‘I lose all these hours…’– exploring gender and consequences of dilemmas experienced in everyday life with coeliac disease

Scandinavian Journal of Caring Sciences - Tập 23 Số 2 - Trang 342-352 - 2009
Annette Sverker1, Gunnel Östlund2, Claes Hallert3, Gunnel Hensing1
1Department of Social Medicine, The Sahlgrenska Academy, Göteborg University, Göteborg, Sweden.
2Department of Social and Welfare Studies, Linköping University, Norrköping, Sweden
3Department of Internal Medicine, Vrinnevi hospital, Norrköping, Sweden

Tóm tắt

Few studies have focused on gendered consequences of coeliac disease (CD), despite the fact that women with coeliac disease report lower health‐related quality of life than men do. The aim of this study was to explore consequences of dilemmas in everyday lives for women and men, as personally affected by CD or as close relatives to someone affected by the disease and to put these experiences into context regarding household activities. This QUAL‐quan study included 28 men and 38 women. A mix method design was used. The critical incident technique that captures, in a structured way, the qualities of experiences was used in interviews to identify dilemmas and their consequences. To describe the social context of these dilemmas, a quantitative questionnaire was developed on food preparations and purchase, as well as on cooking and meal behaviours. The study was approved by the Research Ethics Committee of the Faculty of Health Sciences. The consequences were found in cognitive, social, emotional and physical aspects of human life. The overall pattern of these consequences was similar in women and men irrespective of being personally affected or a close relative. The main consequences identified were: daily concerns about gluten, constant preparation, being different, emotional pressure and body sensations because of CD. Descriptive data extracted from the questionnaire showed that women and men reported having a different social situation in relation to preparing food, making decisions about purchases, buying food products and preparing meals. The clinical implications of these findings are that healthcare professionals need to develop family‐oriented information in relation to CD. It is necessary to inform the close relatives irrespective of sex of the possible consequences of the disease and to take in to account the different social context that women and men report in relation to food preparations.

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Tài liệu tham khảo

Fjällström C, 1990, Drömmen om det Goda Livet (The Dream of the Good Life), in Department of Ethnography and Department of Nutrition

10.1017/CBO9780511607745

Murcott A, 1983, The Sociology of Food and Eating. Essays on the Sociological Significance of Food

Sjögren‐de Beauchaine A, 1988, The Bourgeoisie in the Dining Room – Meal Ritual and Culture Process in Parisian Families of Today, in Institute of Ethnology

Boalt C, 1939, 27000 Måltider. En Undersökning av Kostvanor (27,000 Meals. A Survey of Eating Habits)

Ekström M, 1990, Kost, Klass och kön (Food, Class and Gender), in Department of Sociology

10.1111/j.1365-2036.2004.01961.x

10.1001/archinte.163.3.286

10.1056/NEJMoa021687

10.1111/j.1365-2036.2006.02768.x

10.1080/003655202753387338

10.1046/j.1471-6712.2003.00228.x

10.1016/j.dld.2006.01.004

10.1016/j.jada.2003.08.027

Graham H, 1984, Women, Health and the Family

ThomasC.Domestic labour and health: bringing it all back home.Sociol Health Illn1995;17:328–52.

10.1111/j.1467-9566.1997.tb00423.x

10.1016/j.ijnurstu.2006.08.021

10.1177/1054773805285706

10.1177/104973239800800207

10.1111/j.1467-9566.2005.00447.x

Statistics Sweden, 2006, Women and Men in Sweden

Ågren G, 2004, Den nya folkhälsopolitiken. Nationella mål för folkhälsan (National goals for public health), Statens Folkhälsoinstitut Rapport, 20, 3

10.1136/jech.2005.042192

WHA, 2004, General Assembly, World Medical Association, Declaration of Helsinki, Ethical Principles for Medical Research Involving Human Subjects

10.1111/j.1365-277X.2005.00591.x

10.1111/j.1365-277X.2007.00815.x

Morse JM, 1999, The role of the theoretical drive in maintaining validity in mixed method research, Qual Res Psychol, 3, 1

10.1037/h0061470

10.1037/h0042025

Oiler C, 1981, The phenomenological approach in nursing research, Nurs Res, 31, 178

10.4324/9780203994610

10.1046/j.1365-2648.2000.01597.x

Woolsey L, 1986, The critical incident technique: an innovative qualitative method of research, Can J Couns, 20, 242

10.1053/hl.1999.v28.a99538

10.1016/j.ejcnurse.2004.03.001

10.1111/j.1471-6712.2007.00450.x

10.1046/j.1365-2702.2003.00692.x

Ivarsson B, 2005, Waiting for Heart Surgery, in Department of Cardiothoracic Surgery

10.1111/j.1468-2397.1997.tb00201.x

10.1080/003655298750026949

10.1111/j.1572-0241.2003.07632.x

10.1097/01.meg.0000221855.19201.e8

10.1177/0961463X93002002001

10.1007/978-1-349-22622-1

Stephens J, 1999, Gender, Power and the Household, 99, 10.1057/9780230376632_6

10.1093/eurpub/11.4.413

10.1207/s15327558ijbm1301_1

10.1111/j.1365-277X.2005.00607.x

10.1097/01.mpg.0000228102.89454.eb

Federation of Swedish County Councils and the County Council of Stockholm, 2001, Has Gender Importance? – High‐Quality Workmanship and Gender Perspective

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Scandinavian Journal of Caring Sciences

Tập 23 Số 2

342-352

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