 10.1177/002193479702700308 Telfair, 1996, African American culture, 36 Taylor, 2001, Spirituality, culture, and cancer care, Semin Oncol Nurs, 17, 197, 10.1053/sonu.2001.25949 Bessinger, 2002, Medical spirituality: defining domains and boundaries, S Med J, 95, 1385, 10.1097/00007611-200212000-00006 Holman, 1998, Getting “stuck” in the past: temporal orientation and coping with trauma, J Pers Soc Psychol, 5, 1146, 10.1037/0022-3514.74.5.1146 Brown, 1996, Ethnic differences in temporal orientation and its implications for hypertension management, J Health Soc Behav, 37, 350, 10.2307/2137262 Jones, 1988, Cultural differences in temporal orientation: instrumental and expressive behaviors in time, 21 Hughes, 1997, Ethnic differences in knowledge and attitudes about BRCA1 testing in women at increased risk, Patient Educ Couns, 32, 51, 10.1016/S0738-3991(97)00064-5 Domchek, 2003, Application of breast cancer risk prediction models in clinical practice, J Clin Oncol, 21, 593, 10.1200/JCO.2003.07.007 Halbert, 2005, Recruiting African American women to participate in hereditary breast cancer research, J Clin Oncol, 23, 7967, 10.1200/JCO.2004.00.4952 Greb, 1998 Weil, 2000 Jackson, 1992, Implications of an Africentric worldview in reducing stress for African American women, J Couns Dev, 71, 184, 10.1002/j.1556-6676.1992.tb02196.x Myers, 1988 Blackwood, 2001, Predicted probability of breast cancer susceptibility mutations, Breast Cancer Res Tr, 69, 223 Couch, 1997, BRCA1 mutations in women attending clinics that evaluate the risk of breast cancer, New Engl J Med, 336, 1409, 10.1056/NEJM199705153362002 Lerman, 1994, Attitudes about genetic testing for breast–ovarian cancer susceptibility, J Clin Oncol, 12, 843, 10.1200/JCO.1994.12.4.843 Lerman, 1997, Controlled trial of pretest education approaches to enhance informed decision-making for BRCA1 gene testing, J Natl Cancer I, 89, 148, 10.1093/jnci/89.2.148 Jay, 2000, The role of expectations in effective genetic counselling, J Genet Couns, 9, 95, 10.1023/A:1009493424814 Sagi, 1998, The effect of genetic counseling on knowledge and perceptions regarding risks for breast cancer, J Genet Couns, 7, 417, 10.1023/A:1022880831996 Stadler, 1998, Cancer risk assessment and genetic counseling in an academic medical center: counsultands’ satisfaction, knowledge, and behavior in the first year, J Genet Couns, 7, 279, 10.1023/A:1022847323935 Peters, 2004, The association between race and attitudes about predictive genetic testing, Cancer Epidemiol Biomark Prev, 13, 361, 10.1158/1055-9965.361.13.3 Donovan, 2000, Knowledge about genetic risk for breast cancer and perceptions of genetic testing in a sociodemographically diverse sample, J Behav Med, 23, 15, 10.1023/A:1005416203239 Kessler, 2005, Attitudes about genetic testing and genetic testing intentions in African American women at increased risk for hereditary breast cancer, Genet Med, 7, 230, 10.1097/01.GIM.0000159901.98315.FE Neighbors, 1986, Socioeconomic status and psychologic distress in adult blacks, Am J Epidemiol, 124, 779, 10.1093/oxfordjournals.aje.a114454 Cockerham, 1990, A test of the relationship between race, socioeconomic status, and psychological distress, Soc Sci Med, 31, 1321, 10.1016/0277-9536(90)90071-Y Ashing-Giwa, 1999, Quality of life of African-American and white long term breast carcinoma survivors, Cancer, 85, 418, 10.1002/(SICI)1097-0142(19990115)85:2<418::AID-CNCR20>3.0.CO;2-9 Taylor, 2003, Psychological adjustment among African American breast cancer patients: one-year follow-up results of a randomized psychoeducational group intervention, Health Psychol, 22, 316, 10.1037/0278-6133.22.3.316 Halbert, 2005, Psychological functioning in African American women at increased risk for hereditary breast and ovarian cancer, Clin Genet, 68, 222, 10.1111/j.1399-0004.2005.00483.x Hughes, 2004, Minority recruitment in hereditary breast cancer research, Cancer Epidemiol Biomark Prev, 13, 1146, 10.1158/1055-9965.1146.13.7 Schwartz, 2004, Impact of BRCA1/BRCA2 counseling and testing in newly diagnosed breast cancer patients, J Clin Oncol, 22, 1, 10.1200/JCO.2004.04.086 Michielutte, 1992, The use of illustrations and narrative text style to improve readability of a health education brochure, J Cancer Educ, 7, 251, 10.1080/08858199209528176 Kreuter, 2005, Cultural tailoring for mammography and fruit and vegetable intake among low-income African-American women in urban public health centers, Prev Med, 41, 53, 10.1016/j.ypmed.2004.10.013 Holt CL, Klem PR. As you go, spread the word: spiritually based breast cancer education for African American women. Gynecol Oncol 2005;99(Suppl. 1).