“Patient participation” and related concepts: A scoping review on their dimensional composition

Patient Education and Counseling - Tập 103 - Trang 5-14 - 2020
I. Ortiz Halabi1, B. Scholtes1, B. Voz1, N. Gillain1, N. Durieux2, A. Odero3, M. Baumann3, O. Ziegler4, R. Gagnayre5, M. Guillaume6, I. Bragard1, B. Pétré1
1Department of Public Health Sciences, Faculty of Medicine, University of Liège, CHU de Liège, Avenue de l’Hôpital, 3 — Bât 23, 4000 Liège, Belgium
2ULiege Library, University of Liege, BSV - Bibliothèque des Sciences de la Vie (CHU), B34 - Quartier Hôpital Avenue de l'Hôpital, 11, 4000 Liège, Belgium
3Institute for Research on Sociology and Economic Inequalities (IRSEI) MSH, Campus Belval, University of Luxembourg, L-4366 Esch-sur-Alzette, Luxembourg
4Department of Endocrinology, Diabetes, and Nutrition, University Hospital Centre, CHRU de Nancy, Hôpital Brabois Adultes 1, rue du Morvan 54511 VANDOEUVRE-LES, Nancy, France
5Head of the Laboratory of Education and Health Practices EA 3412, University Paris 13, LEPS, 74 Rue Marcel Cachin, 93017 Bobigny, France
6Head of the Department of Public Health Sciences, Faculty of Medicine, University of Liège, CHU de Liège, Avenue de l’Hôpital, 3 — Bât 23, 4000 Liège, Belgium

Tài liệu tham khảo

Engel, 1980, The clinical application of the biopsychosocial model, Am. J. Psychiatry, 137, 535, 10.1176/ajp.137.5.535 Borrell-Carrio, 2004, The biopsychosocial model 25 years later: principles, practice, and scientific inquiry, Ann. Fam. Med., 2, 576, 10.1370/afm.245 Anderson, 2005, Patient empowerment: reflections on the challenge of fostering the adoption of a new paradigm, Patient Educ. Couns., 57, 153, 10.1016/j.pec.2004.05.008 Richards, 2013, Let the patient revolution begin, BMJ, 346, 10.1136/bmj.f2614 World Health Organization (WHO), 1978 World Health Organization (WHO), 2016 World Health Organization (WHO), 2015 World Health Organization (WHO), 2014 Andrist, 1997, A feminist model for women’s health care, Nuning Inq., 4, 268, 10.1111/j.1440-1800.1997.tb00113.x Deber, 1994, Physicians in health care management: 8. The patient-physician partnership: decision making, problem solving and the desire to participate, Can. Med. Assoc. J., 151, 423 deBronkart, 2015, From patient centred to people powered: autonomy on the rise, BMJ, 350, 10.1136/bmj.h148 Eysenbach, 2001, Evidence-based patient choice and consumer health informatics in the Internet age, J. Med. Internet Res., 3, 94, 10.2196/jmir.3.2.e19 Cassileth, 1980, Information and participation preferences among cancer patients, Ann. Intern. Med., 92, 832, 10.7326/0003-4819-92-6-832 Strull, 1984, Do patients want to participate in medical decision making?, JAMA, 252, 2990, 10.1001/jama.1984.03350210038026 Smith, 2013, An evidence-based patient-centered method makes the biopsychosocial model scientific, Patient Educ. Couns., 91, 265, 10.1016/j.pec.2012.12.010 Glasby, 2005, Who knows best? Evidence-based practice and the service user contribution, Crit. Soc. Policy, 26, 268, 10.1177/0261018306059775 VanVactor, 2013, Leveraging the Patient-Centered Medical Home (PCMH) model as a health care logistics support strategy, Leadersh. Heal. Serv., 26, 95, 10.1108/17511871311319696 Pomey, 2015, The Montreal model: the challenges of a partnership relationship between patients and healthcare professionals, Sante Publique (Paris), 27, 41, 10.3917/spub.150.0041 Sahlsten, 2008, An analysis of the concept of patient participation, Nurs. Forum, 43, 2, 10.1111/j.1744-6198.2008.00090.x Graffigna, 2017, Editorial: consumer engagement in health and well-being: theoretical and empirical perspectives in patient centered medicine, Front. Psychol., 8, 1, 10.3389/fpsyg.2017.01811 Lusk, 2013, A concept analysis of patient-centered care, Nurs. Forum, 48, 89, 10.1111/nuf.12019 Hoff, 2012, The patient-centered medical home: a review of recent research, Med. Care Res. Rev., 69, 619, 10.1177/1077558712447688 Agostino, 2018, Promoting patient participation in healthcare interactions through communication skills training: a systematic review, Patient Educ. Couns., 100, 1247, 10.1016/j.pec.2017.02.016 Snyder, 2016, The antecedents, forms and consequences of patient involvement: a narrative review of the literature, Int. J. Nurs. Stud., 53, 351, 10.1016/j.ijnurstu.2015.09.008 Rogers, 1959, A theory of therapy, personality and interpersonal relationships, as developed in the client-centered framework, Psychol. A Study Sci., 184 Mead, 2000, Patient-centredness: a conceptual framework and review of the empirical literature, Soc. Sci. Med., 51, 1087, 10.1016/S0277-9536(00)00098-8 Reach, 2009, Obstacles to patient education in chronic diseases: a trans-theoretical analysis, Patient Educ. Couns., 77, 192, 10.1016/j.pec.2009.05.005 Castro, 2016, Patient empowerment, patient participation and patient-centeredness in hospital care: a concept analysis based on a literature review, Patient Educ. Couns., 99, 1923, 10.1016/j.pec.2016.07.026 Carman, 2013, Patient and family engagement: a framework for understanding the elements and developing interventions and policies, Health Aff., 32, 223, 10.1377/hlthaff.2012.1133 Hibbard, 2013, What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs, Health Aff., 32, 207, 10.1377/hlthaff.2012.1061 Courtney, 1996, The partnership model: working with individuals, families, and communities toward a new vision of health, Public Health Nurs., 10.1111/j.1525-1446.1996.tb00238.x Fumagalli, 2015, Patient Empowerment and its neighbours: clarifying the boundaries and their mutual relationships, Health Policy (New York), 119, 384, 10.1016/j.healthpol.2014.10.017 Angel, 2015, Challenges in achieving patient participation: A review of how patient participation is addressed in empirical studies, Int. J. Nurs. Stud., 52, 1525, 10.1016/j.ijnurstu.2015.04.008 Scholl, 2014, An integrative model of patient-centeredness - a systematic review and concept analysis, PLoS One, 9, 1, 10.1371/journal.pone.0107828 Bravo, 2015, Conceptualising patient empowerment: a mixed methods study, BMC Health Serv. Res., 15, 1, 10.1186/s12913-015-0907-z Margolis, 2007, The ontology of concepts—abstract objects or mental representations?, Nous, 41, 561, 10.1111/j.1468-0068.2007.00663.x Mylopoulos, 1992, 49 Dimension, 2019 Tricco, 2018, Extension for scoping reviews (PRISMA-ScR): checklist and explanation, Ann. Intern. Med., 169, 467, 10.7326/M18-0850 Colquhoun, 2014, Scoping reviews: time for clarity in definition, methods, and reporting, J. Clin. Epidemiol., 67, 1291, 10.1016/j.jclinepi.2014.03.013 Greenhalgh, 2005, Effectiveness and efficiency of search methods in systematic reviews of complex evidence: audit of primary sources, BMJ, 331, 1064, 10.1136/bmj.38636.593461.68 Peljak, 2011, 135 Leonard, 2017, Essentials of patient education, by Susan B. Bastable, J. Consum. Health Internet, 21, 319, 10.1080/15398285.2017.1353294 Hobbs, 2009, A dimensional analysis of patient-centered care, Nurs. Res., 58, 52, 10.1097/NNR.0b013e31818c3e79 Lecocq, 2017, [The humanistic partnership model in health care], Soins, 62, 17, 10.1016/j.soin.2017.05.016 Caldwell, 2012, Studying policy implementation using a macro, meso and micro frame analysis: the case of the Collaboration for Leadership in Applied Health Research & Care (CLAHRC) programme nationally and in North West London, Heal. Res. Policy Syst., 10, 1 Paillé, 2016, 231 Athwal, 2014, Adaptation of a best practice guideline to strengthen client-centered care in public health, Public Health Nurs., 31, 134, 10.1111/phn.12059 Bilodeau, 2015, Interprofessional patient-centred practice in oncology teams: utopia or reality?, J. Interprof. Care, 29, 106, 10.3109/13561820.2014.942838 Brewer, 2013, An interprofessional practice capability framework focusing on safe, high-quality, client-centred health service, J. Allied Health, 42, 45 Glass, 2012, A person-centred lifestyle change intervention model: Working with older people experiencing chronic illness, Int. J. Nurs. Pract., 18, 379, 10.1111/j.1440-172X.2012.02054.x Greene, 2014, A person-focused model of care for the twenty-first century: a system-of-systems perspective, Popul. Health Manag., 17, 166, 10.1089/pop.2013.0040 Håkansson Eklund, 2019, “Same same or different?” A review of reviews of person-centered and patient-centered care, Patient Educ. Couns., 102, 3, 10.1016/j.pec.2018.08.029 Mead, 2014, Underserved patients’ perspectives on patient-centered primary care: does the patient-centered medical home model meet their needs?, Med. Care Res. Rev., 71, 61, 10.1177/1077558713509890 Pelletier, 2014, Patient-centered care and engagement: nurse leaders’ imperative for health reform, J. Nurs. Adm., 44, 473, 10.1097/NNA.0000000000000102 Scambler, 2014, A model of patient-centred care - turning good care into patient-centred care, Br. Dent. J., 217, 225, 10.1038/sj.bdj.2014.755 Morgan, 2011, A concept analysis of person-centered care, J. Holist. Nurs., 30, 6, 10.1177/0898010111412189 Davis, 2005, A 2020 vision of patient-centered primary care, J. Gen. Intern. Med., 20, 953, 10.1111/j.1525-1497.2005.0178.x Jayadevappa, 2011, Patient centered care - A conceptual model and review of the state of the art, Open Health Serv. Policy J., 4, 15, 10.2174/1874924001104010015 Ogden, 2017, Determining requirements for patient-centred care: a participatory concept mapping study, BMC Health Serv. Res., 17, 780, 10.1186/s12913-017-2741-y Robinson, 1991, A patient-centered framework for restructuring care, J. Nurs. Adm., 10.1097/00005110-199109000-00007 Kamei, 2017, Toward advanced nursing practice along with people-centered care partnership model for sustainable universal health coverage and universal access to health, Rev. Lat. Enfermagem, 25 Kremitske, 1997, Patient-focused primary care: a model, Hosp. Top., 75, 22, 10.1080/00185869709596480 McCormack, 2006, Development of a framework for person-centred nursing, J. Adv. Nurs., 56, 472, 10.1111/j.1365-2648.2006.04042.x Wagner, 2005, Finding common ground: patient-centeredness and evidence-based chronic illness care, J. Altern. Complement. Med., 11, 7, 10.1089/acm.2005.11.s-7 Umar, 2015, Re - thinking models of patient empowerment, Glob. Telehealth, 175 Falk-Rafael, 2001, Empowerment as a process of evolving consciousness: a model of empowered caring, Adv. Nurs. Sci., 24, 1, 10.1097/00012272-200109000-00004 Spence Laschinger, 2010, Towards a comprehensive theory of nurse/patient empowerment: Applying Kanter's empowerment theory to patient care, J. Nurs. Manag., 18, 4, 10.1111/j.1365-2834.2009.01046.x Thórarinsdóttir, 2014, Patients’ perspectives on person-centred participation in healthcare: a framework analysis, Nurs. Ethics, 21, 129, 10.1177/0969733013490593 Cahill, 1996, Patient participation: a concept analysis, J. Adv. Nurs., 24, 561, 10.1046/j.1365-2648.1996.22517.x Haidet, 2006, The complexity of patient participation: lessons learned from patients' illness narratives, Patient Educ. Couns., 62, 323, 10.1016/j.pec.2006.06.005 Dontje, 2004, A unique set of interactions: the MSU sustained partnership model of nurse practitioner primary care, J. Am. Acad. Nurse Pract., 16, 63, 10.1111/j.1745-7599.2004.tb00374.x Courtney, 1996, The partnership model: working with individuals, families, and communities toward a new vision of health, Public Health Nurs., 13, 177, 10.1111/j.1525-1446.1996.tb00238.x Colson, 2014, 283 Robinson, 1991, A patient-centered framework for restructuring care, J. Nurs. Adm., 21, 29, 10.1097/00005110-199109000-00007 Balint, 1969, The possibilities of patient-centered medicine, J. R. Coll. Gen. Pract., 17, 269 Wilson, 1977, Patient participation in a primary care unit, Br. Med. J., 1, 398, 10.1136/bmj.1.6057.398 Paine, 1987, Set up a patient participation group, Br. Med. J. (Clin. Res. Ed)., 295, 828, 10.1136/bmj.295.6602.828 Rappaport, 1988, Citizen participation, perceived control, and psychological empowerment, Am. J. Community Psychol., 16, 725, 10.1007/BF00930023 Cunningham, 2016, Partnering with patients to improve care, J. Nurs. Adm., 46, 549, 10.1097/NNA.0000000000000401 Willis, 2013, Creating a patient and family advisory council at a level 1 trauma center, J. Trauma Nurs., 20, 86, 10.1097/JTN.0b013e3182960078 Majid, 2019, Clarifying the degrees, modes, and muddles of “meaningful” patient engagement in health services planning and designing, Patient Educ. Couns., 10.1016/j.pec.2019.04.006