“You need something like this to give you guidelines on what to do”: patients' and partners' use and perceptions of a self-directed coping skills training resource

Springer Science and Business Media LLC - Tập 21 - Trang 3451-3460 - 2013
Sylvie D. Lambert1, Afaf Girgis2, Jane Turner3, Tim Regan4, Hayley Candler2, Ben Britton5, Suzanne Chambers6, Catalina Lawsin7, Karen Kayser8
1Ingram School of Nursing, Faculty of Medicine, McGill University, Montreal, Canada
2Translational Cancer Research Unit, Ingham Institute for Applied Medical Research, South Western Sydney Clinical School, UNSW Medicine, The University of New South Wales, Liverpool, Australia
3K Floor, Mental Health Centre, The University of Queensland, Herston, Australia
4Centre for Translational Neuroscience and Mental Health (CTNMH), Calvary Mater Newcastle, The University of Newcastle, Waratah, Australia
5Psycho-Oncology Service, Calvary Mater Newcastle, Waratah, Australia
6Griffith University, Logan City, Australia
7School of Psychology, The University of Sydney, Sydney, Australia
8Kent School of Social Work, University of Louisville, Louisville, USA

Tóm tắt

This study aims to report on the acceptability of a self-directed coping skills intervention, called Coping-Together, for patients affected by cancer and their partners, including the strengths and limitations of the intervention design. This initial version of Coping-Together included a series of four booklets, which aimed to provide practical coping strategies for the day-to-day management of common physical and psychosocial challenges. Thirty semi-structured interviews were conducted with 27 patients and/or 14 partners. Interviews were audiorecorded, transcribed verbatim, and analyzed for content. Participants endorsed the self-directed format, and the focus of Coping-Together on practical information was a feature that set it apart from other resources. The majority of participants interviewed felt that the proposed coping strategies were “doable”; however, only half of the participants reported learning new coping skills after reading the booklets. Additional benefits of reading the booklets were increasing awareness of challenges to prepare for, giving hope that something can help you “pull through”, providing a sense of normality, connecting patients and partners to people and services, and complementing support received from health professionals. Despite the general acceptability of the intervention, some aspects of its design were criticized, including the workbook-like exercises, expectations about using the resource together, level of guidance provided, and amount of information included. In general, most participants felt that too much negative information was included, whereas more experiential information was desired. Preliminary evaluation of Coping-Together supported its practical approach and highlighted improvements to enhance its contribution to patient and partner coping.

Tài liệu tham khảo

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