“It’s not what you were expecting, but it’s still a beautiful journey”: the experience of mothers of children with Down syndrome

Disability and Rehabilitation - Tập 34 Số 18 - Trang 1501-1510 - 2012
Divia Pillay1, Sonya Girdler, Marie Collins2, Helen Leonard2
1Department of Occupational Therapy, School of Exercise, Biomedical and Health Sciences, Edith Cowan University, Perth, Western Australia, Australia
2Telethon Institute for Child Health Research, Centre for Child Health Research, University of Western Australia, Perth, Western Australia, Australia

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10.12987/yale/9780300103939.001.0001

10.1046/j.1365-2788.2001.00372.x

10.1207/s15326888chc1701_6

10.1080/15228960802581503

10.1352/0895-8017(2006)111[155:MOCSOD]2.0.CO;2

Friedrich WN, 1981, Am J Ment Defic, 85, 551

10.1046/j.1365-2788.2003.00492.x

Olsson SF, 2002, J Intellect Disabil Res, 31, 1

Neely-Barnes SL, 2008, JEIBI, 5, 93

10.1542/peds.2004-1689

10.1016/j.jpeds.2008.02.047

Wayne DM, 2005, J Occup Ther In, 12, 180

10.1352/0895-8017(2004)109<237:PWACIM>2.0.CO;2

10.1111/j.1365-2788.2005.00699.x

10.1111/j.1365-2788.2010.01258.x

10.1080/02646830500475351

10.1093/jpepsy/jsn040

10.1111/j.1365-2788.2005.00661.x

10.1007/s10803-006-0129-7

Fewell R., 1986, Families of handicapped children, 297

10.1002/9780470750841.ch1

Dyke P, Leonard H, Bourke J, Bebbington A, Bower C. Down syndrome needs options and wishes study report. Perth, Australia: Telethon Institute for Child Health Research; 2007.

Taylor JS, 1998, Introduction to qualitative research methods

Crotty M. Phenomenology and nursing research. Melbourne, Australia: Churchill Livingstone; 1996.

Richards L. NVivo Version 8 qualitative data analysis software. Cambridge, MA:QSR International Pty Ltd, Melbourne, Australia; 2010.

Glaser BG, Strauss AL. The discovery of grounded theory: Strategies for qualitative research. Chicago, IL: Aldine; 1967.

10.1136/bmj.320.7226.50

10.5014/ajot.45.3.214

Haworth AM, 1996, Ment Retard, 34, 271

10.1111/j.1365-2214.2006.00571.x

10.1046/j.1365-2648.2002.02417.x

10.1300/J095v04n01_02

Krause N., 2001, The handbook of aging and the social sciences, 272

10.1352/2008.46:436-445